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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About lizk

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  1. Photos Of Mild Dh

    Oh and I would say for the past 6 months I have been "itchy/scratchy" as well and have bumps on the back of my thighs that itch that I thought were ingrown hairs or something. The burning sensation you mention I don't think I've heard before and is what I feel sometimes because I have described it as almost feeling having a sunburn when it gets itchy. Thank you for your replies!
  2. Photos Of Mild Dh

    I'm sorry you had such a tough time of it. Does your son have multiple "mosquito bite" looking lesions in one place? Or is it one here or there? I had some that were very tiny blistery looking things and lately I have had larger "bug bite" looking ones that are usually (not always) on matching sides of my body. They usually just present as one, but for example on my ankle last week I had 3 or 4 in a cluster. And yes sometimes the skin just burns or sort of generally itches and then a tiny bump will appear.
  3. I found this link of what I would consider "mild" DH (except maybe the back photo, that looks kind of severe) and thought I would post because I've had a hard time finding photos that don't look pretty severe. Most photos of DH don't look like what I have (and I'm still not sure if I have DH), but these look very similar to what I have - especially the first photo. Anyway, just thought I'd post in case it helps anyone. http://www.celiaccentral.org/skin/
  4. Thanks for your advice! And thank you for reading my long post! I think I will try to make an appointment with a dermatologist.
  5. I guess I am just mostly venting because I'm frustrated that I can't figure out what is wrong with me. Last fall I was having gastro issues (bloating, D, cramping) and also some skin issues - severly itchy bumps that would come and go. I went gluten-free (I realize now that was dumb before seeing a doctor) and the GI issues resolved almost completely except I was still having loose/soft stools and occasional undigested food. I went to a GI doc because of these issues (at this point it had been going on for about 3 months and I also still had random itchy bumps) just to be sure there was nothing else wrong and she couldn't find anything. Obviously she didn't do any celiac tests because I was still gluten-free at that point. She did say I had a slightly elevated folate level which could indicate bacterial overgrowth and also I was slightly deficient in vitamin D. Ironically by the time I had my GI appointment (literally that day), I had a "normal" stool and did for the couple days after. I had also cut out dairy for the past month or so. So, I decided to start eating gluten again because I really didn't have any reason not to. Yes I felt better without it but I also thought maybe it was just a virus or bacterial infection or something that took a long time to get rid of. I am not so concerned with a definite diagnosis if it is celiac but I am more concerned with some diagnosis if it is NOT celiac if that makes sense, so I am back on gluten just to try to rule it out as a cause. I am still off dairy because I don't want to add both back in at this point, although I have had a little greek yogurt and small amounts of hard cheddar. So here's what has happened over the past 10 days eating gluten. I have no pain really, but some bloating. I don't know what is "normal" for someone's stomach to bloat after they eat but in the morning my waistline is about 27 inches and then after breakfast it is about 29 1/2 - 30 inches. I have been eating Cream of Wheat for breakfast but this morning I had just a piece of whole wheat toast and a smoothie and my tummy was 30 inches. I still have "loose" stools and I only go in the mornings. Usually the first one is just loose and unformed and then I may go again once or twice and those are considerably looser, and usually very thin. I still have the itchy bumps but they are coming in different forms now. I still have the tiny blistery types ones occasionally but I am now getting bigger more bug bite-looking ones. I have two on each arm now and had one on each side of my abdomen earlier this week. They do not look like typical DH but I have no idea what they are. They have sort of like a little indentation in the middle and after they itch/burn they are also sore. So I guess I am just confused and a little worried because obviously something is not right. It doesn't appear to be celiac but also there doesn't seem to be anything else wrong that shows up on any tests. I am temtped to go back to being gluten-free but even then I had the loose stools and tiny bumps. Maybe I didn't wait long enough? But if it is gluten wouldn't I be having more severe reactions now? I know this is all rambling but it helps to just get out my frustrations!
  6. How Tiny Can Dh Be?

    Thanks for your response! Sorry you are still itching but glad to hear it has improved and hope the progress continues. That is so interesting about lying down...can't say that I have noticed it but now that I think about it I really only lie down at bedtime. I usually watch tv either sitting in a chair or on the floor and don't really take naps except occasionally on weekends. I am so frustrated right now about my symptoms...even more so because I went to a GI yesterday and she basically told me nothing. I showed her a couple of the bumps I had and she said "doesn't look like DH." Really the only gastro symptoms I have left (and I haven't looked at soy so I will do that but I don't think there is much in my diet) are just what I think are not "normal" stools. They are just soft, not really loose (sorry for the TMI) but also sometimes undigested food. I used to have bad bloating but that has all gone away since going gluten-free. I just wanted to see a doctor because I thought something is still not right. I told her all this and she said "hmm, maybe try some Metamucil." She had no answers for the bumps. Take some benadryl, she said. Fine, but what ARE they? As a doctor, doesn't she care?? Something should not be so itchy it keeps you up at night, that is just not normal. Ugh, I am just frustrated. Thank you all for your replies
  7. How Tiny Can Dh Be?

    Thanks for your reply! They are usually red around them but maybe that is from scratching. And the old ones are purplish (pink/purple/brown??) sort of scar looking spots - all over my legs It is definitely worse at night. Sometimes itchy during the day, but not ever as bad as the nighttime. Good point about gluten-free for life. I think I just wish I had gotten tested before going gluten-free because I could be overlooking some other condition thinking it is celiac. I know for sure though that almost all of my gastro symptoms resolved after going gluten-free.
  8. How Tiny Can Dh Be?

    Thanks for your reply! The benadryl didn't make the bumps disappear at all, just seemed to temporarily stop the itching. They still itched the next day and I got another bumps on my arm the next day and one more this morning I knew about the iodine connection but have just read on here about salicylates! I eat a lot of foods with those and will check that out. Thanks for the recommendation about ice and Vanicream - I've never heard of it so I will check to see if our local drugstore has it.
  9. I have just the tiniest bumps and they are not clusters but they itch like crazy! I have been gluten-free for about 3 months because I was having stomach issues (itching too, but at the time I didn't connect it to gluten). They are tiny, like pinpoint tiny but right now I have one on each shin, two or three on each thigh, and one on each side of my stomach! Oh, and one random one on my arm. Can they be that tiny? And can there just be one? The other night my legs were itching so bad I seriously couldn't sleep - two rounds of lotion and no relief so I finally took two benadryl which seemed to work. Not sure if it stopped the itching or just knocked me out If it's not DH I have no idea what it is. I know they are not bug bites. I am so frustrated because I know I can't get a diagnosis now because I'm gluten-free and I didn't think I cared about a formal diagnosis but now I think I do! Only because I would like to be sure it isn't something else and also to know how careful I have to be.
  10. Thanks for the reply! I hope you continue to feel better. You are so right about the flour shortcuts...I recently read somewhere (on here I think) that some restaurants will use it in scrambled eggs! I would never have thought to ask if the eggs have flour in them!
  11. Thanks for the replies! I'll check out those sites. I don't have an iPhone but it looks like they have the same tool on just their regular website. The scanning thing is cool, though! I love that these sites let you track overall nutrition, not just calories.
  12. I have been gluten-free for about 3 months, and I am generally ok with the diet in terms of being able to stick to it and not feeling deprived, etc. I ate pretty healthy before going gluten-free so I ate a lot of whole foods anyway. There is definitely still some adjusting to do, but overall I feel ok with it. However, I feel like I struggle with getting enough calories and proper nutrients in terms of fiber, "good" fat, etc. For example here is what I ate yesterday: breakfast - gluten-free oats with coconut milk, sunflower seed butter or peanut butter, banana, chia or flax seeds (a few days a week I will have a smoothie with kale, banana, berries, protein powder, chia or flax seeds, coconut milk) a.m. snack - piece of fruit and a couple of rice cakes lunch - quinoa, red beans, an avocado, and some celery w/peanut butter afternoon snack - grapes, strawberries, few squares of DF chocolate dinner - chicken w/veggies and rice noodles in thai sauce evening snack - apple w/peanut butter, grapes, strawberries I eat a lot of fruit so I should be getting enough fiber but I don't know if I am getting enough calories for the day. Also maybe I am getting too much fiber?! I guess part of this is because I am concerned I am still having soft stools in the mornings (which is the only time I go). I know this is not unusual, but I just have no idea if I am eating properly. I feel like I am constantly eating! But I always sort of feel hungry. I have seen some websites that help track calories and carbs, but I am looking more for something that would help me track nutrients, fiber, etc. Does anyone know of something like that?
  13. So interesting to know that this has happened to others. I am so curious if that's what I had back then...looking at the photos of DH makes me think it was. Thanks for the replies!
  14. My biggies were seafood and carageenan and eggs and dairy. I grew to hate egg whites with a passion (and still do, btw).
  15. Thanks for the list squirmingitch! This is a good point, too. I think what I'll do for now is keep a list of high iodine foods just so I am aware (I had no idea about some of those!) and that way if I get any bumps I can look in my food journal to see if there is a connection. It will help me be more aware and I can keep iodine intake sort of balanced, like not eat a meal with say coconut shrimp, with potatoes and asparagus on the side, and strawberries and blueberries for dessert! I am not having severe outbreaks, just a few here and there (but man they are itchy when I get them), so it will definitely be helpful to be aware of my iodine intake.