• Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


  • Content count

  • Joined

  • Last visited

Community Reputation

0 Neutral

About WendyK

  • Rank
    New Community Member
  1. Unsupportive Spouse

    I sure know what you mean about having unsupportive people (husband, friends, family, etc). My ex-husband once told me my doctor was a quack. I had asthma and had two treatments in my doctor's office and she told me she couldn't do anything more for me and wanted me to go to the emergency room. I didn't want to go to the emergency room so instead had her give me a perspection which I filled on the way home. I called my husband at the time and asked him to pick up the kids from school and he said no and that my doctor was a quack. REALLY! I had to pick up the kids on the way home and get the prescrition before I could resk my body. What a jerk. Glad I don't live with him anymore. I just got back from my Nutritionalist this morning and after nine months of gluten free, diary free, soy-corn-bananas-apples-peanuts-shrimp-tuna-crab free diet I have now registered as a real turn around on her BioMeridean piece of equipment. Although I have felt better after the first two months, her machine just kept reading in the bad zone. I am so happy to have finally broken this aweful cycle and have a test that is actually documenting it. I still have a ways to go but now the progress is documented. She has me on a tone of supplements, too. I also have hypothryoidism and am taking medication. I hope one day to get of the medicine but feel I need it until I get all my organs in the green. I hope my Thyroid is becoming more healthy. The hardest part of these processes are you have get experience for your body instead of getting experience from others. It is such a long haul but so worth it. I am definately not the same person I was nine months ago. I am so much better. The only advice around your husband is frankly don't talk about it. He will never support you and trying to educate a person who doesn't care only creates a lot of additional conflict. He's the jerk, not you. Work around him as best as you can. And yes, he can make his own dinner if he doesn't want to eat what you make. He is not your child. He is old enough to make his dinner if he doesn't like what you fixed.
  2. Deeply Frustrating LGBT Issue

    I'm a female and have been single for over 12 years. I was married for twelve years and we have two wonderful daughters. I, too, am very frustrated with the dating scene. Dating for 12 years and not finding a man who works for me is frustrating. I don't even bring in the whole special diet piece. I am very independent and strong so it doesn't matter to me if I ever find "him". I find that any kind of relationship is challenging (siblings, parents, female friends, male friends and the "special someone"). I have pretty much given up as I don't want to compromise my freedom. I really don't want to end up making constant compromises to live with someone. The daily grind of trying to make a relationship work is too boring for me. Please don't feel you are the only one who experiences disappointment in relationships, it doesn't matter if a person is gay or not. The challenges are every where. By all means, focus on your health. Don't worry about what others think. Just protect yourself. If you make a big deal of it then others will resist. If you take your own food to places and only explain yourself briefly and move on to another subject, it will be much easier. Trying to expect others to conform to your lifestyle will only cause a rift. I have two kids that are not on any special diet so I work around them on a daily basis. The positive thing for them is they will be aware and not afraid to try new foods in case in the future they need to do some type of special diet. They try many of my stuff and do like it. Most of the time I don't even tell people. I just bring what I can eat as a cover dish or look on-line before going to a restaurant to figure out what is considered safe for me. I am not only gluten sensitive but also dairy, soy and many other items. Once a person stops taking their situation so personally and expecting someone else to take on other peoples issues, then life is much better. Enjoy life doing the things that work for you. I've been at this special diet thing for eight months and it does become routine after a while and not such a big deal. I feel tons better so the effort is worth it.
  3. At My Wits End...

    I went to a nutritionist and it really was the best thing I could have done. I felt so bad for years. I'm not a celiac but I am gluten sensitive, along with diary and many other items. The saying, you are what you eat, really hits home once you get tested. The hardest part in the early stages is actually believing these major changes (including many supplements for me) are worth it. Realistically, you just don't know. You have to live it. In order to do that you have to be patient with yourself and let time pass. It took me two months of a very strict diet before I noticed any change which was pretty discouraging but I put my faith in my Doctor of Nutrition (clearly she know more than I do). She is my best resource now. Once my symptoms really started to deminish (but still there) and my energy started coming back, it really felt like a meracle. It's been almost eight months now and I still feel like I am in a recovery stage but a great stage. I feel happy and energized now but it's still a real commitment. I hope some day to cut back on the supplements since there are so many and expensive but worth it for now. I believe I am actually getting my nutrients now more than I have in years. When I was first told to do the diet change, I gave myself a break instead of powering through the day. Raising two kids on my own and dealing with such a different life style is tough. They didn't want to change (nor should they have to) but when I was tired, I just told them I needed to rest instead of not letting them know I was exhausted. I know longer felt guilty when I felt weak and gave my body more rest to help itself recover. Be patient with yourself and don't expect to feel better over night. Be sure your Doctor has run a blood test on most routine type items. It's amazing they don't do a routine panel anymore. My hypothyrodism would have been discovered years before also.
  4. Seven months ago I went to my Doctor and said I wanted her to take what ever blood test she needed because I wanted to make sure feeling so bad for years was because of menopause. I blamed every symptom on this change starting at 42 years old. I couldn't take it any more. Once the tests came back, I discovered I had hypothyroidism and was given a perscription. I am not a complainer (that is why it took me so long to have a simple blood test done)but I really did not want to go on medication so I immediately went to a nutrionalist. She tested me for food sensitivies and I came up with so many I was in total shock! Gluten, dairy, crab, shrimp, tuna, peanuts, soy, popcorn, apples, bananas and many more. She put me on many suppliments (I was only taking calcium at the time and no perscription medicines). Not having a clue that the things I was eating really had a negative impact on me from a digistive perspective, I blindly followed her advice. I was very strict with the "hope" I would feel better. Most people were not supportive of my change in diet and didn't believe anything this doctor had to say. I am strong person so I really didn't care what they thought as they were not feeling what my body was feeling. None the less, it is a very hard transition. I had experienced major fatigue, tingling in hands and feet, extreme brain fog (where I felt I could barely keep up with work), hot flashes that would make we want to faint, dry skin, brittle nails, hot/cold intolerance, etc. I did not take the medication and hoped the diet change would make the difference. It took two full months on extreme effort before I could say I felt better. Some people are so lucky they can feel a change within a few weeks. Three month into the diet change I had another blood test and, unfortunately, there was no change with my thyroid reading at all but I felt so much better that I felt the diet change was too important for me to abandon. I have since gone on the medication. Between the diet change, nutritional suppliments and I'm sure the medication, I feel like a real person again with periods of very high engery. I know I am still on my path to healing and still don't like the diet restctions, however, I won't go back to my old ways since I feel so good. I am sure for the rest of my life I will depend on a nutritionalist to ensure I am staying on track. Now I am at the point where almost every receipe can be made using substitutes and the majority of them leave me with a feeling that I am not being deprived and usually very satified. It just takes more effort. The hardest part is the realisation that this change does not happen over night. It took me a long time to get to the point where I felt so bad and it will time to get back to where I need to be but what is the alternative? I am so much happier now with much less anxiety. Stick to it. It's worth it.