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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About RiFi

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  1. I too have been wondering if psyllium allergy is related to celiac disease. At this point my celiac status is unknown (in the process of testing now) but about 5 years ago I developed a severe allergy to psyllium. I had chronic urticaria for over a year and it was only be sheer fluke that I finally worked out psyllium was the cause. Since then I have gone on to develop an allergy to oats (which I happily ate for decades without a problem) and then quinoa, which I began using as a substitute for the oats. The oats gave me incredibly painful mouth ulcers, not the common garden-variety ones. But the quinoa allergy went from causing urticaria to throat swelling. Reticent to give it up, I tested quinoa several times and each time the allergy got worse and the throat swelling more severe. Now flax seeds bring on urticaria as well. Apart from rhinitis, I've pretty much been allergy free my whole with no obvious food sensitivities, but my allergy to psyllium seems to have precipitated a cascading series of new allergies There's a theory that a subset of people with celiac disease have a reaction to oats, not because of the often suspected cross-contamination with gluten, but because of a cross-reactivity between gliadin and avenin (the protein in oats).
  2. Hi there, With regards your rash Dermatitis Herpetiformis, the little bumps don't necessarily have to be fluid filled. On the Coeliac Australiasite (I'm an Aussie) it says the rash can appear 'hive-like, persisting in one area, or it may look like a pink and scaly dermatitis'. I have a small pink scaly patch on the side of my wrist as well as persistent little red dots/ bumps on one knee cap that sometimes get extremely itchy, but only sporadically. My GP suspected HD so I've just had blood tests for celiac disease. And though I'm not aware of having obvious reactions to wheat or gluten, over the past 3 years I have developed very strong allergic reactions to psyllium, quinoa and oats (even though I've been eating oats for decades). Apparently the protein in oats (avenin) is very similar in structure to the gliadin protein in wheat and there's thoughts now that there may be a subset of celiacs who also react to avenin. As for the balsamic vinegar, I too have very strong reactions to it. Balsamic vinegar is very high in two natural food chemicals called salicylates and amines and it may be that you're sensitive to either or both of these chemicals. Generally the longer food is stored or left to mature, the greater its amine (and histamine) content and the more problematic it can be for individuals with food sensitivities and intolerance. This site is a great starting point to understanding the different types of food allergies and sensitivities that can can be caused by salicylates, amines and glutamates and the affects they can have. And if you want to explore some of it further, here's a link to their 'failsafe' elimination diet. You'll also find a lot of information about all of this at fedup.
  3. Hi there, I'm hoping someone might be able to help me interpret my celiac serology test results. I've read that IgA deficiency can make some of the other test results invalid, but how do you know if you're IgA deficient or just low in IgA? TTG IgA <1 U/mL range (<7) [Gliadin (DGP) IgG <1 U/mL range (<7) IgA 0.82L g/L range (1.24 - 4.16) Do I need to ask for any further testing or can I rest easy? Thanks Ri
  4. Hi again I also should have mentioned that food sensitivities/ allergies can definitely affect sleep - some can make you feel wired, have vivid dreams, night terrors and/ or generally contribute to a restless night's sleep. Having said that, there can be many other causes for sleep problems as well.
  5. Hi Xjalin, In your post you mentioned sleep issues - what kinds of issues are you having? While it definitely sounds like you've got gut issues independent of your sleep, poor sleep can lead to all sorts of neurological issues, including stuttering. Has your doctor ever recommended a sleep study? Also, if you explore the celiac route and don't find any answers there, you might want to explore food allergies and intolerances to both natural and artificial food chemicals. Some people have very strong reactions to chemicals that occur naturally in foods, even really healthy foods like fruits and vegetables, called amines, salicylates and glutamates. And then of course there's food additives like artificial colours, flavours and preservatives. Sensitivities to any of these chemicals can cause all manner of issues from neurological, physiological to emotional. Here's an easy-to-understand introduction to food chemical sensitivities. And you'll also find an abundance of information at fedup - a site dedicated to chemical sensitivities. I really hope you start finding some answers
  6. Hi Leslie, I'm really sorry to hear you've been having such a rough time of it lately. I'm sure it's been made more distressful by not being able to find an underlying cause. From everything that I've read, there definitely is an association between low Vitamin D and celiac disease. What are your calcium levels like? Often low Vitamin D leads to low calcium levels because it's essential for calcium absorption. You mentioned your magnesium levels - it's probably worth getting them checked because magnesium is essential for Vitamin D absorption. If you google 'magnesium and vitamin D', you'll find a lot of articles. There's an interesting one here: Magnesium and Vitamin D Metabolism This article links to another site - Vit D Council where you'll find a lot about the importance of Vit D. I do sometimes feel the main author on this site, Dr Cannell, has a barrow to push (frenetically) and there's definitely some bias in his reporting, but there's still some great information here. Also, have you explored any other food allergies/ sensitivities you might be having to food chemicals that naturally occur in food ie salicylates, amines, glutamate. A lot of the symptoms you've described above can be caused by foods high in these natural chemicals. There's some good hard science around all of this and there's a great introduction here You'll also find a wealth of information at Sue Dengate's fedup site. One more thing - psyllium husks are excellent for constipation (they contains both soluble and insoluble fibre) - in Australia you can buy them by the bag at supermarkets and some chemists. A word of caution though, most people can take it without a problem but I ended up developing an allergy to it - rash/ itching - but apparently this is pretty rare. Best of luck finding some solutions
  7. Thank you for your well wishes Like you, I'm sure nothing serious has shown up, I think I'm kinda curious more than anything. It sounds like a ridiculously indulgent and naive thing to say, but when you've got soooo many issues going on with both my head and body, you kind of hope you can uncover/ be diagnosed with a condition that helps make sense of at least some of the messy pieces. And just as importantly, that there are steps you can take ie go gluten-free to help ameliorate the symptoms. In saying that, whether I do or don't have the condition, I'm not for a moment minimising the harsh realities of celiac disease - I have a very close friend who has it along with her two children and I've seen the very difficult path they travel on a daily basis. Any way, I'll sit tight for another few days
  8. Thank you for your feedback Just to clarify, do the letters 'TTG, IgA gliadin Abs' pertain to one test or two? The comma after TTG is throwing me because it makes it look like two different tests. Hope me question makes sense
  9. If u do a search for 'ehlers danlos' in the search box of this forum, you'll find many, many posts.
  10. Hi Clayton, You might want to explore the link between celiac disease and Joint Hypermobility Syndrome/ Ehlers Danlos Syndrome. Many celiacs have this syndrome and it can have major musculo-skeletal (hypermobile joints, pain, stiffness, dislocations) and neurological effects (including ataxia). Dr Tinkle is an expert in the field and has recently released a free iTunes app to help practitioners and lay people diagnose the syndrome. The app is called JHDiagnosis.
  11. Hi Everyone, Any ideas on the something? My (new) GP and I are exploring whether I might have Celiac Disease. My mind and body is always all over the shop, so I can't say that I'm aware of reacting to gluten and/ or wheat per se. But given that I have many of the markers, we're just beginning to investigate. I have just been tested for: TTG, IgA gliadin Abs The blood test results are back, and although they've come back as negative for celiac disease, there's something that's shown up that my GP would like to discuss with me. My appointment isn't for another 5 days and I'm wondering what the 'something' could be? Any ideas? Thanks Ri