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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About cd42

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  1. Just so you know you are not alone--my daughter is in a similar situation. She has been gluten-free for nearly a year, but her ttG levels remain pretty much unchanged from her original diagnosis. In our case, her symptoms went away almost immediately on the gluten-free diet, but the numbers fail to come down (still at 120). While I suppose there could still be some hidden sources of gluten and high sensitivity, her absence of symptoms suggests otherwise. Do you continue to have symptoms? If you do, it could be that you are still getting gluten as suggested by others here, but alternatively the symptoms could indicate other GI diseases (Crohn's, IBD), which apparently can also cause high tTG.
  2. My 5 y.o. was diagnosed last summer with Celiac and as far as we know hasn't been exposed to gluten since that time (although her ttg remains high). Tonight she was extremely exhausted and told me that she didn't feel like walking, barely touched her food and just put herself to bed--she seems sick, but no fever, no runny nose, no symptoms, but extremely tired. Of course, we are worried that this could be an acute response to gluten at school today (she had gluten-free cupcakes at school today, but I worry about cross-contamination), but I haven't heard of this kind of acute response to gluten. Does this sound familiar to anyone or is it just some kind of virus and I'm being paranoid. Any thoughts?
  3. Thanks for your reply. I'd be interested in hearing how your son's tests come out--best of luck!
  4. As far as we know the level has not come down at all, but you are correct it turns out that the levels went from >123 to >146 to exactly 126 in three consecutive tests. I guess we don't know whether >146 is actually higher than >123, so it is possible that it is coming down, but doing so slowly.
  5. My 5 year old grew 3+ inches in 6 months and shot clear up the growth chart--we were all amazed.
  6. Not a single reply....should I take this to mean typically children don't have a ttg test during the recovery period? I'd really be interested in just hearing others experiences with TTG numbers after 6 months on a gluten-free diet.
  7. My 5 y.o. daughter was diagnosed last summer with Celiac Disease (both anti-TTG and biopsy positive) and has been on a gluten-free diet since. Her symptoms, which were fairly mild, went away quickly. She also developed anemia and that recovered within 6 months on the diet. Her serum ttg remains high after 9 months and hasn't come down at all (125 at last test). The doctors seem puzzled. Has anyone else experienced anything similar with their children? If so, did the serum levels go down eventually? I'm also interested in hearing what others have seen in their children's ttg levels after being put on the diet. The papers I have seen on the topic suggest that although it can take a long time to get back to normal levels, most people see dramatic improvement in this time frame--however, all those studies seem to be with adults.