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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Vintage River

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About Vintage River

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  1. Thank you both for responding regarding my lab work! I did receive a print copy of the results, which reads directly as I had entered it above. The lab work was processed by Quest diagnostics, should I contact them regarding their process to see if it is the old anti-gliadin test or the new deamidated gliadin peptide? I was concerned that they did not do a total serum, as I've heard that can lead to a false negative. I had posted a rather lengthy explanation of my symptoms and family history on the board under "So Many Symptoms, Unsure About Tests" and am hoping to get more advice as to how to proceed. Perhaps I should simply take the plunge and go gluten free. I was hoping to have concrete evidence, so that I could convince other family members suffering with similar symptoms to do the same!
  2. Thank you so much for your reply! I think that trying a Gluten free diet will be the ultimate test. I was hoping for some type of concrete evidence, mainly because so many other members of my family are suffering with similar symptoms and are treating their conditions with prescription medication. Perhaps if I go Gluten-free and see real results, they will follow in my footsteps!
  3. I am in the same position as you--so confused by the recommended testing and blood work! I am self-insured and try to keep costs low, so I recently went to a walk-in lab to have the panel run, as I have most of the symptoms, and every female member of my family has been diagnosed with a different autoimmune disease. After getting the tests back today, I was confused, as they did not run a total IgA serum, which I've read is helpful in ruling out IgA deficiencies. I was wondering if the Immunoglobulin A mentioned referred to in your labs above is the technical term for this total serum? I realize that I should find a doctor that could help me navigate this process; however, I've been to two already, and they simply wanted to treat the symptoms, not find the cause for critically low iron, tingly legs, and a host of other problems. I hope that we both find success in navigating this process! Here are my lab results in case they are relevant. I requested a Celiac panel, but I'm wondering if this panel is insufficient? Reticulin IgA Autoabs: Negative Endomysial IgA Autoabs: Negative Gliadin IgG Abs: <3 Gliadin IgA Abs: <3
  4. Please be patient, as this is my first post. I have been reading through these forums for several months, but have only just joined! After spending hours researching Celiacs Disease online, I feel quite sure that I am sensitive to Gluten. Here are a list of my symptoms: *On prescription stomach medication in elementary school for what the doctors referred to as "a nervous stomach" *Childhood asthma *Diagnosed with IBS as a teenager *Developed joint pain and cracking in college, which has continued to worsen. *Developed Rosacea in my mid-20s *I have an upset stomach on a daily basis and have lost over 20 pounds in two years without a change in diet. *The enamel on my teeth is inexplicably weak. After a few years away from the dentist, I returned to find 13 cavities, which required 4 crowns and 2 root canals, despite what the dentist called excellent oral hygiene. *I am hypoglycemic, and tend to have ringing ears and black out if I don't eat frequently, especially in the hot summer months. *For the last four months, I've had a numb, tingling, burning sensation in my legs, especially at night. It's DRIVING ME CRAZY! (The doctor said there was no obvious cause, and decided that it was due to anxiety--but I don't feel anxious, aside from worrying about the burning sensation in my leg!) *During a recent physical, my blood test showed a low Ferritin Serum Iron level of 7, a very low Vitamin D level, and a normal-low B-12 level (though I take sublingual B-12 that's 150x the daily value) The doctor recommended that I take an over-the-counter multi-vitamin. (My vitamin levels have been in this range for the last 3 physicals, despite taking vitamins) *My mother has been treated for Rheumatoid for the last 15 years and has also had Stage 4 Colon Cancer, my Grandmother is diagnosed with Lupus and horrendous Osteoporosis, and my sister's doctors are currently treating her for Polysystic Ovarian Syndrome, because they cannot determine what is causing her vitamin deficiencies among a host of other issues. Based on my symptoms, I felt that Celiacs might be the answer for me and my immediate family members. The only doctor in my area who has a history of treating for Celiacs is a natural doctor, and he charges absurdly high rates for 15 minutes sessions which cannot be billed through insurance. I decided to take matters into my own hands and went to a walk-in lab and requested a celiac panel. I received the results today, but I'm wondering if they are useful, as they did not not run a total IGA serum count. The results are below: Reticulin IgA Autoabs: Negative Endomysial IgA Autoabs: Negative Gliadin IgG Abs: <3 Gliadin IgA Abs: <3 I'm not sure if these results are helpful if there is no total serum IgA, or if I should consider them proof positive that I do not have Celiacs? I am nearing 30 and have just married. My husband and I want to start a family, but I worry that I should raise my Iron and other vitamin levels before pregnancy. Thank you so much for taking the time to read this and for any advice you might have!