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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About marys2012

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  1. Thank-you. I wonder why it made me sick...hmmmm. Maybe msg in the natural flavor. I tested a bit of it again today to see if that was it and I got sick again. Frustrating....Oh well, I will do a plain one next time! Thanks again.
  2. I am trying to post the following question and cannot figure out how to doe it. Please help: Are Trader Joe's Brined Organic Whole Chickens gluten free? I got sick after eating some but am not sure it was due to gluten. The store was not sure and customer service has not gotten back to me.
  3. I can't figure out how to change where my topic posts, so I hope I get some hits from this. But I enjoy cooking and have a lot of recipes whose only gluten containing ingredient is all-purpose or self- rising flour. I want to continue to make these recipes substituting gluten free flour. But I've read you can't just choose any type of gluten free flour to substitute for these and expect it to be pretty much the same. Can anyone advise to me on how to substitute? For instance, lets say I have a recipe requiring 2 cups of all purpose flour. What would I substitute that with. These recipes are not for baking breads. Thanks for any advice you can give me!
  4. I should add that I did get all of the other blood tests you can get for celiacs and they all came back negative, except for the one mentioned above that was positive.
  5. Lol-lol-lol!!!! I love it! I do take this seriously and am very concerned about being told I have had a false positive. But I do agree that my doctor may be an idiot! I think I am going to go back to my pcp and ask her to send me to another gastro doctor for a second opinion. And yes Skylark, this is the same doctor that said I had ibs.
  6. If you have celiacs or are gluten intolerant how does it feel? Let me specifically add my symptoms that I have. I do not have chronic diarrhea but do get constipation a lot and have issues with nausea after eating. I also get gas and bloating with fatigue. I have been diagnosed with ibs-d and fibromyalgia. If I were to go gluten free how would I know if it was working? Obviously, I would feel better. But should I expect a complete turn around and to feel great? Would my fibromyalgia be expected to go away? I am contemplating going on to get an endoscopy, but right now have some other medical bills coming in plus I am about to get a laparoscopy for something else I have going on. So I have medical bills coming in and am not sure I want to pursue an endoscopy at this time. But I can go gluten free to see if I feel better. (well, I have been gluten free for about 8 days now I think.) I still feel achy, but my constipation has improved a bit and nausea has gotten a lot better. Fatigue is still there but that could be due to some other pain issues I'm having. Plus I guess I could still have fibromyalgia plus celiacs or gluten intolerance. But my main question is what should I be feeling and how long should it take before I start to see major improvement? I am not one to expect a miracle. I don't expect I'll ever feel like I did before my health problems started, but I also want to understand what to expect. And need to decide if I should get further testing in the future. When I got the celiacs blood work done my Deamidated Gliadin Abs, IgA was high. It was 76 and over 30 was considered high. My doctor said it was a false positive.
  7. I am in the process of working with a doctor to see if I have celiacs. I definately seem to have an intolerance to gluten, but I am reading so much about food allergies and how badly they can affect our bodies. Should I see my pcp and talk to her about getting tested for food allergies? I have health insurance. In others experiences, were allergy testing covered and what type of doctor did you see? I have been diagnosed with ibs-d and fibromyalgia and I am trying to find out if these are accurate and wonder if food allergies might be a culprit. Thanks for any input. I think my biggest concern is money. Is it worth it and how much did it seem to cost if covered under insurance? I understand that all insurance coverage is different.
  8. False Positive?

    Today I am getting ready to start the eat clean diet! I am going to make sure I substitute gluten ingredients with non gluten ones. Forget the doctors and what they say....I definately have food issues. I pray this will make my ibs and fibromyalgia feel much better! I can't wait to start talking gluten free food stuff with people on this site! I love it. Thanks for the support I have already been given!
  9. I recently posted my blood test results for celiacs disease. I met with my doctor today who said the positive test that I got was most likely a false positive and that I probably don't have celiacs. But he did give me another blood test today. It was called an endomysial Ab. The test that I showed positive for before was Deamidated Gliadin Abs, IgA 76 High units (>30 is moderate to strong positive. The others were negative. Has anyone else had any experience like this showing a false positive? I'm so frustrated because I had hope as to maybe finding out what is wrong with me.
  10. I will do whatever it takes. If you knew me, I hope you would see someone with potential. I can't give up! Thanks for the support. I really need it now!
  11. I was diagnosed with fibromyaglia in 2008. I was offically diagnosed with ibs in 2012; unoffically in 2008. I have been through a lot. This includes surgery, physical therapy, and many medications. Tomorrow I meet with my gastro doctor about a possible positive blood test result for celiacs. Has anybody else besides me been through heck and back? I'm so scared I will get a negative biopsy (assuming my doctor is willing to continue with to a biopsy based on my blood test results). What have you guys been through? Was it hard? I don't have chronic diarreah like a lot of ceilacs but have a lot of other symptoms. The test I tested positive for on my bloodwork was a Deamidated Gliadin Abs, IgA (it was 76-above 30 was considered high). Just wanted to get some input. I am only 34. My problems started was I was around 27. I was the kind of person other people though had a good future ahead of them. It hasn't turned out that way.
  12. I meet with my gastro doctor soon to discuss some blood test results I got back that may point towards Celiacs Disease. I am hoping to get sent in for a liver biopsy. I have been researching a lot about the disease and I have a lot of the symptoms. But one symptom I am questioning is diarreah. I do get bouts of diarreah but not as bad as I get chronic constipation with cramping. If I don't have severe diarreah is that a sign that perhaps I don't have Celiacs? I am often nauseas after meals with gas pain, but constantly have to take miralax,fiber supplements and even use suppositories to help with constipation problems. I want to be sure I have all the information I can before discussing all of this with my doctor. Thanks for any input.
  13. I really appreciate the responses. Honestly, Mushroom, your wonderful explanation was a little over my head. I apologize if I sound ignorant. But atleast I got a possible answer. I meet with my doctor again on Wednesday to see what he says. Thank-you for the information. I'm sure I will continue trying to dissect it throughout the weekend! I may post again on this site if I have further questions. Again, thank-you. This is a bit scary for me but I would be very happy if I felt better.
  14. I recently got a Celiac Disease Complete Panel. I cannot get a response from my doctor as to these results. One result came back as high. Could someone please tell me what it means? I will post all the results in case that is needed. Celiac Disease Complete Panel: Immunoglobulin A, Qn, Serum 218 mg/dL reference interval 70-400 Deamidated Gliadin Abs, IgA 76 High units (>30 is moderate to strong positive) Deamidated Gliadin Abs, IgG 3 units 0-19 reference interval t-Transglutaminase (tTG) IgA <2 U/mL 0-3 reference interval Tissue Transglutaminase (tTG)has been identified as the endomusial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. t-Transglutaminase (tTG) IgG <2 U/mL 0-5 reference interval I am wondering what the High Deamidated Gliadin Abs, IgA means? Thank-you for any help.