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About Kerryloves2travel

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  1. HI~ I'm new here and have had undiagnosed issues for years - last 5 have been a whirlwind of "I've never seen that before" symptoms. Father & his sister had type 1 diabetes & died at 43, so naturally I am terrified of that diagnosis. Sister has discoid lupus, bro now Type 2 ? diabetes with horrible neropathy & nerve damage. Niece has psoriasis. Latley docs blame mine on menopause, but I keep telling them thers is something autoimmune going on. Have a bit of osteo arthritis in knee, but fluid drainage & yoga has helped that. Been very active all my life. My symptoms include "traveling" joint pain, fatigue, dry mouth, inflammation, weird rash on trunk of body & side of face, accompanied with extreme fatigue & gut ache- this typically lasts 4-5 days and is gone. By time I get to doc, rash is gone. Finally saw dermatologist that said she had never seen anything like it! Did all types of Lyme disease testing, mercury poisoning, etc. Next step is to do skin biopsy when comes back- Supporting my brother I went with him to wonderful clinic 4 hours away. I have had burning feet & pin & needles & edema. Neurologist there did test & said I had some nerve damage. Ordered blood work & found very low in B12. Did research & found joint pain, nerve damage sign of low B12. Eat plenty in diet, so not absorbing it. Started weekly shots. Good news blood sugar was excellent! Follow up w doc here ..tested for iron, anemia, etc . no problems. But celiac disease test showed: TTG AB, Iga 1.3 Under 7 neg. Gliadin DGP AB iga 14. 4 over 7-10 positive Flag H Iga 607 standard 87-474. Flag H Is 1st test the standard talked about? Doc said she had never seen such a high Iga number in 16 years of practice. I have NO gut or bowel issues. In fact, I seem to have a strong stomach compared to most of my friends. Can anyone help decipher this? Referred to GI and wants me to do colonscopy (why no endoscopy?) which insurance doesn't pay...goes to deductible which is very high ( so are our premiums- but I bet most of you know this problem already!) Waiting as my son has had stomach problems, on and off for 2 years. Started in college & stress totally adds to his issues. He is scheduled for endoscopy this week. Meanwhile, I will try gluten free diet. Couldn't hurt, right? Any info or comments would sure help.... Thanks.