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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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  1. Here is a copy of the email I received from ConAgra recently regarding their labeling for food allergies, specifically for gluten. It also lists their gluten-free products. Thought it might be some useful info for the forum. We understand how important it is for people who have been medically diagnosed with gluten sensitivity to obtain accurate information about our food to help plan their meals and diets. And we continue to look for ways to meet the dietary needs of our consumers. Since wheat is a major food allergen, if it is used in the product it would be listed in the contains statement following the ingredients list. The flour used in many of our products is wheat flour and you should avoid these products if you have gluten sensitivities. If any ingredient in the product includes rye or barley, it will be listed in parentheses immediately following the ingredient. Oats do not contain gluten, but they frequently have been exposed to wheat or barley and are not recommended for celiac patients. If Natural Flavors, Artificial Flavors, or Spices listed in the ingredients list contain wheat, rye or barley, these ingredients would be listed in parenthesis immediately following the ingredient. Some fermented or distilled products such as vinegar may be derived from wheat. Most of the vinegar in our products is distilled and through the distilling process protein gluten is removed. Starting January of 2012, we began producing the following brands validated as gluten-free with gluten-free printed on their labels: -Cocoa: Swiss Miss all varieties -Egg Beaters: all varieties -Tomatoes: Hunt's all varieties (excluding Pasta Sauces, Tomato Sauces and Ketchups) -Orville Redenbacher's: all Ready to Eat varieties -Pudding: Swiss Miss & Snack Pack, excludes those containing Tapioca Below is a list of some of our other products that do not contain added gluten* Category/Brand/Items -PAM Cooking Spray: all varieties except PAM Baking -Hebrew National: all items except Franks in a Blanket -Wesson oils: all varieties -Peter Pan Peanut Butter: all varieties -Popcorn: Act II microwave, Orville Redenbacher jar and microwave, excluding Crunch n Munch and Poppycock -Spreads: Parkay, Blue Bonnet, Fleischmann's and Move Over Butter -David Seeds: all varieties -Tomato Sauces: Hunt's tomato paste and sauces excluding pasta sauces -Ketchup: Hunt's all varieties -Reddi-Wip: all varieties -Ro*Tel Tomatoes (excluding sauces) *These items have been identified as not containing gluten. They are not currently routinely tested to affirm they contain less than 20ppm gluten for a 'gluten-free' claim. We always advise consumers who may have sensitivities to recheck the ingredient list on each package. Products are oftentimes reformulated and the ingredients may change. If you have additional questions about your personal dietary needs, please consult your doctor or a registered dietitian.
  2. Thanks, you two, for the encouragement and recipes!
  3. Thank you for the extra tips, squirming itch. I'll look at the lesions tonight and see if we can try the band aid method on any of them.
  4. Pricklypear, You don't come off as someone screaming, I appreciate your candor. I didn't mean to come off as sounding casual about my approach. I feel like I am living and breathing this now that I have 3 of my 6 kiddos diagnosed with celiac/gluten issues. Only my 8 year old has the skin issues. Thank you for being an advocate for her who knows what she is going through. I will look into the iodine diet deeper.
  5. Thank you everyone for the tips and points of view! I will try low iodine, although it sounds a bit complicated. I'll start by just switching out the salt -- that I can do. And I'll keep an eye out for the canned foods. I will stick to tylenol now that I know ibuprofen is off the list. Caladryl I have, I will try her with that. Thankfully, her rash is only in one area right now. I did wonder if her sickness might have been an issue, with her immunity down. Your encouragement and quick replies are amazing to me. Thank you so much for being such great sources of wisdom and information in what is such a daunting thing for those of us just starting out. I'll update you later when things are better (hopefully soon!).
  6. My 8 year old has been on a gluten-free diet since January. After 2 months of gluten-free diet, we had to put her back on gluten for a month to perform the endoscopy. During those first two months, her DH almost fully cleared, then did fully clear two weeks into the gluten month. After endoscopy, went back on gluten-free diet immediately, and of course, DH returned from the month of glutening (I forget the lag time from starting back on the gluten and return of the rash, maybe 3 weeks?) Anyway, the rash started to clear, but never 100% like it had before. She had 1 or 2 small lesions left, then we went to Sea World on vacation in August, and were very careful with her diet, but when we got back her rash now had 5 or 6 angry lesions. Admittedly, we did eat out and could have been cc'd, even as careful as we were. Also, we were eating out of the van while we were at the park, so gluten could have made its way onto her lunch while people were handling her food next to the gluten-y bread. We used coppertone sunscreen, which I've read is gluten-free. Her rash has even gotten worse this week (10 - 15 angry looking lesions), when we all had upper respiratory infections and zithromycin (sp?). I did see in the archives that ibuprofin is a problem, which I probably gave her when she was sick. So, that's one reason she could be worse. What else do I need to look out for? (This detective work for gluten seems to never end -- we've been at it a while now and everytime I think I have it figured out, there's something else I was missing. I'm getting a little discouraged -- esp. when me missing something means more pain for her.) Any tips for hidden gluten and links to articles that haven't been mentioned in the archives would be great. Thanks!
  7. Janet, Thanks for the great party suggestions! Love the stealth gluten-free snack ideas. I end up overcompensating when something unexpected comes up, too. Like the time the restaurant brought out a birthday churro for my newly diagnosed birthday girl. I was so caught up in the events I didn't even think about it, and my husband realized she shouldn't eat it. So, I left my husband and the other kids at the table while I ran her next door for the biggest frozen yogurt sundae we could get! Gluten Free Girls, What is the 504? Also, that's so sad about the mom giving up on the gluten-free diet for her little one. It is such a steep learning curve and easy to get discouraged, isn't it? Wish we were in GA, we'd come over for dinner. One of my dx'd kiddos is in 3rd grade and would probably have a great time getting to know your 2nd grader! Minette, We have an "everyday PB and J'er" here in our house. Now all we need to do is find a gluten-free bread that will still taste good at lunch time, and he will be back to his "usual" style of lunch. Thanks, everyone, for all of the encouragement and "gluten-free Team" spirit. I really need it these days! Keep the tips coming!!
  8. One More Update to this story: When we had our other children checked for Celiac because of this daughter's case, we found that we had two more kiddos with Celiac. My one daughter, the original one I wrote about here, told her newly diagnosed brother and sister that the best thing about being gluten free was the end of the year party when they get to bring whatever food they want and don't have to rely on what is available at the party. She was jumping up and down when she was telling them this. I just think the Lord is so good. He took a situation I was so afraid of, like the isolation my daughter might feel at her first end of the year party, and turned it into one of her best memories.
  9. Thanks for the quick replies Jillian, Cara, and Stephanie! I hadn't thought to broaden my search out to other food allergies, that's a great idea. And, I totally agree with you about undiagnosed students (and staff, probably, too!) Last May for Celiac Disease Awareness Month, I asked the nurse if I could send out an article to the teachers and staff about our journey to diagnosis and listed the signs and symptoms for them. She was very happy to do it, and who knows, maybe someone was able to see themselves in the article. I'll keep you updated if anyone answers our "all call" to the other schools.
  10. Now that we have 3 kiddos in the family diagnosed with Celiac/gluten issues, I'm trying to find local buddies for them. We are the only ones in the school at this point. The school nurse is going to send a letter around to the other local elementary schools in the area to see if there are any other students in the same situation who would like some friends. We are in touch with our local ROCK group, but they don't get together very much and are spread throughout the city. How about everyone else, how do you keep your kids from feeling isolated? And, are they the only ones at their schools?
  11. Update: We heard back about the biopsies and my 9 year old girl (the one with no symptoms but a number in the 50's on the celiac screen) came back as a positive for celiac. My 10 year old son, though, (with a 28 on his celiac screen) came back as having inflammation in the gut, but not caused by lymphocytes, which is apparently the thing you need to declare celiac officially. The GI said that could mean she didn't biopsy the exact place we could find it, or that he hasn't moved into full blown celiac yet. Either way, she recommended we go gluten-free with him, if we would like, and test his bloodwork again in 6 months to see if any numbers have changed. She said we would also do a full blood count to make sure we aren't missing something else. I'm okay with this because I think it will help with a lot of his sensory issues and overall anxiety. The other thing that surprised me was that she said that the two other children we had tested (3 y.o. and 5 y.o.) could still show up with celiac someday even though they were negative on the screen. She said that we would only need to retest them if they start to develop celiac symptoms later on. (I thought they were safe when those results came back, bummer) Thank you, everyone, for all of the help and encouragement. I love this forum -- it makes me feel not so isolated in all of this.
  12. Thanks, Stephanie! I'll report back once the biopsies are done! I'm still trying to find out if there is a way to get insurance to pay for genetic testing. From what I've heard so far, it doesn't sound like it. And it sounds very expensive. Did you do any genetic testing, and do you think you know which side of the family it came from? If 3 of our 6 kids turn out to be positive, I think we need to figure out which side this came from so the relatives on that side can be more aware. I'm suspecting my husband's side because his mom seems to have a lot of digestive issues, but she thinks she has been tested and that it came up negative. (Don't we always blame the other side, though -- hee hee)