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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About peaches987

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  1. Another Reaction Question

    It could be xantham gum, as one of the other commenter suggested. One year of being gluten free, and only now am I noticing a problem with xantham gum. I noticed it after baking a batch of chocolate brownies, and again when I cooked up a gluten free cake. My stomach was unsettled and I had pain in my lower intestines for a week after that. Or it could be just cc, as you suspect. My symptoms tend to be consistent: either a mild stomach ache (unsettled, is what I tell my family) or pain in my pelvis right below the hip bone. It was the same place I had pain before my celiac diagnosis. An example of accidental cc: once traveling in the midst of a vacation, I ate a bag of chips that said "this product does not contain gluten" or something to that effect. It was the one thing in the train station I could find that was supposedly gluten free, but the text on the bag, the way they'd phrased it..it was some turn of phrase I'd never heard before. Not 'gluten free,' but 'is not made with gluten' or something to that effect. Silly me, I assumed that meant the same thing and it was fine. It was only after dinner, when suffering intensely painful gas pain and after rushing to the bathroom, that I grabbed the bag and studied it more closely. It was absent of gluten ingredients, but stamped on the back in bold letters was 'processed in a gluten containing facility.' Cross contamination is the worst!
  2. Reywuwei, I saw an echo of my own thoughts in your post, so thank you for putting your thoughts into words so succinctly! Small wonder you're a writer! I'm new to posting here as well, though I've had my diagnosis since last summer. So nearly a year now. The shock of having this little shadow called celiac trailing you, and knowing that it will for the rest of your life---took a solid few months for me to adjust to. I know at first it's daunting. At least it was for me. Mostly I've been entirely healthy my whole life and suddenly this was something that made me feel...well, frustrated and vulnerable. Like my body had betrayed me. But it will become the new 'normal' for you, and I've come to the point myself where I feel empowered by the realization that if I stick to the diet, I'm just helping myself. I could list a dozen ways in which my health has improved over the last year. It also helps when you stock your kitchen full of gluten free food, and have a stash of stuff you can just grab without worrying about. Eventually I think everyone with celiac gets used to examining a label before you buy a product. It becomes an automatic habit. I look at everything. EVERYTHING. Eventually (hopefully) you'll start to feel like it's not such a burden. Calling up a company's customer service line has become 'de rigour' for me. I know I've been surprised how easy it is to get in contact with companies to find out their gluten free list. I now have a list of go-to products and recipes that I know are gluten free now, and as you navigate the grocery store you'll find there's probably a row of gluten free food to choose from at most major grocery chains. Regarding your pasta comment: there's actually a great Italian gluten free pasta called Bionaturae (I know it sounds like some genetically modefied tomato farm! I don't get the name but the pasta's great). You'll learn how to find versions of what you're craving in the gluten free aisle, and which gluten free cookies taste brilliant and which ones taste like cardboard (there are way more of the former than the latter, I think most of us would say!) Perhaps it's just a year of gluten free eating talking, but I can't even tell the difference between gluten free cookies and what the old ones tasted like anymore---except for the texture, of course. I had to laugh telling my parents that in 20 years time, I might not even remember what gluten products taste like--though who knows if that's true. There are still things I mourn. Really excellent bread and the way it tastes when you toast it, for one. And I still haven't been able to navigate ordering painlessly at a restaurant (I loathe when having to eat out now, which is sad. Eating at a table full of strangers and having to explain why you're eating different food, asking for the 'allergy menu'. Seeing the blank look on a waiter's face when you explain what cross contamination is). But honestly, despite all that, I find this is normal for me now, and I feel healthier and stronger. Good luck learning about how to cope, and remember: just because it's gluten free doesn't mean it has to be tasteless.
  3. Lymph Nodes

    Prior to getting diagnosed with celiac or even understanding what it was, I had an infetion where I was prescribed two rounds of a really strong antibiotic. All told, I was on this stuff for nearly 30 days, per the doctor's orders, it did work to get rid of my infection, but I quickly realized I had a secondary problem. Halfway through the second round of medication (pills), I started having swollen lymphn nodes. not just one or two, like, ten of them. Around my ears, on the back of my head, on the upper part of my neck, I had more lumps than a rhinoceres. And I kept calling the dr saying, are you sure I'm not allergic to this stuff because seriously, my head is COVERED with swollen lymph nodes? My infection's getting better but what the heck is happening to me?? To this day, I'm convinced the antibiotics (which had this massive warning label about being very hard on the stomach) were what pushed my celiac (which I didn't even know I had) into 'red alert' so to speak. I think that the antibiotic drug course made my intestines so bad they caused my lymph nodes to go crazy. I went back to the doctor in the midst of this. Dr examined the ten or so swollen nodes on my head and became concerned something was horribly wrong with me. I was then informed that after my antibiotic course was done, I should be scheduled for bloodwork immediately. None of them believed what I kept insisting, that the antibiotics--while helping me---were also oddly making me sick!! Well the antibiotic course finished. My lymph nodes returned to normal as SOON as I was off the meds, and my bloodwork came back with severe anemia. And THAT was what made the doctor realize I had celiac. So I can't say that celiac is the only cause for swollen lymph nodes, but I'm convinced it was the reason why the ones on my head went so crazy.
  4. Help! Dont Understand This!

    Michelle, thank you for your post because seriously, this is my life right now. I've been diagnosed celiac for 11 months now. 9 of those eleven months I maintained my weight perfectly fine--although I should say I think I was eating more than my usual amount. I was severely anemic before diagnosis and probably really malnourished and so when I first was diagnosed and went gluten free, I was suddenly hungry ALL the time. I probably ate twice as much as I usually do, plus cookies and ice cream, and didn't gain an ounce but didn't lose it either. Now, suddenly from March to April I lost 8 pounds. I have NO idea how it happened, I don't exercise, and was pretty freaked out about it because as with you I am not big to begin with. I was 118 to 120 before and now I am 111-ish. It really upsets me. I went out and bought ice cream and chocolate bars, and I try to eat at least one sugar a day, but unfortunately (or not) all the rest of my food is SUPER healthy. I don't know about you, but I've noticed most Gluten Free food to be very low fat. So it's high fiber cereal for breakfast, a sandwhich for lunch and stirfry for dinner, plus yogurt and nuts to snack on. I keep telling myself "you will not be able to gain weight eating edame beans and yogurt!" but it's hard for me to know how to supplement by diet with higher fat foods. I hate being this thin though. I recently talked to my doctor about this, and he said I'm still in the safe zone in terms of weight so he's not too worried, but if I really wanted, I could try drinking 'an instant breakfast' shake on top of my 3 meals a day. It's an extra 300 calories per meal. Hopefully it will work! Dr also said don't weigh yourself every day because that will stress you out. Good luck gaining weight!
  5. I've been diagnosed celiac (via blood work and endoscopy) for a year now and I still have metaphorical panic attacks when it comes to eating at parties, be it with family or friends. The worst part is when you're around people you've never met and you have to explain why you're not eating x,y,z plus the other half of the alphabet. Not only do I worry about accidentally being glutened, I really worry about cross contamination. Honestly, the best way I've learned to cope with it is 1. DON'T feel guilty about asking questions, no matter how strangely people look at you and 2. when in doubt, go with the plainest food at the table. A baked potato, beans, meat without gravy, a salad without dressing, I can usually find something I'm sure is safe---or hopefully a few somethings---and then I fill my plate up with that. It is embarrassing to have to ask for a seperate 'allergy menu' at a restaurant though, and then explain to the server in front of everyone exactly what you can't have, and how the food is prepared. A year into my diagnosis and I really dread going to restaurants. Half the time I tell the waiter what I can't have, and he winces and explains the only thing they're sure is gluten free is the salad. But what are you going to do, celiacs have to stay healthy, right?
  6. Barium Scan

    Hi everyone! I'm brand new here, but not quite new to celiac. I was diagnosed by blood test and endoscopy nearly a year ago (last summer). I'm super super strict with the diet too, I check everything that comes near me, from lipstick to toothpaste. Here's my question: when I woke up from my first endoscopy one year ago, my gastroentrologist said one year from now/for the next five years I would have to have a barium scan to make sure everything looked fine with my insides (from what I read this was standard procedure). I'd read about that as well, and it seemed normal. He was very clear on that. I was going to have a date with a Barium scan. Next year. Don't be late. Fast forward one year later (present day). It was for my checkup since enacting my gluten-free diet. My doctor gives me five minutes of his time, total. He asked how I was, I said fine and explained that truthfully I am feeling better, and notice a huge difference, although I've lost about 8 pounds in this last month, which is troubling to me because i'm small to begin with so 8 pounds seems huge(although if I'm being honest I think hte reason I dropped it is beause I haven't been snacking like I should, and I've been too cheap to buy cookies, so bam. The weight just vanished. Now I'm fretting over how to gain it back and shocked that I lost 8 whole pounds when I still eat three meals a day, plus dessert! Darn you, fast metabolism!!). Gastro didn't seem to think there was anything to worry about though (my general practictioner said the same) and when I said 'when should I schedule the barium scan', he brushed it off saying, no we don't have to poke around in you unless your blood work comes bad strange. So my bloodwork came back normal. Yay! But I'm really really confused. He was SO adament about this barium scan last year, and now he's saying I don't need it? Should I push for the barium scan? Do I really not need it if the bloodwork's fine? Why would he say I needed it and then back out? What should I do? Any advice would be greatly appreciated.
  7. Lip Issues?

    I'm new here at this board so I'm not sure if, as a 20-something, I still count as a 'young adult [???]'. But anyway, here's my answer: I was getting sores inside my mouth ALL the time before I was diagnose with celiac (by blood test and endoscopy). That went away about a month after I started going gluten free. As for doctors: My regular doctor is awesome, but my gastroentrologist talks to me for five minutes and then sends me out the door. I don't feel like I get much in the way of an exam with him. And my dentist was completely clueless about what celiac really meant. He thought it was the same thing as 'lactose intolerant'. To which I had to say, no one gives you a tummy ache and the other prevents me from absorbing the food I eat, causes malnutrition, my severe anemia, and could cause a bunch of awful cancers if not taken seriously. People are so ignorant about celiac, it's not even funny.