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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About Jen2

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  1. My youngest daughter is 13 months and she eats gluten/dairy free right now - she eats anything I give her, whether it be rice, beans, any fruits, any cooked veggies, cooked potatoes, small bites of meat, etc. She never did like pureed baby foods so she's been eating table foods and chewing with her gums from before she had any teeth.
  2. Well, I got an allergist appointment for actual testing on Tuesday and then an appointment with a ped. GI specialist for next Friday. Hopefully the combination of the two will start us down the path towards healing. We had a bad night last night - I fixed red beans and rice (with corn) for dinner and she loved it but by 11pm, she was up, having a lot of high gas gurgles in her tummy, crying inconsolably in waves. Colic calm is how I usually treat the episodes but I had to use two doses over an hour to get any change at all. She finally went back to sleep sometime after midnight. I guess I will add beans to the list of things to avoid for now.
  3. thanks! I might ask for the genetic testing, I have a GI appointment for her next friday
  4. Yeah, I am concerned about leaky gut... I'll look into digestive enzymes too. She's just so young to already have so many digestive problems, it breaks my heart!
  5. synthetic citric acid is a mold based "thing" (can it be called a food??) I am going to see what else is in the class of cross-reactivity with banana and I am going to call in the morning to get allergy testing to rule that aspect out. Thanks for the research tips, and regarding latex, I have no idea, but I will keep an eye out for it.
  6. My youngest daughter is 13 months old. Here is her story - please help me advocate for her and get her healthy again! At 2 weeks old she started having bad colic, when I took dairy out of my diet, she improved some but not much. Her Dr. diagnosed her with reflux, put her on meds, ended up on super strong meds, and that helped the colic. BUT she didn't gain weight. By 3 months old she had fallen off of the growth chart and I opted to try a "gentle" formula instead of failure to thrive testing because they couldn't get blood and boy was that torturous. At 6 months old her symptoms started coming back when she started on solids, but it coincided with teething so I didn't realize it was food related. At 9 months we all went gluten free and we saw a huge improvement in her - her diapers started being more solid, still soft but not pure diarrhea and she started sleeping through the night. At 10 months her dr. told us to switch to milk instead of the "gentle" formula b/c she wasn't drinking enough formula, and her symptoms started returning. Her poops were all diarrhea, always yellow, with undigested food. Her bottom was covered in raw, open sores. We also discovered that she cannot tolerate synthetic citric acid. At 11 months I got a referral to an allergist, because the ped. wanted her tested for celiac's. Allergist told me he suspected celiac's too but it was useless to test her because she was gluten free and I am NOT willing to do a gluten trial. He told me to keep a food diary (which I was). At 12 months I took her off of all dairy, hard core. I went to an herbalist who suspected dairy and gave me an herbal tea to help her gut heal. Her ped. approved the tea. We discovered an allergy to bananas (no swelling or hives, but she gets a cough, runny nose and major intestinal distention/gas/upset tummy) At first, on the dairy free/gluten free diet, she did better, with no major colic episodes, diapers starting to slow down. Over the past week, though, I am seeing her symptoms slowly coming back - waking up at night fussy, more and more gassy during the day, diarrhea diapers increasing again, the skin on her bottom burning from the poop again. We are 3 weeks dairy free - she is drinking almond milk. I don't know what to do now - all I know is that I know my baby's not healthy and I need to get her gut functioning properly again.
  7. I didn't think about her getting gluten during the pregnancy but that makes sense. I'll ask her ped. about a letter next time we go in, If she wants to cheat as an adult, I'm not sure a letter will do much to prevent that but you're right, it's probably a good idea to have one on hand.
  8. In what circumstance would she need a letter stating that she is gluten intolerant?
  9. My youngest daughter is almost 13 months old. Starting at 2 weeks old she started having bad colic and by 3 months had fallen off of the growth chart. (I did not think to take gluten out of my diet while breastfeeding her). On formula, she thrived - until introduction of food, when symptoms started returning. Dr's were not helpful but a nutritionist recommended that I try gluten free for myself for a solution to a lot of health issues and at 9 months old, I took her off of gluten too and she slept through the night for the first time. We are still dealing with gut issues so it's not completely resolved, but her pediatrician suggested celiac testing twice - the allergist she sent me to told me she can't be tested because she's already off of gluten and that if it's working for us, that "common sense" is good enough. Is it really possible for a 2 week old to show signs of celiac's? We've also figured out she reacts to synthetic citric acid and dairy products. I also suspect soy.