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About mat_london

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  1. I seem to have some kind of gluten allergy which produces hives/urticaria but I have tested negative for a standard gluten blood test. I have not pinned down exactly what food type I am allergic to but bread definitely induces a reaction and so do breadcrumbs. White bread and supermarket bread seem to be worst. Pasta strangely does not seem to induce it, possibly because there is less gluten in it or it has been de-natured by boiling. It is complicated because the strength of the reaction is related to physical activity. I have learnt that if I sit completely still my reaction is milder and passes more quickly but if I am physically active for example playing football it gets significantly worse and develops into full blown anaphalaxis complete with breathing difficulties, loss of vision and sometimes physical collapse. It always starts with intense itching and welts / hives developing all over my body, especially in places which are under pressue e.g. around my trouser belt and legs, but also all over my chest and other areas. Luckily the reaction disappears completely within a short time, between 1 and 3 hours depending on how bad it got. I thought until recently that I had "excercise induced anaphalxis" which is a recognised condition but I now think that food and particularly gluten are involved. If I play football without eating anything in the previous 4 hours I am fine. I am 52 years old and this response developed fairly recently within the last few years. I was able to consume huge amounts of bread earlier in life without any problem. I definitely have Coeliac syndrome in my family. My grandmother was confirmed with it late in life and I also have 2 sisters who are confirmed coeliacs. I think my mother is also but she never wanted to find out. But I got a negative result in a standard coeliac blood test and I don't seem to have the other common long term coeliac problems. Does anyone have a similar condition or have any advice on this? (apart from go and see an allergist!)