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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

flowerqueen

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  1. Hi, to be declared gluten free, pasta, etc., has to be less than 20 parts per million, so there is always a possibility of cross contamination. There are a few website that you can subscribe to, so if gluten has inadvertently got into the foods, and they are recalled, they will notify you by text or email. I agree with the above comment regarding xanthan gum, personally, I cannot eat very much of it as it has adverse effects - but nothing to do with gluten, so I try not to eat much gluten free bread, and eat more rice instead. Also, I found that after I'd been gluten free for some time, I started having food intolerances, and had to keep a food diary to find out what was causing them. By the way Tesco/Sainsbury's/Asda gluten free foods are all fine, there was an incident some time last year (or the year before) when there was a big recall on some gluten free products, but they were quickly withdrawn, and well publicised, which can happen with anything for different reasons, but generally I find their products okay. Definitely speak to someone at Coeliac UK, they are very helpful and you can get 6 months membership free when you are first diagnosed to give you a head start.
  2. Hi, I live in the UK and have not heard of this product, however, I have heard of gluten being in some washing-up liquids, so it is possible that dishwasher products could be effected too. The best thing to do, to eliminate (possibly) the product from your investigations, is to contact the manufacturers.
  3. Hi, that is very interesting, I wish we had that sort of thing in the UK, I wonder if it is available on the UK's Amazon as well as Amazon.com? I will investigate this. I think we have lagged behind in some areas of food substitute varieties over the pond. Thank you for the information about Doctors Best.
  4. It sounds like anxiety to me. I know exactly what you mean, and I've had issues like it in the past. Also, if you have been gluten free for a while now, it could be that your diet is different or you maybe eating more of certain foods and you may have an intolerance to them. I found more food intolerances took hold after I've been gluten free for a while. Try keeping a food diary and write down everything you eat and drink. My latest intolerances include, xanthan gum, E464, mustard, onions, fructose and soy. I already had a dairy intolerance, so it's been quite difficult finding foods that don't include one or more of the above. (Especially gluten free bread). When you are anxious it definitely can have an effect on your gut/bowels, so anything that can help you relax (which I know is easier said than done when you have such a busy lifestyle), but making some time for yourself is important. Regarding the above post 'Doctors Best Magnesium' I live in the UK and have not heard of this, but, I would strongly advise not taking magnesium if you already have lose stools as it can make them worse.
  5. Best wishes winging their way to you from the U.K.
  6. I have fibro too, along with quite a few other conditions, including an under active thyroid. I'm saying this, not to point score, but to give you hope, as my thyroid improved quite a bit after going gluten free! Again, it wasn't over-night, but a gradual thing, and now take a lot less thyroxine because of it. I mentioned this to my doctor recently and she said it was because my body was absorbing the medication better because my gut lining etc was healing. (I suffered badly with malnutrition and anaemia before I was diagnosed with coeliac disease. So don't give up hope.
  7. Hi Dayle, We can't change our past, but we can change our future. You have taken the right step in going gluten free, it may take quite a while for your gut (and the rest of your body) to heal because you have had coeliac disease for so long, but any positive step is the right one! When I was in my early 20's I was diagnosed with IBS, but in more recent years, (I'm in my late 50's) diagnosed with coeliac disease. It did a lot of damage to my body and was extremely ill. Finding out I had coeliac disease though, helped me to change my whole diet and slowly I'm starting to feel better. When you've had something for so long, you do not get better over-night and you may find other challenges along the way (I have multiple food intolerances, all lot of them due to eating gluten free foods, which have ingredients in them you don't always find in gluten foods), but to continue eating gluten is not an option. Don't give up hope, every day is a new beginning.
  8. All the above posts are full of good advice. What I'd like to add is, if you have coeliac disease and continue to eat gluten, you run the risk of other autoimmune diseases in the future as well as osteoporosis, malnutrition and even cancer, so even if you had no symptoms at the beginning, and may also not have any symptoms if you eat gluten (not all coeliacs do), the damage is still being done to your gut and the rest of your body, so please be aware of this.
  9. Firstly, I would check that you are in fact eating totally gluten free and that you are not being contaminated by utensils and kitchen equipment etc. (e.g. Do you have your own toaster for toasting only gluten free bread? Are you washing down your work surfaces twice, before preparing your gluten free food etc.). Keep a food diary just in case, that way you can refer back to it. Just to let you know I had withdrawal symptoms for 6 weeks, it peaked about once a week, and after I ate my main meal of the day, it would come back about half and hour to an hour later. So on day 7, I would suggest that it's very early days. Once you know you have definitely taken out all gluten and gluten risks (i.e. Cross-contamination, from your diet), it will settle down. In the meantime, go easy on yourself and drink plenty of water each day, as it will flush toxins out of your body quicker (yes, gluten is toxic if you have celiac disease). Don't be tempted to eat gluten products, as in the long run you will cause yourself serious harm and run the risks of anaemia, other auto-immune diseases, malnutrition, osteoporosis and even cancer, so it is not worth the risk. If there's anything else we can help you with, please ask, there's usually someone on here that has some helpful advice.
  10. Hi, Firstly, I'm so sorry to hear of your diagnosis, if you need any help with this the RNIB in UK (website) has some useful information on the disease which you might want to look at. As far as I know, there isn't any link between the condition and celiac disease, although both conditions are hereditary. Somewhere, I did hear that stem cell treatment can slow down the disease, you may have to look that up on Google, unless anyone else here can help you. I'm also informed that people can retain a small amount of vision with the disease, again, this is something you may wish to research yourself. I truly wish there was more I could say to help, and I wish you good luck on your quest and pray that there will be a cure somewhere on the horizon in the not too distant future, and that you will benefit from it.
  11. You've had some very good advice already with the above replies. I would like to add that although some people have trouble with lactose for a while, in my case, it was all dairy, not just lactose (for example, even milk or yogurt with the lactose removed) that made me ill. I have been gluten free for 5 years now, but still cannot digest dairy, and get bad symptoms even if I have the tiniest amount. So have a good look at what else could be causing symptoms, not just gluten. Due to the age of your son however, I would only remove dairy/lactose with the help and advice of a dietitian or nutritionist as his bones are still developing and will need to substitute calcium etc. from other sources. It is right what cyclinglady said too, regarding the need to go back on to gluten in order to have a biopsy done. I would feel the same as you regarding putting a young child through such an invasive procedure, not to mention the illness it may cause in subjecting him to gluten exposure, but only you can decide what is best for your son.
  12. It's still very early days yet, try not to worry. I was very weak before I was diagnosed. Have you had any blood work done? You could be anaemic, and may need to take iron tablets - but check first that you need them, because it can be dangerous to take them if you don't need them. Your body has a lot of healing to do, the longer you are gluten free the more your body will heal..
  13. If she is gluten intolerant, she may not have such serious symptoms, as it is not the same as being coeliac. With Coeliac disease it is imperative that you do not eat gluten/wheat as if you do not adhere to a gluten free diet, it can cause serious disease, such as cancer or cause another auto-immune disease.
  14. I agree with Chocominties, eating 4/5 bars of chocolate is enough to cause your symptoms, even if you don't have coeliac disease. One thing that puzzles me, why are you eating gluten free if you are still waiting for a colonoscopy? You need to be eating gluten a regular basis (daily) until after your colonoscopy because your body will not produce the antibodies when not exposed to gluten.
  15. I can't say I've heard of these, but as already has been said, if they're gluten free, it's worth a try. I'm interested in the fact you have cramping though. I had the same thing after being gluten free for a while, and it turned out I had become intolerant to soya (I was already having a problem with dairy), this worked for a while then had more problems, I kept a food diary and by process of elimination found I couldn't tolerate mustard, xanthan gum and E464 (which is a type of cellulose) and a big problem with Quorn (having become vegan). Perhaps you could use a food diary too, to see what is causing the problem, instead of masking it with tablets.