• Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

flowerqueen

Advanced Members
  • Content count

    299
  • Joined

  • Last visited

  • Days Won

    2

flowerqueen last won the day on May 1 2016

flowerqueen had the most liked content!

Community Reputation

23 Excellent

2 Followers

About flowerqueen

  • Rank
    Advanced Community Member
  1. All the above posts are full of good advice. What I'd like to add is, if you have coeliac disease and continue to eat gluten, you run the risk of other autoimmune diseases in the future as well as osteoporosis, malnutrition and even cancer, so even if you had no symptoms at the beginning, and may also not have any symptoms if you eat gluten (not all coeliacs do), the damage is still being done to your gut and the rest of your body, so please be aware of this.
  2. Firstly, I would check that you are in fact eating totally gluten free and that you are not being contaminated by utensils and kitchen equipment etc. (e.g. Do you have your own toaster for toasting only gluten free bread? Are you washing down your work surfaces twice, before preparing your gluten free food etc.). Keep a food diary just in case, that way you can refer back to it. Just to let you know I had withdrawal symptoms for 6 weeks, it peaked about once a week, and after I ate my main meal of the day, it would come back about half and hour to an hour later. So on day 7, I would suggest that it's very early days. Once you know you have definitely taken out all gluten and gluten risks (i.e. Cross-contamination, from your diet), it will settle down. In the meantime, go easy on yourself and drink plenty of water each day, as it will flush toxins out of your body quicker (yes, gluten is toxic if you have celiac disease). Don't be tempted to eat gluten products, as in the long run you will cause yourself serious harm and run the risks of anaemia, other auto-immune diseases, malnutrition, osteoporosis and even cancer, so it is not worth the risk. If there's anything else we can help you with, please ask, there's usually someone on here that has some helpful advice.
  3. Hi, Firstly, I'm so sorry to hear of your diagnosis, if you need any help with this the RNIB in UK (website) has some useful information on the disease which you might want to look at. As far as I know, there isn't any link between the condition and celiac disease, although both conditions are hereditary. Somewhere, I did hear that stem cell treatment can slow down the disease, you may have to look that up on Google, unless anyone else here can help you. I'm also informed that people can retain a small amount of vision with the disease, again, this is something you may wish to research yourself. I truly wish there was more I could say to help, and I wish you good luck on your quest and pray that there will be a cure somewhere on the horizon in the not too distant future, and that you will benefit from it.
  4. You've had some very good advice already with the above replies. I would like to add that although some people have trouble with lactose for a while, in my case, it was all dairy, not just lactose (for example, even milk or yogurt with the lactose removed) that made me ill. I have been gluten free for 5 years now, but still cannot digest dairy, and get bad symptoms even if I have the tiniest amount. So have a good look at what else could be causing symptoms, not just gluten. Due to the age of your son however, I would only remove dairy/lactose with the help and advice of a dietitian or nutritionist as his bones are still developing and will need to substitute calcium etc. from other sources. It is right what cyclinglady said too, regarding the need to go back on to gluten in order to have a biopsy done. I would feel the same as you regarding putting a young child through such an invasive procedure, not to mention the illness it may cause in subjecting him to gluten exposure, but only you can decide what is best for your son.
  5. It's still very early days yet, try not to worry. I was very weak before I was diagnosed. Have you had any blood work done? You could be anaemic, and may need to take iron tablets - but check first that you need them, because it can be dangerous to take them if you don't need them. Your body has a lot of healing to do, the longer you are gluten free the more your body will heal..
  6. If she is gluten intolerant, she may not have such serious symptoms, as it is not the same as being coeliac. With Coeliac disease it is imperative that you do not eat gluten/wheat as if you do not adhere to a gluten free diet, it can cause serious disease, such as cancer or cause another auto-immune disease.
  7. I agree with Chocominties, eating 4/5 bars of chocolate is enough to cause your symptoms, even if you don't have coeliac disease. One thing that puzzles me, why are you eating gluten free if you are still waiting for a colonoscopy? You need to be eating gluten a regular basis (daily) until after your colonoscopy because your body will not produce the antibodies when not exposed to gluten.
  8. I can't say I've heard of these, but as already has been said, if they're gluten free, it's worth a try. I'm interested in the fact you have cramping though. I had the same thing after being gluten free for a while, and it turned out I had become intolerant to soya (I was already having a problem with dairy), this worked for a while then had more problems, I kept a food diary and by process of elimination found I couldn't tolerate mustard, xanthan gum and E464 (which is a type of cellulose) and a big problem with Quorn (having become vegan). Perhaps you could use a food diary too, to see what is causing the problem, instead of masking it with tablets.
  9. I also agree with what's been said, but I would not under any circumstances use a wooden spoon, as they are porous and would absorb any gluten, for example, in washing up water that may possibly have glutened pots/pans in and also definitely not a wooden cutting board. The tin foil is good advice too, I would cover up any gluten free food up with it before putting in the oven, as you never know if any gluten has touched the top of the oven and then when heated, may drop down into your food - no matter how carefully you wash the top of the oven, things can be missed.
  10. You are right Dania, you cannot have "mild Coeliac disease and you cannot eat "a bit of gluten here and there" if you've been gluten free for a while. Coeliac disease is a lifetime commitment to being gluten free, even if you don't have symptoms, it is still damaging the villi in the gut, which can lead to more serious health problems, (not that Coeliac disease is not serious, because it is). Some people may question whether it is safe to use the same colander as those cooking gluten, but it depends how well it is washed up as it is quite easy to miss bits. Personally, I bought a new one and I would definitely not use the same sieve as the mesh is far too tight not to collect small amounts of gluten. I'm not too surprised at doctors not knowing all they should know about Coeliac disease, it's the same here in the UK where Coeliac UK actually advise doctors on the disease.
  11. I have to agree with Gemini, you must not go gluten free until you've had an endoscopy with biopsies (first you get the blood work done, then you get your confirmation by a follow-up endoscopy), it's the reaction to the gluten that creates the antibodies' you won't get that reaction if you don't eat gluten. It might seem inconvenient, but in the long run it will be worth it.
  12. Hi Kam, I'm sorry you are having problems, but unfortunately I think you will find that when you finally get to see the consultant, they will probably want to do an endoscopy to confirm you have coeliacs, which will involve you eating gluten for at least six weeks, prior to the test. (Most people don't give up gluten until after this stage - did your doctor tell you to start a gluten free diet? As for you still having symptoms, it may be that your body is still de-toxing, as it can take sometime. Is it possible for your doctor to get you in to see a consultant at another hospital? _ as the NHS usually have more than one hospital to chose from for you to get seen at. Another point I'd like to make is that you may also have food intolerances, for example diary/soya etc., or your symptoms maybe caused by something else. I hope your doctor manages to get you seen by someone soon.
  13. Hi Kam, I second everything that Cyclinglady has told you, but just to let you know that I be me intolerant to dairy before my diagnosis for coeliac disease. The 2npositive tests, were they both blood tests or one blood test and one endoscopy? If you are waiting to see them in the Endocsopy department, I think they will want to do one if you haven't had one already and in order to do this and get the correct result, you must eat gluten for at least 6 weeks before you can have the test done, because it is the gluten that causes the auto-immune result. I too have a thyroid disorder, which was diagnosed long before I had been diagnosed with coeliacs disease. Also a couple of years after diagnosis I became intolerant to soya and xanthan gum and E464 (hydroxypropl methyl cellulose) which is quite often found in gluten free baking produce, including bread. A food diary is a good start, which has also been suggested, but don't jump the gun if you haven't had an endoscopy with biopsies yet. It is still possible to carry on with gluten free and dairy free diet if you are vegetarian, but it makes it a little harder and don't forget dairy free milk is usually fortified with vitamins and minerals.
  14. Hi CeliacMommaX2, 'Yes, you must treat oats like wheat in a situation where gluten free oats cause the same response. I would also not use pots or pans for your daughter, that you have cooked oats in, as there is always a chance that there are traces left in the pans after washing up. It's better safe than sorry.
  15. Yes, I was about to say the same as others here. The thing is, even if the oats are certified as gluten free, in a minority of coeliacs, oats cause the same auto-immune response as gluten ALSO a word of warning here, quinoa can also cause the same auto-immune response, so you might want to tread carefully in that direction as well.