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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About CampbellS

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  1. How To Trust Doctors Again?

    I am sorry you are also having this problem. I am married to a physician and he is the most knowledgeable one I know. He has lived the life with me. I have suffered at the hands of many; and have been told I needed a psychiatrist many times when they didn't know what was wrong with me. I have been accused by one of diagnosing myself at a major health center. This was 25 years after being diagnosed by a gastroenterologist. I have learned that we can complain forever or be angry and the only one it hurts is ourselves. We need to be proactive and google whatever we need. Check out information on medical libraries. Physicians are humans with egos. Some keep updated on knowledge and some coast on what they learned in medical school. Unfortunately for me and others the studies have been done in the past twenty years, and are still ongoing. If you go to see a physician and you are angry , combative or accusatory they won't be as helpful. Do your research; ask how many celiacs they have treated. Do they refer to specialists that are experts in their fields? I hope I will be forgiven for telling one specialist (a personal friend of my husband) that if he sent me to anyone, in this case a dietician; who had to go in the back to read one paragraph about celiac disease I wouldn't go. Unfortunately we must be proactive and do a lot of research ourselves and yes you can do it. What other alternative do we have.
  2. Heart Palpations

    I have had Pre Atrial Contractions or PAC, and Panic Attacks for years. Please insist that they check all the Vitamin B levels; B1,B6 and B12. My husband had to insist they did this. My B levels were so low I had to have IV's and daily injections for a while. If they are low you should start feeling a big difference with treatments. You must be very diligent in your gluten free diet as even traces or small amounts can damage your small intestines. The sooner you control it with no exceptions, the better you will feel. My analogy for celiac disease is to do the diet. Would you stick your finger into an electric socket knowing you would be shocked. My panic attacks have abated or are almost gone; my atrial fibrillation had improved markedly. Remember there is no cheating
  3. Celiac And Hair Loss?

    I have had alopecia or bald spots since my early teens. An autoimmune disease also connected with celiac disease. It has only ever gone away once and not for long. The hair grew in pure white and frequently falls out again. I keep my hair long to cover it up; just lucky that I can cover it or I would wear a wig. Supposed to improve with gluten free diet; but for those of us that had our celiac disease diagnosed late, it's just another autoimmune problem that gets added in.
  4. I am having a lot of neurological problems now. I have been a celiac undiagnosed for the first 29 years, and have been on a strict gluten free diet for the past 30 years. I have no problems with the diet, only have had recent problems with prescribed medicines that were not gluten free in the past few years. I have been having problems with occasional ataxia, full blown neuropathy and atrial fibrillation. Two years ago came down with Wernicke's, severe Vitamin B deficiencies. Have been treated for this, but still have problems. I have been on a waiting list for the past 20 months to see a specialist in Neurology for small motor neuron and muscle specialty. I would like to find a specialist for help. Fatigue and muscle weakness, have always been a problem. I am a physical therapist married to a physician; knowledge or connection doesn't help to get in to see someone. Moderator please delete stuff if I am too detailed. Would like to have help finding a specialist to get into; as to prevent further decline. Have had full neurological workups and had MS ruled out. Any help from another educated celiac would help. Vitamin supplements, injections or even IV,s have not helped. Neuropathy pain is varied and uncomfortable. Thanks for any input