• Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


Advanced Members
  • Content count

  • Joined

  • Last visited

Community Reputation

0 Neutral

About wystearya

  • Rank
    Community Member

Profile Information

  • Gender
  1. Thank you! I will make sure to get D3, a friend of mine also suggested this!
  2. My diabetic study is always marked "excellent" so no issues there. This last blood work was with fasting. Thank you so much for the information. I do eat an apple nearly every day, but other than that I don't eat a lot of fruits. But I do believe I need to cut out most (if not all) prepackaged foods. I have been taking frozen (gluten-free) meals to work for my lunch nearly every day. They are fairly high in carbs and have a lot of corn. I suppose I need to start cooking and taking leftovers for lunches. I also eat a lot of Greek yogurt. It's probably not really that great for me either. Added sugars.
  3. I don't yet have all my test results back, but I do have some. I was "negative" on the celiac panel (I plan to ask for copies of my actual numbers.) "Low" on Vitamin D - Apparently the doctor wants to put me on 50,000 'unit' Vitamin D pills. To be taken once per week. The thing that really bothers me is my cholesterol results. I had slightly high before and was able to lower it with cutting back on carbs. But this time it is worse than ever. :/ LDL = 150 HDL = 52 Cholesterol = 235 This is very upsetting. I know I haven't been watching my carbs as closely, but still, this is very bad. I need to be at a total of less than 200. All the sheet says is to "decrease fat, increase fiber." Not helpful at all... Anyone else have high cholesterol issues? It runs in my family, my father had to have triple bypass some years back and is still on statins for cholesterol. Statins are awful! I do NOT want to end up on them! I'm going to get back into really watching my carbs. That did help me once before with my cholesterol levels. I have read that LDL can be released if there is damage in the body. Is this true? Maybe I need to heal my intestines? I'm just worried and feel a little lost. :/ Thanks for reading. ---------------- PS - My Thyroid is apparently 'normal'. TSH = 2.418
  4. Thank you both! I'm hopeful my doctor won't push me to do the gluten challenge test. She has been reasonable and generally knowledgeable. Though the lack of testing when she initially suggested I go gluten free bugs me... Anyway, I will keep this updated! ----- I actually kind of hope they do find damage if I get the endoscopy. I don't want to drink the barium for nothing. That and I would like some confirmation of my own strong suspicions.
  5. Yes, I just don't want to risk getting sick for a test! I am going to see what the doctor thinks, but I am hoping to get the genetic test as well as thyroid functions. I'll be sure to mention nutrients too! Thank you!
  6. I'm going to give a little background information here in hopes that I can make the most out of my upcoming Doctor appointment. About a year ago I went to see my doctor thinking I may have IBS. After speaking with her she told me to try a gluten free diet. No tests were done. After another week of being stubborn, I finally tried cutting out the obvious sources of gluten. I felt much better! Still, no tests were done. It was assumed I was not celiac, "just gluten sensitive". Fast forward to today: I've been reading more and found out that I used to get DH. I had a bad gluten reaction two weeks ago. And I feel like I am reacting to even trace amounts now. I still get diarrhea more often than is normal. ------------- I have an appointment this Monday morning. Are there any tests I should request? Would they be accurate with me avoiding most (if not all) gluten? I am afraid to eat gluten on purpose anymore. I really don't want to do the test that requires eating it for weeks. I can't be sick that long. Though I can't say I have been 100% gluten free. I have avoided the obvious sources, but not eliminated cross contamination or trace amounts as ingredients in prepackaged foods, sauces, spices, etc. I guess I might not be celiac, but I know I feel a lot better when I avoid gluten! It cured my bowel symptoms quickly when I first started. But now it just seems like I am getting ill often. I think it is from CC and small amounts of gluten in prepackaged foods. I guess the only way to know is to see my doctor, which is why I have made the appointment. ---- Thanks for reading!
  7. About a year ago I went to the doctor thinking I might have IBS, and she recommended I try a gluten free diet. No tests were done at the time. I felt better and thought I was "just gluten sensitive" and would be OK. Fast forward to now: I have learned that I used to get DH. I had a bad reaction to eating gluten two weeks ago. The more I read and learn the more I believe I am Celiac. -------- I actually did make an appointment to see my Doctor this Monday. I will be telling her all this and see if there is any testing I should get done.
  8. Every label, every time. I like this, and will remember! My Mother is another issue. I'm 33 and know she can't legally tell me what to do or control me. She is just so controlling in nature and stubborn and easily angered that it makes it hard for me to talk to her about anything, especially something important. It's sad, but I am much closer to my Dad than my Mom. She also treats my Dad like a child at times, and I don't know why or how he puts up with it! Not to say he lets her run everything, but keeping the peace with her means letting her have her way...a lot. So, that is why I am concerned about talking to her, especially without 'official' proof from a doctor.
  9. This is probably it then. While I didn't cook it, and thus didn't read the labels, I know it's my fault for eating it without -knowing- it was gluten-free. I'm going to have to have a sit down with my parents, and probably go back to the doctor for some testing. My Mom probably won't believe me unless I go to the doctor. She is terribly stubborn. --- Thank you all for the replies!
  10. This morning I woke up with another of my migraines. Thankfully I am not in too much pain, but enough to bother me. I am also frustrated because I don't know why this happened, and I think I must have eaten something. I seem to have a delayed reaction from when I eat gluten and when I show symptoms. The last time I noticed it, it was several days before the full effect was on me. This was only a couple of weeks ago. Can symptoms come and go after being glutened? If so how long can they linger? I am also concerned because I ate some chili my Mom had fixed the other day. I know they use several canned items in the chili, so I am worried maybe this is my problem. I'm going to have to not eat her cooking for a while... This should be 'fun' to explain to her. I fixed a meal last night and realized one item I used had citric acid in it. From what I have been reading, this can come from wheat, correct? - I always thought this was from citrus fruit! I'm not sure this is my problem, since I have eaten this same thing before and not had a problem. But I am concerned. I'm just frustrated that I don't know why I am hurting. I'm upset with myself too. I'm still new to eliminating ALL sources of hidden gluten. I am trying and making progress, but it makes me upset when I mess up. Thanks for any help and listening to me, ~Wystearya
  11. Probably already been suggested, but you could offer to bring in a dish (or two). Then you could make it gluten free and at least have something there you know you can eat. This year I am going to let Mom make the regular stuffing for her and Dad. I will make my own small pan using some toasted gluten-free bread. I am hoping this will be better than the prepackaged mix I had before. My Mom is also willing to use corn starch instead of flour for the gravy and I will be helping to cook. I'm thankful she is willing to work with me. I'm sure if you just explain that bread can literally make you sick that your family will understand. At least they should!
  12. I live close, but I don't think they fully understand what I have gone through. Maybe that is my fault, I didn't want them to worry about me and likely downplayed how sick I was. I will try to clear that up and tell them. I don't want to push them too hard, I just hope they listen. Thank you for the reply!
  13. I've known I am "gluten sensitive" for about a year now, but only recently realized I am likely full blown celiac and need to be much more careful about my diet. I had a big wake up moment when I ate some rolls (knowingly) made with regular flour. I was so very sick. I don't ever want to do that to myself again! I also discovered that a skin condition I used to get frequently was/is DH. I had always wondered what the odd bumps on my hands were, now I know.. Knowing all this I am more concerned about my parents, especially my Dad. My Dad's mom died of colon cancer when I was still a baby. I never got to meet her. My Dad has had hemmoroids removed and several colon polyps removed. I've finally got him to at least limit his breads, I think he realizes it makes him feel better. But, I am going to talk to him again once I get a chance. I want him to be tested, I don't want to lose him over gluten! My Mother is also of concern. She had a miscarriage before I was born, I am an only child. She has terrible mood problems. She also has the beginnings of arthritis and osteoporosis. And she might have carpel tunnel, she says sometimes her hand just "lets go" of things. She is only 61. I think she is too young to have these problems. I worry she may need to be tested as well. ... Thing is, I cannot talk to her about hardly anything. She gets so angry and defensive. When I first told her and my Dad about the gluten and encouraged them to see about it, she dismissed my concerns right away. :/ I am thankful my Dad at least listens to me. I will be talking to him soon. I will -try- to talk to my Mother, but she really is stubborn. Even if I print out pages of things for her to read, I know she will not fully listen. I have tried to help her with even small things, and she is so stubborn she just won't change. Do you all have any ideas for me? I want to help my parents. I worry about my Dad because of how his mother died of the colon cancer and his own polyps. I just need them to realize how serious it is! Thanks for reading, ~Wystearya aka Christina
  14. Wow.. I did not know this. I wonder if Post it Notes are gluten free? I use them all the time at work. --- My hair also thinned significantly right before I found out I was gluten sensitive. I also just found out I -have- to be more careful with my own eating habits too. I know your scalp is itchy and sore, so you probably won't want to try this until it is healed.. But I have been using an apple cider vinegar rinse for a few months and I believe I am seeing more hair coming back! I tend to have an oily scalp, and I think the rinse (1 third vinegar, 2 thirds water) is helping! I typically use my shampoo, rinse with water, and then I use my vinegar rinse. I work it into my scalp, especially the top and front. Keeping my head tilted back to avoid getting it in my eyes. I then rinse out the vinegar and use some conditioner. The vinegar does not feel like it strips the hair. It actually feels smooth/silky. This may or may not help you, but it does seem to be helping me. I hope your diet & lifestyle changes will help your hair come back!
  15. The first link (stresses) seems to be what triggered mine. I had migraines sometimes, but no other major/noticed symptoms. Then after a very stressful time at my job I was very sick. Digestive problems, etc. So I fully believe that stress can trigger it, or at least aggravate it. I was 32 before I found out I had this! So, you are not alone!