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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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  1. I forgot to mention… to avoid additives, and production cross contamination with gluten or ANY allergens… I now grind my own turkey, and it's way easier than I thought. You will need a food processor, here's how: - Cut Turkey (or any meat) into 1 inch cubes. - Place cubes on plate/baking-sheet and pop in freezer for 20 minutes - Take out of freezer, put small amount in food processor - Pulse for 1 or 2 seconds repeatedly until your meat is ground - Repeat with rest of meat, you may need to refreeze if it becomes soft - Bingo, ground meat with no additives or cross-contamination Hope this is useful to somebody
  2. I should have clarified in my long post above -- I have Celiac, but I'm ALSO allergic to dairy, soy, grains, nightshades, corn. I have to basically eat Paleo, and not by choice. This has all happened in the last few years, like my immune system gradually just crapped out. Back to Jenny-O… if you google, a lot of people have bad reactions to their Ground Turkey, and a lot of people also have problems getting a straight answer out of them about what's in the "natural" flavorings. Did you know some strawberry and raspberry flavorings are made from animal anal glands? Which allows the manufacturer to label them as "natural"? My point being… "natural" has no guidelines under current food labeling laws, and can mean many things. Did you know manufacturers are not required to disclose soy as an ingredient if derived from certain seeds? One manufacturer told me "FDA's Food Allergen Labeling and Consumer Protection Act does not require these types of oils to be labeled as a soy allergen". My point being… If you have ANY allergies you can't believe what you read on the package. The "natural flavoring" of rosemary oil in Jenny-O Ground Turkey probably IS made from the oil of real, natural rosemary. However there's probably other additives in the oil itself, to make the oil stay fresh, or stay stable, etc. Manufacturers are NOT required to list this kind of thing, they can legally claim it to be "natural flavoring" and tell customers who ask that it's just Rosemary Oil. Make sense? Not sure why I'm bothering, my intent was to be helpful but some folks on here do seem to get defensive. I used to be able to eat Jenny-O Ground Turkey 3 or 4 years ago. Now I react severely within minutes. Maybe the Turkey is ground on non-dedicated equipment. Maybe there are other additives in the oil. Who knows. I DO know Jenny-O are the most secretive of ANY of the many manufacturers I've contacted in 5 years.
  3. I contacted Hormel, the manufacturer for "Jennie-O Ground Turkey". I exchanged 5 emails with a "Consumer Response Specialist" who would not give me a straight answers to my questions about the "Natural Flavorings" listed on the packaging, and eventually refused to answer my questions. The problem is "Natural" has no legal meaning or weight, anyone can call anything "Natural", which is a minefield for people like me with medical food/chemical allergies. I HAVE to ask, to be safe. To date, in 5 years, Hormel is the first and only company ever to refuse the information I ask for. Below are my emailed questions, and the responses verbatim: 1) I asked "what specifically are in the "Natural Flavorings, and does it contain MSG"? Response: "the natural flavoring is rosemary". 2) I then asked "it is just Rosemary oil, or dried herbs... are there other ingredients, and does it contain MSG? I have to ask due to medical food allergies" The 4 word response: "It is rosemary extract". 3) I asked "what else is in the rosemary extract" and "does it contain MSG?" and "I will never buy a product from a company that will not honestly disclose all ingredients." The response: "I contacted our R & D department regarding the rosemary extract. There is no Monosodium Glutamate in the extract." 4) I replied: "Thank you for contacting your R&D department. I will try one more time to ask my question... I will try caps… WHAT IS IN THE ROSEMARY EXTRACT? Specifically what ingredients? Just Rosemary, or what else? Thank you." 5) The response: "I understand your question, NO CAPS NEEDED. I'm sorry, I have provided you the information that I am able to. Jacki, Consumer Response Specialist, Hormel" So I can confirm that Hormel refuses to disclose all the ingredients in their "Natural Flavorings", which is something I've read on many other message boards, but wanted to find out for myself by giving Hormel the opportunity to be honest about their ingredients. They were not. Here is the problem -- "Rosemary Extract" sounds all nice and natural, but probably isn't. What's in the oil? What preservatives are included? What other ingredients, then Rosemary are in this "extract"? In the end -- I DID take a chance, and try "Jennie-O 99/1 Ground Turkey". I got a migraine, tight chest, rash, and all my sinuses swelled shut so I couldn't breathe. So there is definitely SOMETHING in there other than what Hormal refers to as "Natural".
  4. I forget about the Cross Contamination issue frequently. I think my brain tries to hang on to the way things were, even though I lived with severe Gluten reactions for years without knowing it. I would never eat anything from a regular bakery either... but INSTINCT took over... and I licked that knife! Mmmmm.... and stupid :-)
  5. Oh... Cross Contamination... of course :-)
  6. What is CC? Vanilla extract is gluten free. Vanilla flavoring sometimes contains barley malt, or malt. It's always labeled, but I didn't think to look and got glutened by this a couple of times in the early days.
  7. Yesterday I bought a decorated birthday cake. One of the letters was wrong, so I carefully scraped it off and without thinking, stupidly licked the knife. Sure enough, this morning I have a full-on gluten reaction, which is very severe for me and usually means 5 days in bed. Oh joy. I called the baker out of curiosity, as I'm only 18 months into being Gluten Free and still learning (and still hitting myself about the head occasionally, when I do dumb stuff like this). The icing contained two things that I think may have been the problem -- vanilla flavoring (not extract) and cake shortening. I know some vanilla flavorings are made with barley malt, yep, did that one already a couple of times about a year ago. But I have no idea about Cake Shortening, what is it, and does it contain gluten? Thanks for reading my post
  8. I emailed Solaray to ask if their Astaxanthin (1mg, 2mg or 4mg) is Gluten Free. They responded telling me to call their "Nutritional Products Helpline" (800) 227-6063. They wrote... "please note that we cannot respond to your inquiry unless you call". So I called their Helpline... talked to "Sue"... and was informed "that product is NOT certified Gluten Free". Not sure why they couldn't just say this in an email, but... good to know!
  9. Thank you, I appreciate somebody else saying this. I am scratching my head to be honest.
  10. Respectfully, you misunderstand me. I don't expect anyone who isn't Celiac or Gluten Free to be an expert. I didn't say this. I do expect a large corporation selling food they are branding with a "g" icon to denote Gluten Free, to properly educate their staff about what this own-brand packaging claim means. I don't expect TJ staff to know whether ANYTHING in their store is Gluten Free, but I do expect them to understand what a TJ branded product labeled with a "g" means. You said Trader Joes makes no claims to be "certified" Gluten Free. "Certified" being the key word here. They are however claiming there is no Gluten in specific products, and labeling those products with a special icon. If there is ANY GLUTEN in these products, even a miniscule amount by cross-contamination, then Trader Joes is making a false claim. I am patient, and I do educate where I can. I was responding to the tone and theme of the original post, and your rant at me is somewhat over the top I think.
  11. Astaxanthin

    I know you posted this 2 years ago but... thanks for sharing! I was just googling trying to find out if Solaray Astaxanthin 1mg is Gluten Free and you have pretty much answered that for me.
  12. I have huge issues with Trader Joe's labeling. For example their frozen Tamales claim to be Gluten Free with the "g" logo. There is NO statement on the back about the facility or equipment. I was sick within minutes. The same thing has happened with multiple items from TJ's. I know they are not obliged to disclose anything about equipment. But what bothers me is they make such a big deal about being about health, healthy stuff, neighborhood, community, etc. But what they have done is jump on the mercenary "Gluten Free" bandwagon to make some more bucks, when their offerings are NOT technically Gluten Free at all. They are obviously all made on shared equipment, in shared facilities. The staff are unbelievably uneducated about TJ's Gluten Free products. All go glassy-eyed when I point out that the "g" logo doesn't in fact mean "Gluten Free" it means no gluten ingredients were used, but it's highly likely those lovely tortillas went on the machines right after the last flour tortillas batch. In summary, TJ's has made me sick too many times with their BS "g" stuff and I won't even shop there any more.
  13. Received a reply from CoverGirl about whether their products contain Gluten. It's a long email, and it seems to me the answer is actually yes, but they say no, because apparently the physicians they consulted said trace amounts wouldn't be a problem! The replies I am receiving from manufacturers are hilarious. I got another from a haircare company this morning that said basically...our product contains no gluten, but it does contain wheat. This is from a huge company! I should start a new thread just for manufacturer replies about gluten in products. Has anyone done this? Here is covergirl... Thanks for contacting CoverGirl, We know Celiac is a serious disease, so we want to give you clear information regarding the use of our beauty care products. If wheat and/or gluten aren't directly added to a product by us, these ingredients won't be listed on our packages. Like many companies, we often purchase the scents for fragranced products from outside suppliers, and the components of these substances are proprietary information belonging to those companies. Therefore it's possible that a very small amount (generally parts per million) of gluten may be present. We sought advice from physicians; they told us it would be very unlikely a person with Celiac disease would have a reaction from a trace amount of gluten coming into contact with his skin or hair. This is because wheat, rye, barley and/or gluten generally cause symptoms when they're ingested. Since our beauty care products are designed to be used externally on the skin, their use shouldn't be an issue for someone with this disease. Since gluten sensitivity can vary among people, it would be best if you consulted with your physician about the use of all types of consumable goods, if you haven't already. You might even consider using one of our fragrance free products that doesn't list gluten or wheat extracts on the label. Thanks again for getting in touch with us. I hope this response has been helpful to you. For more information about Celiac, you may want to check out http://celiac.com
  14. Thanks for the recommendations. I use Vitacost for vitamin D, so I will try some Andalou stuff next time I order. Love the lipstick exchange, checking that out now!
  15. Yes I was a little alarmed too, so I did some googling to try and understand why the same ingredient would go in OJ and moisturizer. Tocopherol is basically Vitamin E, which is mixed with Acetic Acid to form alpha-tocopherol. It's then added to food AND skincare in slightly different forms for each. It's also used for floor wax, lol. It's regarded as GRAS by the FDA (generally recognized as safe). However...as regards us Glutards...Tocopherol is apparently usually derived from Soybean Oil in the USA... but "may" be derived from Wheatgerm oil. If the Wheatgerm Oil is unrefined, the chance of "proteins" (which I am guessing means Gluten) remaining, are apparently very low. The Wheatgerm aspect must be disclosed on a food/beverage product, but not on a skincare product. Meaning you could be putting lotion on your skin containing an ingredient derived from Wheatgerm Oil. Interesting stuff. I'm extremely sensitive, so I will probably avoid Tocopherols in food and skincare where I can from now on, even though the chance of it affecting me is "very low". The lesson I keep learning repeatedly is to make everything I eat from scratch, period. And as for cosmetic products, I'm in the process or replacing everything. Here's where I got my info: (I'm new, is it ok to post links like this? Personally I like to know where opinions come from. I am of course not affiliated with any of the sites): http://www.glutenfreedietitian.com/newsletter/vitamin-e-from-wheat-germ-oil/ http://www.cosmeticsinfo.org/ingredient_details.php?ingredient_id=520 http://personalcaretruth.com/2011/05/ask-the-experts-18/ http://www.wisegeek.com/what-is-tocopherol-acetate.htm