• Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


Advanced Members
  • Content count

  • Joined

  • Last visited

Community Reputation

0 Neutral

About moneek

  • Rank
    New Community Member

Profile Information

  • Gender
  1. DH Photo Bank

    thanks for squashing the conversation and alienating other memebers. (not) I am leaving this forum, for just this reason. I have ideas to contribute, things to discuss, photos to share, but with the obnoxious attitude that prevails here, I am not able to bear more stress.
  2. Meds For Dh - Dapsone And Others

    I only eat at home as well after getting cross-contaminated twice (I think so, anyway); it's difficult socially as most folks just don't really understand. They think, just a little bread, just one cookie, or whatever. I find it's easier to just be a bit isolated at the moment until I feel stronger. .... m
  3. Meds For Dh - Dapsone And Others

    that's encouraging about the relief you got from Dapsone; I will find out on Wednesday if the MDs think it's appropriate for me. Happy 2013!! I hope it's a better year than this one was. ...m
  4. Meds For Dh - Dapsone And Others

    How long were you [or are you] on Dapsone? any side effects? I am leery of that drug. best wishes. moneek.
  5. Meds For Dh - Dapsone And Others

    can you do lactose products? yogurt and kefir are great for nausea and stomach discomfort, and, if not loaded with sugar, etc., have great pro-biotic effect. also, ginger tea. and, yes, your rash looks a lot like mine. .... moneek
  6. DH Photo Bank

    I was able to post my photos to photobucket .... unfortunately, they are in reverse order, the first ones, the majority of the pix, are from December 2012; the last ones are of the initial manifestation of the rash back in July 2012, plus a few in between from November, when I actually thought I was getting a bit better. take a look: http://s1272.beta.ph...lamb/library/DH My case is complicated by a Dx of Hashimotos during the same time period (August 2012), so I have this conflict regarding Iodine - it appears dietary Iodine can aggrevate the DH rash, but Iodine is needed for healthy thyroid function. So, I am trying to balance all of this and learning more every day. I use no cosmetics at all, with the exception of gluten-free lipstick (Gabriel's), I lubricate the rash with a combination of pure coconut oil and borage oil lotion (shikai children's lotion, gluten-free, per the manufacturer: http://pics1.ds-static.com/prodimg/75483/300.jpg ) I'm also avoiding the majority of gluten-free food products out there - they are loaded with corn and tapioca and lots of ingredients that I have never heard of. I am eating mostly whole foods, fruits, veggies, meats, chicken, etc. Best of luck to everyone. M
  7. DH Photo Bank

    I am dx'd since October 2012 with DH via skin biopsy, and gluten free since mid-October {don't even ask about Sandy's impact on my crazy life} .... {we lost our home} I am uncertain if I can post any photos, since I'm new to this forum. I was initially treated in September with prednisone for 3 weeks, which mostly cleared the rash; it quickly rebounded, though, when the prednisone was stopped. I have a very painful, sometimes itchy, mostly very painful rash on both elbows, both hips, upper thighs [front and rear], and buttocks, plus some minor spots along my arms and my hairline. The rash is always symmetrical and, like I stated, very painful. I believe the underlying antibodies attack nerve cells, thus the pain, and for others the severe itch. I am finally in good hands, medically speaking, at a university clinic where the latest cutting edge science is being studied; I am actually a part of the study there, as the MDs don't see too many cases of DH. Dapsone may be in my near future if the rash persists.