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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About AshBil

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  1. Yogurt/probiotics - Any Input?

    I'm having the complete opposite problem. When I started taking a probiotic and eating yogurt again after going gluten free, I got very very sick. Extreme nausea to the point of almost vomiting and stomach pains. But it felt very different from the way I feel when I get glutened. And the yogurt and the probiotics were completely gluten free and my symptoms hadn't started until I started those pills and eating the yogurt. They never bothered me before I went gluten free this past October. I'm still confused what all that was about but once I stopped the pills and the yogurt, I felt so much better, it was crazy. Something about active culters in the yogurt and probiotics are giving me such an adverse reaction, so I'm in a completely different boat than you.
  2. In Need Of Venting!

    Thank you all for the kind words. Takala, I honestly couldn't tell you why my aunt and cousin have to be the ones to decide. Maybe it's because we all go to their house afterwards. It's just always kind of been that way. It's not a big family by any means. It's me, my parents, two aunts, two uncles, three cousins and my grandma. So it looks like my parents and I are just going to have a dinner at home. I'm fine with that. It's better than constantly getting told like I have been since I was diagnosed, that they're not going to change everything around just to accomodate me. Even on Thanksgiving, I made two gluten free pumpkin pies with a glutem free ginger snap crust. I made one for home and one for their house. My other aunt (the one that actually thinks of me and had a New Years Eve party and offered to cook me whatever I wanted because they all had spaghetti) she was the only one outside of my parents and my boyfriend who tried my pie. They all said it came out really good. I asked my grandma if she would try some. And she said "no, I want to eat the pie i brought" which was a store bought pie. It's like they're all afraid to eat gluten free things, like if they do, they'll get sick. Like a reverse Celiac or something. It's just very frustrating. Thank you all again for the support because other than my parents and my boyfriend, I don't get much of that.
  3. I'm just feeling really frustrated. Every Easter, my family and I all go out to a restaurant for lunch/dinner and then go back to my aunt's house to hang out and play games and stuff (yeah, we're one of those families). So sine this is my first year beign diagnosed, my mom and I have been telling my grandmother and my aunt that we really should go to a restaurant that has a separate gluten free menu. It would be the only respectful thing to do. Because what else am I supposed to do? Sit there watching everyone else eat and have me sitting there drinking a water or something, starving? So, last night, because no one can decide where to go since no one wants to go back to the place we went last year, my aunt put the decision up to my cousin. There's only a few good restaurants around here that have really good gluten-free menus that neve rhad made me sick in the past so I really trust them. We told my cousin that we should go to one one of those places and she says that they all want to go to an Italian restaurant (which none of those around here I trust) and they're not choosing a place with me in mind. My mom told her that wasn't fair to me but she still didn't care. So now my parents and I have to miss out on family time and are basically getting pushed out of celebrating Easter with our family. Our family has every holiday together. There are even Memorial day and Labor day cookouts. We even occassionally have family game nights and all go over to one of our houses to play Catchphrase. But this really hurt my feelings. Because we all know that if it were one of my three cousins who had Celiac, there would be no question as to where we were going to be going. It's not like the places I can go are dedicated gluten-free restaurants. They can get whatever they want there. My menu is completely separate. It's just diffciult to accept that my own family wont even consider me and my health. I've explained it to them enough over Thanksgiving and Christmas and even then I had to provide all my own food. I had bologna sandwiches and Udi's bread and a baggie full of tostios on Christmas, while everyone else ate Chicken Parm and baked ziti. But that was different. That was at their house where I could bring my own stuff so I didn't mind. And the only person in my family who has my back in this is my mother. My grandmother didn't even care. It's just not fair that I'm getting this type of treatment. It's not my fault I have a disease. It's not my choice to eat gluten-free. And that's how they're acting like it is, that I'm choosing to eat this way and it's not for my health. I mean, I can't say I'm surprised because it's always been this way inmy family that my parents and I get look down upon and treated like the black sheep but I thought that maybe, just maybe, they would understand and involve me like good families do. Families are supposed to support each other and help each other. In mine, it's only if you're in that side of the family. That's the only way they care about you. They make me feel gulity for having an uncontrollable disease. It's just not right. Sorry for the rant but I'm just upset and hurt and I know this is a safe place to do just that.
  4. Feeling Great But Can't Eat!

    I'm not bloated, I just have that feeling as if I ate a lot when I only ate a small amount of chips. It's the full feeling on the inside without the bloat. It's just weird that a small amount of chips could fill me up so quick and last so long. It's like that with anything I eat lately. The first thing I eat that day no matter what it is, it intantly fills me up for the rest of the day. Like I said, those Tostitos filled me up so much I couldn't even eat the cheeseburger or the mac n cheese. I had to force small bites down. It's been going on for the last couple of weeks maybe.
  5. Since I was diagnosed in October, I've been doing really well on this diet. In the beginning, I was still feeling terrible and thought I was doing something wrong but then I did more research and saw that you won't feel better overnight so I held out hope. I started getting better at reading labels and knowing what to look for and realized that I wasn't eating some of the right stuff. So October and November were still very iffy for me. That darn nausea just wouldn't leave me alone! But finally and happily during the last couple of weeks of December, I felt so much better. No sharp stomach pains and no extreme nausea. It has been glorious to not feel like dying everyday again. I'm finally healing and it's amazing. I got thrown a curveball though the week before Christmas. I had almost a full week of no nausea and then got a stomach bug so that was no fun at all haha. Once that went away, I went back to feeling just fine. I still do! I'm so happy at the way I feel. And since being on this diet and not being able to eat all the fast food and junk i used to eat, I've lost 13 pounds. I can finally live my life again without pain all the time. It's amazing. But one thing has been happening lately ever since I started feeling better and not feeling sick anymore. I get full so quick. Way too quick. I eat a couple of bites of something and get so full that I feel like I ate a five course meal. Like yesterday, I ate a small bowlfull of Tostitos (my fave go-to snack lately) in the afternoon. It was the first thing I ate yesterday. It filled me up for the rest of the night. We had cheesburgers for dinner and mac n cheese (mine obvioulsy with gluten free pasta) and I couldn't even eat it. I was still so full hours later from the chips that I took two bites of the macaroni and ate only half of one of the cheeseburgers when we each could have three and was ready to burst i felt so full. Is this normal when you start feeling better? Is it normal at all? I know I heard that usually when you go on this diet you actually start to feel really hungry but it seems I'm in the other direction. I feel like I'm barely eating everyday because any little thing I eat fills me up for the rest of the day. And after all that, I woke up today still feeling full from yesterday. I'm forcing some food into me right now because I have to eat obviously but I don't really want it. Just wondering if anyone has any insight to this. Thanks!! And happy new year!
  6. When I was first diagnosed, my Gastrologist gave me a bunch of information on hidden sources of gluten and one of them was caramel coloring. And when I went to my dietiton a few weeks ago, she gave me stuff that said the same thing. So I've been competely avoiding any type of colas like Pepsi and Coke. My favorite soda is Dr Pepper so I've reluctantly been avoiding that too. I haven't been a big cola drinker for the last 4 years because I've had a few kidney stones in my lifetime and my urolgist told me that the caramel coloring in colas can contribute to harming your kidneys and forming stones (it still doesn't help that cheese is my favorite food since calcium is the main source but I digress). So I would ocassionaly treat myself to a Dr Pepper or Pepsi or Coke every once in a blue moon. It's not really a huge deal but I'm just confused about caramel coloring because I've read things where Coca Cola has said that their products are gluten free. Also Wishbone italian salad dressing says gluten free but has caramel color in it. Also, I have a family friend who has Celiac pretty bad and is very sensitive and her favorite drink of all time is Pepsi. It's the only thing she drinks all day long and she says it doesn't effect her at all. I've done some research and I found that some sites I've looked at said that in the US caramel color is made from corn. So I'm just a little confused as to whether it's really safe or not. Just wondering if any of you have some insight on this. Thanks!!
  7. Upcoming Holidays...

    I recently found this pumpkin pie recipe online that's really great. I actually made two pies tonight. One for home and one for my aunt's house for Thanksgiving since we all go over there for the holiday. I've never made a pie before so it was new to me but I think it came out really good. It's made with an entirely gluten free ginger snap crust. And all the rest of the ingredients are gluten-free on their own so it's really not difficult at all! Here's the recipe if you'd like to try it out for Christmas! Happy holidays!! CRUST: 2 cups gingersnap crumbs 1 Tablespoon granulated white sugar 2 Tablespoons melted butter FILLING: One 16-ounce can pure, unsweetened pumpkin puree 1/2 cup granulated white sugar 1/2 cup packed light brown sugar 2 teaspoons grated fresh ginger root 3/4 teaspoon pumpkin pie spice 1/2 teaspoon salt 2 large eggs, lightly beaten 1 1/2 cups skim milk freshly grated nutmeg, optional Directions: 1. Preheat oven to 400°F. 2. Prepare the crust: Combine crust ingredients in a medium bowl. Pat mixture onto bottom and sides of 9-inch pie plate, lightly greased or sprayed with nonstick cooking spray. Bake 5 minutes. Remove from oven and set aside to cool while you prepare the filling. 3. Prepare the filling: In a large bowl, whisk together pumpkin, sugars, ginger, spice and salt until blended. Whisk in eggs and milk until all is smooth and incorporated. Carefully pour into prepared crust. 4. Bake at 400 for 15 minutes. Reduce heat to 350°F, and cover outside crust with a pie shield (or pieces of foil), and continue to bake 40 to 50 minutes or until knife inserted in center comes out clean. Cool. Tips: *The easiest way to make gingersnap crumbs is to whir the cookies in a food processor. If you don't have a FP, put them in a zip bag and roll a rolling pin over them until they've turned into fine crumbs. *If you're wanting to make this pie gluten-free, use gluten-free gingersnaps. I used the "Mi-Del" brand of Gluten Free Gingersnaps and needed 40 cookies to make 2 cups of crumbs. *This pie can be made the night before. It's best if eaten up within a day or two of baking
  8. I just feel so dumb about it. It took a couple hours but I feel disguting now. All it mostly is is really bad nausea. I feel like I want to throw up everything I've ever ate in my whole life! And my mouth feels really dry. Thanks for the support guys! Now I get to go through the best part...waiting it out. I can see this will be a fun weekend!
  9. Okay so I've been being really good with this gluten free diet for the last almost month now since I've been diagnosed. I'm doing research and reading labels and being really good with just doing whole foods as much as possible so I can reassure myself I'm not being secretly glutened. Well...it happened anyway. And a lot of it. Literally about 10 minutes ago now. I was in a rush this afternoon and had some stuff to do so I rushed out of the house and told my mom to make me something to eat because I was starved and hadn't eaten all day. So when I got home, I don't even think about it and ate what she cooked. I can't believe I didn't even think about it. All I've been doing is thinking about gluten and making sure it does not get into my body and here I was, chomping away on 4 peices of heavely breaded chicken and not even stopping to realize it. UGH! I feel so dumb right about now. I think my mom wasn't thinking about it either because she wouldn't have made them for me. I don't know what was hanging over our heads today that made us both completely forget about it. It's really weird. Maybe it's because it's only been such a short time...I'm not sure. But anyways, I'm now getting a little nervous about what I'm going to experience. The past 3 1/2 weeks, I still haven't felt much better to begin with but now that I've actually eaten a lot of obvious gluten, I'm worried. Before I was diagnosed, I didn't get D like I know some people get but I was having these terrible sharp stabbing pains all over my stomach and a lot of gurgling in my stomach as well as extreme nausea. Should I be expecting that or something much worse considering I've been gluten free for a while? I'm just in shock over how absent minded I was today. Thanks!
  10. AandGsmomma, i know that one! All too well. I know that if someone visits the ER a lot in such a short period of time with nothing being found, they might doubt you a little bit but after a couple times, I had a few doctors in the room with me, staring at me and asking me, "what do you do all day?" "are you in school or do you work?" "what's your daily life like?" "do you feel like you may be depressed?" They were starting to make me think I really was crazy, like I really was just overly anxious and creating stuff in my head. I hate that they do that. Just because you can't find something doesn't mean you make your patient feel horrible. And it only got worse after I started getting every test done. All the CT scans, x-rays, ultrasounds, blood work, stool tests, urine tests, rectal exams, pelvic exams and HIDA scan not finding anything made them question my mental health more. That endoscopy was the only thing that muted those accusations because finally something was seen and there could've been an answer. My gastro is a really good doctor I've heard and he's the only one who has really listened to me. My general doctor just gave me prilosec and then forget the nxt time that she did that and gave me some more again. My gyno just put me on the pill. The ER doctors told me I was crazy 500 times and thought i was pregnant and when I'd tell them that there was no way I could be pregnant, they'd ask me "how do you know" with this LOOK. I'd say because I'm a virgin and they'd give me another look like they didn't believe me at all. I hate that some doctors don't listen to you. It's YOUR body. They really need to listen more and do their job.
  11. I had my last female check up a few weeks ago before I got my celiac Dx because I thought maybe the pain I was having could've been an ovarian cyst so I had ultrasounds of my reproductive organs and had a pelvic. Everything looked normal to them. And I do still have my appendix. I was so afraid of appendicitis when I first started having my celiac pain and I had 2 CT scans with the barium and contrast. They said my appendix was fine. This pain i'm talking about here is internal like it's shooting from my anal/rectal area (i never thought I'd have to say that lol) and through my intestines. My boyfriend and i call it the "random ass pain" lol. Now that you mention it nvsmom, I've had some C problems especially during the last 4 months when my celiac symptoms all came tumbling down on me. I've heard when this pain happens for the few quick seconds, it's just a misfire in the rectal nerve. But it shouldn't last for 15 minutes or 2 hours. I'm not overly concerned about it. I'm just mostly scared because All day today even, I feel the dullest remnants of that pain from last night. I've gone to the bathroom today and everything so I don't think I'm backed up because I've actually been going almost everyday since going gluten free compared to going once every 4 or 5 days before. And I'm glad the dark green poo isn't something to overly worry about. i wasn't as worried about that part anyways but I figuered, might as well ask while i was on the topic of butts lol. Thanks guys!
  12. Hey guys! This is kind of a little embarassing but I'm a little concerned. I have no idea if this has anything to do with celiac or not but I figured I should mention it to see. I've heard this is very common with everybody in the world but sometimes throughout my life I've always gotten these random extremely sharp and paralyzing pains that last for literally 2 seconds in, I guess let's call it the butt (lol). My boyfriend gets them all the time too. They bring you to your knees. They're a pretty bad feeling. But last night it lasted for over 2 hours. I was crying and couldn't breathe it made it hurt more, I couldn't stand, sit or put pressure on my backside. I was laying on my bed on my side crying and screaming in pain like I was giving birth or something. It feels like someone is stabbing you through your butt and the knife is exiting through the front pelvic region. It's razor sharp like electricity. I've had 3 kidney stones in my life and this pain yesterday was the worst thing I have ever felt in my life and if anyone has had or knows someone who has had a kidney stone, that is the worst pain people say they've ever experienced. But this, it's completely paralyzing. They've always lasted for a few seconds in the past. But this was for hours. That can't be normal. I was just wondering if anyone has ever heard of this happening. Also, I've noticed over the last few days that my stool is dark green. I think everyone's had it being green before for a day but this has been for the last few days. It's just a dark green that's kind of mostly coming out in marbles. I know that eating a lot of greens can do that but I haven't been eating more veggies than I normally ever did. i know this is probably gross to talk about but I was just a little curious because that pain was horrific. I couldn't even move my leg without it feeling like someone twisting a razor thin sharp knife in my bottom. This actually happened to me a month ago too but that one lasted for 15 minutes where I was lying in the same position on the living room floor. Then I thought that 15 minutes was odd and terrible but last night with it lasting 2 hours I got really scared. I took a lortab my gastro perscribed me and it started to slowly drift away. But I was so worried last night and still am. And with my poo being dark green, I feel like something odd is going on. Thanks everyone!!!
  13. Thanks guys! I bought a bunch of fruit to replace my usual snacks and told my mom that I will cook my own dinner (which she was extremely happy about haha). I was already warned that no one's going to change anything around for me on the holidays coming up so I'm kind of at a loss there. But I also told my aunt that I'm going to make a couple of dishes for Thanksgiving that I could have as well as everyone else that are naturally gluten free. I know it's a little early to plan for Thanksgiving and especially Christmas but I'm definitely the type to plan everything in advance. My bloating and that pain is gone but I can't shake the nausea. It's just always there. I'm not feeling it today but I have every day even since going gluten free and now even while just doing whole foods. Is it normal to take a while to feel completely better because sometimes I'm thinking that maybe it really isn't celiac. Ugh! I just wish my doctor gave me a more confident answer. I can't see him for three more months. I'm all jumbled over here. Maybe it's this hurricane sandy that's coming my way messing with my head lol
  14. Anyone Under The Age Of 25?

    Hey there! I'm 20 and was just diagnosed two weeks ago exactly. It only took over 3 months for them to figure out why I was constantly nauseous and bloated. That nausea will be the death of me. It still likes to pop up on me and destroy my whole night even when I'm eating something I know is positively gluten free. But, I've only been gluten free for two weeks so I gotta give it some time. I was lucky enough to already be with my boyfriend for four months when this all started. He went with me to every appointment and every trip to the ER thinking I had appendicits or a heart attack (started having terrible chest pains with a racing heart, tingling and numbness in my right hand and foot and vomiting). So I didn't have to explain much to him since he was always there. And now we're at 8 months together and he helps me look at labels and do research. He's the greatest. I had an edoscopy and blood tests done all in September. Blood tests were actully normal except for one that he said wasn't always accurate but the biopsy from the endoscopy showed signs of it plus I have the gene for it too. So I'm still in my beginning stages here but I'm hopeful that I'll feel better soon because I'm not feeling much different with the constant nausea. It's be great to talk to someone my age with this considering the only person I know who does have it is my mom's best friend since elementary school!
  15. Thank you guys! In my bloodwork they did do the genetic test too and it showed that I definitely carry the gene. Yeah, I love how doctors always fall back on the whole "you're just crazy, there's nothing wrong. Do you need to speak to someone?" line. I more than once got asked what I do everyday and how high my stress level is. My response was always that my stress level right now is through the roof when you keep asking me that question everytime. I had everything checked out from the HIDA scan and ultrasounds of my gallbladder, kidneys, bladder, ovaries, liver. I had two CT scans with that yummy barium stuff. Had 2 chest xrays.But they couldn't see anything so I must've been making it all up. Some of my family even started doubting me, going so far as one of my cousins even making fun of how many ER visits I had over on my facebook page. So actually being diagnosed makes me happy so it can kind of be like an I-told-you-so thing to everyone. I'm just grateful that it was found a lot sooner than it typically might've. I know there are people who go years before figuring it out. The 4 months i went through felt like 4 years. My heart goes out to everyone whose had to go through even a fraction of what I had to.