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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About sand0and0oceans

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  1. I have another question before my appointment. The results for my IgG test aren't displayed in the numbers that I've been seeing on here. My Anti-Gliadin IgG was 514, the guide said that a result under 140 would be "normal." But the only scales I can find online show that a result under 10 is "normal." Can anyone help me interpret this?
  2. Thanks for all of the information, everyone. It's good to know that I have a support system that I can turn to of people who have already gone through this! And it seems like if the test results come back negative for celiac I have a great resource to turn to anyway, because I definitely have an issue with gluten.
  3. Thanks for the advice! I want to go in there with as much knowledge as possible, I want to approach these appointments with the most information possible, if I know what tests I might need, for example, perhaps the doctor will take me more seriously. (I've never met him before, he could be a really great guy, I'm just always weary about doctors not taking symptoms seriously, for whatever reason.) I didn't realize about the vitamin D deficiency; I did know that celiac disease could cause your body to not absorb nutrients, I just didn't know which ones. I've always gotten sun burnt really easily, which may have a lot to do with the fact that I'm fair-skinned, but this summer I was reading about sunburn and vitamin D deficiencies. I started taking a vitamin D supplement and stopped getting sunburns as frequently and as bad. Maybe celiac/NCGI is behind this, too! I would just love some answers. I know that gluten is the problem, I just want to know what else is going on with my insides :/ I never thought about that, but I also get wheezy and shortness of breath when I eat dairy. I never imagined that I could have a bad allergy to these foods, mainly because I've been eating wheat and dairy for 22 years, but I will definitely discuss this possibility with my doctor. Unfortunately only emergency room visits are covered outside of my HMO zone, and I haven't seen my PCP in 2 1/2 years, he's not very helpful, but at least agreed to give me a referral to the GI if I come in for a physical right before my GI consult, but if he changes his mind and deems a GI visit "unnecessary" and doesn't tell the insurance he agrees that I need to see one, I need to pay out of pocket anyway. So really I need to hope that my PCP knows even the slightest bit about gluten intolerance. (I absolutely hate insurance!) Thanks for your help, I'm still a bit nervous, but it sounds like it was a good idea for me to have a journal of my symptoms each day. I did stop a few days ago because nothing was really changing, though.
  4. I think I might have celiac disease, have scheduled some doctors appointments and need some advice. I'm 22, and after 7 years of increasing "food allergy" symptoms I finally decided to get a food allergy test. It was the IgG test, though, which some argue isn't worth doing at all. However, I tested "avoid" on the sliding scale for gluten, gliadin, and wheat (among a few other things, but I'm hoping to heal my gut and reintroduce those others slowly). Around January I was starting to hear a lot about celiac disease, and after looking at the symptoms decided that it was a possibility for me. I was experiencing flatulence, diarrhea, bloating, fatigue, the list goes on! I tried half-heartedly to stay gluten-free, but couldn't really stick to it because I always came back to the thought "but what if I'm doing this all for nothing!" When those IgG test results came back, though, I took my last bite of gluten a day later and said goodbye to wheat forever (or so I thought). Then, in the past few weeks, I've just really been wanting to get tested, diagnosed, the whole shebang. There are a few reasons behind this. 1) simple curiosity 2) so little is known about "gluten intolerance" that maybe if I'm just gluten intolerant and don't have celiac disease there may be different options for me down the road, 3) If I do have celiac disease, I'd like to be able to participate in clinical trials to help other folks with the same disease... and of course there are more. So long story short (too late), I scheduled a visit with a gastro and started eating gluten again. I thought it would be exciting to eat a bagel and pizza and yummy stuff again, but boy was I wrong! The first day of my gluten challenge I went into Subway and literally felt like a kid in a candy store, with the world at my disposal! I was so excited, but also felt pretty strange, since I had gone through this grieving process for food, and had finally come to terms with the fact that I just wouldn't be eating wheat bread again. But I finally bit into it and, eh, it wasn't as good as I had anticipated. But about half an hour later is when it really went downhill. I had a migraine, bloating, shortness of breath. Ugh, my first gluten meal and I couldn't even comprehend the thought of doing that for an entire month! Here are my symptoms, after a week of eating gluten: - headaches (started as migraines the first few days, now are better but still pretty bad) - bloating - diarrhea - flatulence - shortness of breath (I'm always feeling like I can't get a deep breath) - VERY dry skin (I've battled with dry skin my entire life, except for the 3 months that I was completely gluten-free) - Heartburn (I had acid reflux as an infant, and started getting frequent heartburn around the age of 11. I have been on and off of, but mostly on, antacids since then, except for the last 3 months the heartburn has gone away!) - ADHD symptoms returning (have been medicated for this, but it wasn't a problem when gluten free) - Fatigue - Nasal Congestion (though I am a preschool teacher, so this may just be a bug from one of my kids, hard to tell where the sore throats and stuffy noses come from!) - Raynaud's symptoms increasing (I was diagnosed with Raynaud's phenomenon around age 13, screened for some types of LUPUS, etc. I hadn't really noticed it lately, but my gluten-free months were summer, so the colder weather may have something to do with this, so it's auto-immune, so might there be a link?) Questions: What should I expect from my doctor visit? I won't get into details about health insurance, but due to the HMO zoning (I live in Idaho and am insured in New York) I will only be in the proper area to get office visits covered for 3 days. Luckily, even though I'm a new patient, I was allowed to schedule an initial consult with the gastro and then an endoscopy for two days later, even though he hasn't seen me before. But now I'm just worried that I'll get there and he won't want to do the endoscopy, will want to do more testing that will take longer than the 3 days I have. What should I ask during the consult? Is there any specific testing that I should request, should I go prepared with a list of symptoms? I've just not dealt with doctors for celiac disease before, and haven't even been to the doctor in a little over 2 years, so I'm kind of terrified of not asking the right questions, pushing the right buttons, to get what I want, which is ultimately a celiac diagnosis, or the knowledge that it's not what I have. Anyone who has been though this with any advice for me, I would so appreciate it. Even some advice about how to get through the gluten challenge, because I feel like it's already sucked the life out of me and I still have 3 more weeks to go! I apologize for writing a book, I just didn't really know where to start and figured the more you know, the more advice you'd have for me. Thanks in advance for your help