• Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


Advanced Members
  • Content count

  • Joined

  • Last visited

Community Reputation

0 Neutral

About swimmer

  • Rank
    New Community Member
  1. Oh, thanks - just be patient, OK - here's hoping my hair grows back nicely. I suppose hair growing is a slow process. Btw, I've been tested for just about everything possible, all blood tests have been clear - thyroid, celiac disease, diabetes, hormones, everything!
  2. I haven't been diagnosed by my Doctor, my blood test was negative and I'm the test was also negative for anaemia, so he's diagnosed IBS. I've had stomach/bowel problems for as long as I can remember (I'm now 30), particularly bad since I was 17. At the same time, my hair thinned considerably on the top of my head and has never come back. After telling me I wasn't anaemic according to the blood tests, my doctor said I could be mildly anaemic and an iron supplement may help with my hair thinning?!? I've recently started a gluten-free diet and am feeling SIGNIFICANTLY better. I once in the past (unintentionally) did a gluten-free diet for about 6 weeks and this was the only time in my life I've ever been symptom free. Oats upset me too. Any advice about the hair thing?? Thank you
  3. Sadly, don't think I can do the Enterolab tests as I'm from the UK. There doesn't seem to be any similar test over here.
  4. Actually, I'm from the UK and celiac was one of the first things my doctor mentioned (especially as I have Irish grandparents). The rate of celiac can be as high as 1/80 in some parts of Ireland. It's just a shame I was eating a low gluten but not gluten-free diet already when I was first tested. Every time I see him now to say still no better he queries celiac again and then looks at my negative tests. Since my last visit I did a gluten-free diet for 6 weeks (total relief and cure from symptoms - felt better than I EVER have before). Now I'm back eating gluten again and I'm getting sicker and sicker. I'm worried about struggling now to get more tests and a definite diagnosis, especially given those earlier tests and the fact that there can be false negative results. I know I feel better without gluten, but really need to know how strict I need to be on the gluten-free diet - is is celiac or not - to avoid intestinal damage. My symptoms have also been slowly progressing in severity over a long period of years (I'm now 30) and I'm worried that evidence of celiac (via biopsy) may not have fully developed yet (will be ruled out by negative tests) and then I go on to develop it. Worry, worry, worry!!! Thanks for responding.
  5. After many years of ill health, I'm currently waiting to see my doctor to ask for a test for celiac. I had trouble with my BMs even when I was at school. It started with chronic constipation (BMs only once or twice a month), despite being a very fit active person, terrible hayfever and other allergies and pasty pale skin with dark circles under my eyes. In fact, people often used to ask if I felt ill because of how I looked, and it was easier to say yes even though I felt normal. Oh, I also got terrible bouts of wind (gas) throughout childhood. At around 16/17 these problems started to get worse. Suddenly, the gas was more constant and uncontrollable, I started to get urgency with my BMs and I was suffering from recurring styes on my sore itchy eyes. My hair became very thin on the top of my head. (Has never grown back fully). This gradually progressed to become alternating C&D, stomach cramps, fatigue and sleep disturbances (narcopleptic? hallucinations and OBEs). I even had a seizure about a year ago in my sleep after a really bad day of gut cramps. I've experimented with my diet A LOT and the only time I really felt significantly better was when I went gluten-free (and dairy free) for about 6 weeks (total cure). Interestingly, dairy seems to bother me too, but not as much as the wheat. I have Irish grandparents, my dad suffered from D a lot and my grandmother had bowel cancer (I think). My doctor did do a series of blood tests a couple of years ago, including celiac, but they were all negative, although at that time I had drastically reduced my intake of wheat (no bread or pasta), although I can't say I was completely gluten free. I have also had dried, cracked lips and sore eyes going right back through my childhood. Does this sound like celiac. What if my doctor agrees to another blood-test and it is negative also???? Help!!!!!