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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

CaliSparrow

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About CaliSparrow

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  1. BTW, it's been over two years since I've been on here and I am doing MUCH, much better! Even slow progress is progress nevertheless. To all you newbies, may you champion self-care and HANG IN THERE
  2. Hi and thanks! How it came to be is being undiagnosed for 10+ years plus high mercury poisoning, MTHFR, sleep apnea and deficiency of a hormone that helps the kidneys hang onto water (so for many years, I was deprived of nutrition, oxygen, water and poisoned on top of it with a faulty mechanism for detox - as my doctor said, "You're missing all of the foundational building blocks for life!"). Thank goodness I found her. The other doctors just thought I needed psych pills. These are intolerances, not allergies, thank goodness (again :). Most of them are mild but even so, I experience foggy head, inflammation, body aches, "C", an inability to make decisions, emotionality, and sometimes nervous system impediments depending on which food. They all cause different symptoms. If I was to eat something with lemon in it, I can handle that about 1-2 times during the trip and no one would know the difference but me (& even I might not notice because of the foggy head aspect). I expect to eat some of the milder foods on this trip, as it was really a bear avoiding all these foods even in the comfort of my own home. The more that slip in, the more inflammation/symptoms. I really do expect to eat some of these foods (but not gluten!). So it's not life altering but it would definitely be fun altering and potentially miserable. Thanks for your response. I appreciate it. I'm going to contact the cruise ship so that I don't worry so much leading up to the trip. That is also unhealthy for the gut! Cali
  3. Right. I first had gluten-free oats back in '13 shortly after going gluten-free but they hurt my stomach and I haven't had any until just recently. I think they are just rough on the digestive track for some people.
  4. I folks, Have any of you travelled on Princess Cruises with multiple intolerances? I have so many intolerances and right now, I'm very nervous about getting on a ship and having no control over my food. How well does Princess Cruises accommodate those with Celiac & food intolerances? How early should I contact the ship? Please share whatever experiences you have had! Thank you!
  5. When I was first dealing with a gut in disrepair, I was unable to tolerate rice. A few years later, I have added it back in but don't eat a lot of it. Oats are still out of the question.
  6. Sadly, this person was run off by the "moderator" here and I could've benefitted from this person's experience. Anyone else find this to be the case on this board? Very lousy. Grade: F
  7. Thank you for your response. I received iv iron in '09 but there was more of an effort to increase my hemoglobin & iron quickly rather than diagnose the cause. Anywho, it's a good thing you replied because I just realized I bought magnesium instead of iron a few weeks ago. I should be taking this iron twice a day, not magnesium. Maybe that's why I'm so tired! I don't think I would have caught this had you not mentioned the iron. Thank you!
  8. Honey, my intestines are't completely useless and there has been improvement over time. Anyone out there ever done the IV nutritional therapy? If so, I'd love to hear from you. PM me if it's more "convenient".
  9. Hi folks, So my doctor saw a pattern in my old labs and said my body isn't absorbing nutrients and have been this way for years. In addition, I have sleep apnea and my kidneys aren't holding onto water so I'm limited on FOOD, AIR & WATER. The doctor is ordering a CPAP for me and has put me on weekly IV nutritional therapy along with increasing my iron, vitamin D (10,000 IU.) and probiotic supplements. Has anyone had IV nutritional therapy and, if so, how long did it take to start feeling better? I just had my 2nd treatment and it's wiping me out. I'm less active than before and doc says to be careful. :/ Cali
  10. I also found success with the food intolerance blood test. Mine was a different company. As soon as I eliminated those foods, my inflammation calmed and I could raise my arms above my head (literally was in too much pain previously). I still struggle with my health but quelling the constant inflammation has allowed my gut to heal.
  11. Thank you! I wish I had gone through Mayo years ago when a friend of mine recommended it. At the time, I was too ill to figure much out. Looks like the closest one is in Arizona. My doctor is waiting to be certified by Mayo and I assume that means certain testing will be available to her. I had so many doctors at one time who couldn't figure much out and all private practice. It would have been nice to go through a systematic process with a team approach as it sounds like Mayo provides. My cardiologist was going to have me wear a holter. Beating my chest 3-4 xs a day, as odd as it sounds, is raising my heart rate and BP so she wants to see how that pans out. Interestingly, my doctor sent me home with an at-home sleep test a few months ago. You just motivated me to do it! There are a few more tests she's going to run in the next week. She wants me to push over the hump (employ mind/body healthy practices). She has also referred me to a naturopath who she hopes can help me with reactivity. I received my bone density test results yesterday and must begin weight bearing exercises. It's tricky avoiding the heat and the "boom boom" gym across the street would send me to the ceiling. Weightlifting never steered me wrong (an old love affair) and so will start with some dumbbells at the house. This should motivate me towards light cardio. Last night I drank some adaptogen tea that was very relaxing and calming to the nerves. I'm going to research it more. The only thing bothering me right now is my elbow because I slept hard on it all night. You guy's support really helps.
  12. Thank you for your replies everybody. My cardiologist says I have a mild-moderate leak in my tricuspid valve that needs to be monitored. I'm full of symptoms right now and seeing my regular doctor tomorrow. Don't know if the summer heat plays in (and I'm sure stress does) but it feels like I have hot stickers rattling through my body. It's truly shaking me down. I am having difficulty turning down the internal heat and have become fearful of it. I'm rubbing my thymus, drinking cucumber water and sarsaparilla tea. I put my feet in water and am cooled. I am eating every three hours to reduce stress to my adrenals. Those hot stickers go through my heart and I'm concerned about inflammation. It feels like something I should get under control immediately. Saturday my head felt like it had fallen asleep and I was so scared from the symptoms, I was in bed all day (that was before getting my echo results). It makes me wonder if I have another AI or if I'm having adrenal issues. I have no idea. Most of all, I feel desperate to reduce the inflammation in my body because I know it's not good for the heart. I had reintroduced some intolerant foods in March and it's been downhill ever since. I am back on my safe foods only but am having symptoms with some of those now. Any suggestions for reducing inflammation would be appreciated. It feels crucial. *Edit: And no, I did not shoot up with street drugs. That previous cardiologist told me not to shoot up with street drugs and I'd be fine. No follow up. No nothing. What a jerk.
  13. That's so good to hear I can't wait for normal!
  14. I stopped eating out until getting in better control of this thing. I haven't been glutened this year *knock on wood* because, with two lucky exceptions, everything I ate, I prepared myself. It's getting easier to speak up for myself the more I've healed (and with experience). Currently, I let my husband go to battle for me once I begin stuttering but that's happening less and less as I become stronger. He is gluten intolerant and doesn't have as severe a reaction but, because of me, his reaction towards the restaurant is severe when they serve him gluten. As he goes to restaurants with friends and business associates, he educates along the way. Hopefully, he's clearing a path as he doesn't mince words Someone on here says she only goes to fine restaurants because the chains aren't always well-trained (or trained at all). Whenever someone gives me a cavalier attitude, I pass on the meal. I've eaten a little something a few hours before going out with others (with snacks in my purse for later). That way, I'm fed and, if it feels safe to eat in a restaurant, I still have room to make that decision too. I've also gone ahead of time to talk to the manager and can usually get a good sense from that. It's getting easier to tell who understands the seriousness and who doesn't. Use the words "severe celiac" (it elicits a more serious consideration) and there are also restaurant cards to print: http://www.celiactravel.com/cards/english/ I haven't used the card. Like I said, but for a few exceptions, I stopped eating in restaurants until my gut has had more time to heal.