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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About 33Diane

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  1. Thanks for your reply, I guess I will have to call and ask for hard copies sent. I'm frustrated by all this becuase no one has called and i feel the doctor was not too concerned with my symptoms and did my bloodwork in her office after seeing me, and now I read I should have been eating gluten for months, when I maybe had only 2 weeks of it in my system. Maybe I could vent a little and get some feedback? the reason I went to the doctor is because I found I have sciatica - I run (now ran) 20 miles/week and injured my butt/leg from a new pair of shoes 2 months ago, causing me enough pain I had to stop running. I quickly got depressed about 2 weeks into being unable to run and started eating all the regular culprits, pizza, pasta, bread, pastries, etc. Before my injury I did eat this food but only very small quantities, my main diet is meat, vegetables, and diary. So anyways I started bloating and gaining weight quickly. I realized how horrible I felt (constipated, hazy, blurred vision, more and more carb cravings, edema and major brain fog) and remembering how in other times in my life I have felt like this too when eating this food regularly. Especially in my pregnancy, I had extremely severe edema (thought my legs and feet would almost burst open) and gained 70 pounds - I had stopped my regular diet and was eating VERY healthy following the food pyramid specifically. (doctors thought I was lying and living in a McDonald's. Also told me these are just regular preg symptoms, which I understand, but my swelling was so severe I felt something was wrong). So anyways Ive started reading about this and feel there is something to this, I almost want something to be positive just to have vindication that my problems are real and not just in my head. I have some food allergies (mainly nuts now, outgrew allergy to mushrooms and egg whites) and I have almost every environmental allergy possible. Is there a correlation between these types of allergies and celiac? If I go to an allergist instead of a gp, are they more well versed and aware of celiac and food intolerances, and able to test or diagnose you? Or must you see a gp? My mother has had asthma and now severe rheumatoid arthritis, also we are european. She ate carbs most her life, though, while I have cut them out as much as possible for at least 15 years. Now I am scared this type of diet can be a contributing factor to getting her problems? Also recently noticed after my son got spinach all over his face that there was a rash underneath that dried up and stayed red for two days. Autoimmune problems run in our family but when I mentioned that to my gp, she smirked. Anyways very sorry to go on and on, just feeling confused and let down. Before my son, I would just go back to my meat and veg without a second thought, but now that am trying to feed him correctly, offering food from all the food groups, all this food in my face daily and I just don't know if it is okay for me or not. Also still cannot run which is contributing to all this, for whatever reason when I run I can resist eating these grains much better. Mainly I am so concerned if eating this food just makes me fat (which I can learn to deal with), or if it is going to cause me more serious autoimmune issues down the road.
  2. TissuetransglutAminase AB, IGA 1 reference Range u/ml Umunoglobulin A 189 81-463 mg/dl Gliadin (deamidated) AB (IGA) 5 Units This is all the information I can now see posted online for my celiac panel bloodwork. Nobody has called me regarding my results so I am assuming this means I am negative? Could someone help me interpret what the above numbers mean?
  3. Thank you for your story! Did your allergist do any blood testing or was it just pin pricks?
  4. So the cp test should show "intolerance", even if there is no damage? The elimination test is difficult for me as I don't have great will power to resist the large amount of things I would test for, such as most carbs, starches and sugars. Also, other than edema and constipation, my symptoms are so subjective, such as a general overall feeling of being unwell and brain fog. It is just Not scientific enough for me and feels like self diagnosing. I know I feel great on just meat and vegetables, but at this point in my life I want to know if this is just a diet issue, or if there is an internal autoimmune response that can compound into further issues down the road.
  5. I'm new to all this and awaiting my cp results. I've been reading these forums and have a few questions about getting diagnosed/tested. I notice some people label themselves with different allergies or sensitivities to gluten, soy, yeast, dairy, etc. I am curious how do you find this out? Do you see an allergist? Do you get a pin prick test or blood work? Does your gp help you figure this out? If my cp is neg for celiac, can it still show intolerance, or is that another test? I personally don't think I will be positive for celiac, but I think I have an intolerance or sensitivity (is that the same thing?) to something. My symptoms are more constipation, bloating, mental fog, tiredness, and difficulty keeping my weight down, despite intense exercise. I always though my problem was just "carbs" and only could distinguish that I ate some carb (bread, pasta, etc), which is why I felt bad. I have tried to be low carb for years. Now I do think it is more specifically related to wheat, but wonder about yeast and soy as I see others mentioning them. I have a large amount of environmental allergies and food allergies to nuts and egg whites. However the last I was tested for food allergies was 30 years ago. If it is not celiac, how do you find out what it is?
  6. Sciatica

    This is an interesting topic. I just got diagnosed with sciatica and am also waiting for results to see if I have celiac. It will be interesting if there is a connection.
  7. Yes that makes sense, thank you for the explanation! I will post when I get full results then. I wonder why I can't see the numbers that really matter! Guess I have to wait till Monday after all
  8. Thank you for your reply! Those are the only numbers that are displayed. So I guess some info is still missing? It was the "celiac panel" blood test and my doctor's office website lets me go on and see the results of bloodwork, but the above info is all I see. So this number being in the normal range still does not rule out celiac?
  9. Hello, I got the results of my celiac panel blood test today and can't wait till Monday to ask my gp what the results mean! Please can someone help me interpret this: Immunoglubulin A gliadin (deamidated) IGA