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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

TammyTE

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  1. Just got off the phone with them. So frustrating. I logged a complaint but I doubt it accomplishes anything. She said I can always call and check on a product. I told her that defeats the purpose of labels. I can't call every single time I purchase and what if they change facilities after I have checked an item? I said I felt that this was a purposeful attempt by Aldi to make consumers believe there was something special about this product. Wow! A gluten-free item that is affordable?! Thank you Aldi! When in fact they could harm my child with these misleading labels. It's one thing if they advertise it on the front that it's a naturally gluten-free food. But to go to the trouble of making a logo that is so very similar to the gluten-free certified logo and strategically place it under the ingredients is imo criminal. again, I doubt they care. ....sigh
  2. I went to Aldi because friends said they had a lot of gluten-free items. I bought Clancy's cheese curls thinking they were gluten-free but when I double checked before feeding my daughter the gluten-free logo looked different to me. It has the wheat in a box and gluten free is in a box next to that. The word naturally is above the box and the word food is below the box. It is located under the ingredient label. It does not say anywhere that it is processed in a facility that has wheat. I emailed Aldo and they checked with the supplier. Here is their reply. "The Clancy Cheese Puffs are produced in a facility that produces pretzels using wheat flour which are not gluten free." is this label just a misleading advertisement or what? I'm not worries about her not getting cheese curls. Lol but their rice is labeled the same way. I didn't buy the rice so I couldn't inquire about that product. I tried posting a pic of the label but am not having good luck with that.
  3. Ha ha....determined woman. Yep. That's me. Thanks for the encouragement. I was hoping to find some really easy fix that I had possibly missed. ;-) I do try to take a peek before she flushes. Thankfully she forgets to flush and I honestly don't try to change it because I at least get to see it! One of the zillion things I never thought I would be doing as a mother. LOL
  4. Interesting about the rinsing. Thankfully my kids all eat pretty well. Lots of good fats and plenty of veggies. I just use rice as a filler to help meals stretch and keep them full. We don't do a lot of gluten-free breads because most of the those have egg and my youngest is allergic to eggs and they are expensive. ;-) I need to try to do some white potatoes and sweet potatoes so I don't rely on rice so much but rice is just so EASY!
  5. Thanks Peter, for clarifying that.
  6. After the initial blood test we went to the GI doctor thinking that's what we should do next. She laughed at us so we haven't seen anyone specifically about it since. Last Summer we had an appt with a pediatric dermatologist but I figured out the oat thing the night before. We went to the appt anyway and that doc agreed that it could be the oats, wrote us a script for steroid cream that we never filled and we left. Took her of the Quaker Oats and switched to BRM and she cleared up quickly. She hasn't had any eczema until we switched to this new brand of rice, so I am 99% sure that it's the culprit. She was just turned 2yo at the original test and had been eating something with gluten every day for 4 months prior to the test. We eat dairy quite often and she doesn't seem to have any problem with it. I used to be lactose intolerant (nothing huge. Just lots of mucous and sometimes bowel issues when I ate it.) but since I went gluten-free with the kids I can eat dairy with NO problems at all. I thought that was interesting. I have done food journals and that's how I figured out the eggs, peanuts and possibly avocado. It was just easier when she was in diapers since some of her stuff is poop related. LOL I guess I can do a food journal again. Oh and as far as the environmental factors...yeah, the eczema started during county fair week. She had been visiting the goats and horses and chickens. Had gotten a lemon shake up at a booth. It took me a while to figure out the rice because I was thinking maybe it was the fair. I contacted the lemon shake up booth to triple check ingredients. It was driving me nuts. Then I remembered we had switched rice.
  7. The test that was done was "celiac and gluten sensitivity from Genova Diagnostics. They tested: Biomarker: Result: Reference Range Total IgA 68 Sufficient 17-94 IgA (tTG IgA) <1.2 Negative <4.0 U/mL IgA (DGP IgA) 2 Negative <20 U/mL IgA (AGA IgA) 3 Negative <20 U/mL IgG (AGA IgG) 34 Strong Positive <20 U/mL It said "patient results are consistent with gluten sensitivity. There is a chart to flow through at the bottom. She had enough in her system to make the test work. Her tTG and DGP were both negative so that meant she was NOT celiac. Her AGA was positive which meant there was gluten sensitivity. My other kids had similar results but this NP said because my youngest was so young and had only eaten gluten for such a short period of time she believed my dd was going to be more sensitive than the other dc. Which seems to be the case. So are you saying this test is not legit? I'm not trying to argue. I genuinely want to know what you think.
  8. Interesting about the arsenic. Thanks. We already opened the packages and put the rice into a 5 gal food grade bucket to store. So I doubt we can take it back. I just called Costco to ask what the name of the other brand of basmatti is. It is Kirkland Signature (their store brand). I talked with the lady about it and she suggested I bring the other rice back in trash bags. Seriously! I can't believe they would take it back, but she was super nice about it and said that the package should have been clear. She gave me a number to call and their brand is processed in a wheat free facility! woo hoo! Now I just need to drive there. LOL
  9. She had the blood test in 2012 after being on grains for four months. It did say positive for gluten intolerance but not celiac. The Nurse Practitioner said that I should treat her as true celiac because she had ingested such a small amount of grains for such a small amount of time in her short life at the time. She really believed that my dd was celiac. I took her to a pediatric GI doctor because I thought maybe that's what I should do. The GI doctor laughed at the test and said "they" don't use those anymore and my dd was not even gluten intolerant....sigh. So I have just been muddling my way through, basically treating all the kids the same when it came to gluten. I tried to find gluten free but as long as it wasn't in the ingredients and was something that is naturally gluten-free I went with it. Well, my youngest DOES seem to be more sensitive than the others, just like the first NP said. I'm just having trouble knowing what actually affects her. Her symptoms so far have been the weird poop and eczema. When she was younger she was very thin and gaunt but I think taking peanuts and eggs out of her diet helped with that problem. Now she is a chunk and overall seems healthy. She does have weird poop at times but there is no rhyme or reason that I have figured out. Partly because I don't always see before she flushes. Now, my 6 year old is still quite small and has had broken bones, dislocations and seems overall frail compared to my other kids but I don't know if that's just "her" or if it's related to gluten or something else. They all pretty much eat the same foods (except the egg and peanut thing for youngest). My 6yo tends to eat less than everyone else. I dunno. I'm just at a loss as to how to know what hurts them and what doesn't. Do I just do my best and wait till she is older so she can tell more?
  10. I had no idea about the rinsing. Makes sense if I think about it. oops <blush> Why limit brown vs. white? We use basmati as I have read it is lower glycemic.
  11. Thanks, I'll have to look into Lundberg Farms. I order gluten-free oats through a local amish store. I can see if they can get this brand. Thanks! I can't remember the brand we were using from Costco. It was in a purple/black plastic bag. It seemed to be okay but now I am just wanting to make sure the rice we use is gluten-free so there is no question. Especially since we use so much of it. I have never rinsed rice. I guess I should start. I might know a good family friend that would be interested in buying the rice at a discount. I tried giving it to another friend whose husband recently lost his job but apparently they don't eat much rice. ??
  12. I have five children. We started down the "dietary issues" path several years ago when I discovered that artificial dyes and preservatives affect my oldest two. That was 2007. Over the years we have done various elimination diets trying to figure things out. But most of the symptoms were behavioral and then some things like bedwetting, under eye circles and eczema. By the time I really suspected grains I had just had my fifth child. She seems to be the most sensitive. She is also allergic to peanuts and eggs and might also be allergic to avocados but I haven't tested that yet. She is 3 1/2 years old. I used to notice that her poop seemed "off" when I would change diapers. It was just a weird consistency, hard to explain. When she accidentally gets something with egg in it she will get eczema behind her knees. It goes away within a few days as long as she doesn't eat that again. Last summer she got some behind her knees and I figured she must have gotten something with eggs. But it didn't go away. It got worse and worse and we couldn't figure it out. By the end of summer her legs were covered and it was going to her arms and body. Her legs were cracked and bleeding. I finally figured out it was Quaker Oats. My other dc were eating them but not showing any major problems. She was potty trained so I wasn't seeing any poopy diapers to notice anything. Once we removed the oats and switched to BRM she began to clear up within the week and by 4 weeks she was completely clear. About a month ago she started getting eczema behind her knees. I "knew" it was food related but could not figure it out. It was getting worse and worse. I finally figured out we had bought a new brand of rice. Contacted the company and it is packaged in a facility that processes wheat. So I'm pretty sure that is the culprit. We took that out of her diet and I found some other rice. That company can't guarantee it's gluten-free though. (ugh) Her eczema isn't going away though! It's only just now been a week so I am hoping that it will get better soon. If you have read this far thank you! All that to say....HOW do we KNOW what is going on with our little ones? She has never said to me that her belly hurts. But sometimes I will notice "streaks" on her underwear and I am thinking that maybe she is getting the weird mushy poop. I don't seem to notice a problem until it's been in her system for a good while. Looking back I wonder if some behavioral (mood) problems are from gluten but I'm not sure. I don't know that she knows what feeling good is like. Ya know? Would love some tips!
  13. Oh and I am unsure of what to do with the 40lbs of rice we have. My four older kids are gluten intolerant and don't seem as sensitive as my youngest. She is the one that reacted to this rice. On one hand, I feel uncomfortable give this rice to the older kids knowing they are sensitive and knowing it is cross contaminated. We eat a lot of rice. But that's a lot of rice to waste.
  14. We purchased rice at Costco (several pounds of it actually) and my daughter reacted to it. Zafarani is the brand name. I went to the company's website and they have a general blurb about how rice is a naturally gluten free food but nothing specifically stating it is gluten free. I called the company and sure enough, it is processed in a facility with wheat. I emailed them later to suggest they put on their packaging "processed in a facility that processes wheat" but haven't heard back. We had been eating another brand with no troubles but it was not marked gluten free either. I also got it at Costco which is an hour away, so in the mean time I was just going to get some smaller packages locally. None of the packages were marked gluten free, so I called Kroger and the lady there said that the package has to say "may contain wheat" if processed in the same facility. But then she changed it a bit and said if processed on the same line. She said their rice is "a gluten free food" but she couldn't guarantee it was not processed on the same line as wheat. I left the conversation not knowing. Can anyone tell me what the rule is supposed to be? Are there any companies that produce rice where I can buy in bulk? It's our cheap "filler" food here. Thanks! ~Tammy
  15. Thanks for helping me think it through. We are primarily using sunflower seed butter from Trader Joe's. My other kids are not the best at keeping PB out of 2yo's reach. ;-) We haven't had eggs in the house but recently my husband fixed some. 2yo somehow got in contact and had eczema and diarrhea. So I might keep eggs in the house and use them *in* stuff but probably not doing scrambled eggs anytime soon. LOL Dairy - You know....I'm pretty sure I am lactose intolerant. When I eat dairy I get lots of mucous and am constantly clearing my throat. Often times ice cream or a glass of milk will send me straight to the bathroom. My sister is lact. int. wore than that. When we eliminated dairy before I noticed my ds and I having the worst gas pains and such when trying a glass of milk. Interestingly, we did pretty good with raw milk, but it was pricey so we just went dairy free. ;-) So maybe I should take our dairy for a bit. I wonder if just taking out all dairy except butter would work. We were eating small amounts of butter before and seemed to do okay. It seems to be milk mostly that disagrees with some of us. In your experience would it be better to go completely dairy free for a time just to help things heal faster or would that make a difference? I don't have a problem going gluten-free really. In a lot of ways, it's been a lot more stressful not knowing what to feed everyone than being on a restricted diet. I have lots of great recipes that my kids love. Thankfully they are all great eaters. That's one thing all these diets have done for us.