• Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


Advanced Members
  • Content count

  • Joined

  • Last visited

Community Reputation

0 Neutral

About lynnieloo

  • Rank
    New Community Member
  1. Glutening Reactions

    I'm having my first reaction since starting gluten-free diet after Dx and I do want to die. Will this wanting to die possibly last 3-5 weeks? Oh, say it isn't so! How long did it take you to be able to determine what the offending substance was so that you could begin tracking reaction times?
  2. Sailing Along Then....wham!

    I am right there with you, yesterday and today . . . my gut and my low back are hurting so badly I just want to die. The two things I ingested that i'm now questioning are a bowl of chili I thawed and ate on Saturday night (which I made (checking all ingredients for gluten-free), ate a bowl without incident, and froze) and some Gas-x taken yesterday around lunch. I definitely think I've been glutened - this is the first time since I was Dx'd and started gluten-free diet. This is as bad or worse than when I was not eating gluten-free! What do you do when you hurt this bad to get some relief???
  3. I don't know if this could have anything to do with it, but you mentioned you are still breastfeeding (good for you!) . . . . what is your baby eating other than breastmilk? If it contains gluten, could you be absorbing that? I'm really new (Dx'd 2 weeks ago) so this may be a crazy thought . . . .
  4. I have just been Dx'd with celiac. My tummy has been so upset for several months that I just quit taking my vitamins. Based on the celiac Dx, I probably wasn't benefiting from them anyway. Which brings me to my question . . . how long should I wait to start taking them again? They say it could take my old bod 2-3 years to repair itself. Is taking supplements before healing doing any good?
  5. I hope your iron infusions are going well. I had the first try iron infusion around 2005 - had an anafalactic (sp??) response to the test dose, BP dropped to 20/40 and they nearly lost me - it was the kind of iron that takes awhile to infuse. So, I didn't have that infusion. In May of 2007, I went for another try because there is another formulation that they don't have problems with and it takes a lot less time for the infusion - I went once a week for 5 wks. I was very sick for about 3-5 months after, but I cannot say with certainty that it was the iron. Because of the celiac, which I was just diagnosed with last week, the iron infusion didn't really do much good. I am actually considering going for this again after I've given my body time to heal so that it can absorb the iron properly. I wouldn't go on an empty stomach. My dr's office had snacks and beverages, but nothing gluten-free, so BYO! The benadryl didn't make me dopey and I could go about my daily routine upon leaving the dr's office. Don't even think about taking off your nail polish! How long have you been on the gluten-free diet? Did your dr. recommend the iron infusion? I'm wondering at what point to revisit this.
  6. Thank you all for your responses. I had to go to the dr. yesterday because I have the respiratory crud. I mentioned the sores in my nose to her and she said they could be celiac-related. She told me to use neosporin just inside the nostril, which I am starting. I am a bit anxious to see what the antibiotic she prescribed does to my tummy over the course of treatment. It seems that anything that will affect a person's tummy affects mine way more intensely . . .
  7. I just received my Dx last week and have been gluten-free for 7 days . . . thankfully, the pain in my gut has subsided. However, i noticed one of the symptoms of celiac is mouth sores. I don't have these, but i have been having chronic sores in my nose for months. Does anyone else have this? Do these issues resolve themselves as the body heals? In the meantime, how do you treat?