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About Heather_707

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  1. Anyone have vacation destination suggestions with a Celiac 2 year old? Hoping to find something beachy within a 4 hour flight of NYC. As an adult, I'm willing to rough it - I'm sure I can just eat salads constantly if fall else fails. For a toddler, not so much. (he's not picky, but I'm still concerned about our options..... ). Really don't want to do a cruise and not ready for the crowds of Disney World..... Thanks in advance if you have any ideas!
  2. wow, thank you for sharing. I can definitely relate and our stories are similar. I've had stomach issues my whole life and no one ever suggested Celiac. I just had positive Gliadin results on my bloodwork recently and now it all adds up. The only way I figured it out with my son was by switching him to Nutramigen Hypoallergenic formula and then slowly introducing food. Because he's been gluten free so long, I can't really get a positive Celiac diagnosis and doctors will continue to give me the "If it works for you, that's fine, but I think you might be nuts" look.
  3. I second the oat comment. 10% of Celiacs can't handle oats, my LO included. The reaction certainly isn't as obvious, but is definitely a problem.
  4. Anyone else have a child that clearly was getting gluten through breast milk and very seriously reacting? That's how it all started with us. No one ever suggested I take gluten out of my diet and I had no idea what Celiac even was. It got so bad that my LO stopped eating for days before the doctor finally had me put him on hypoallergenic formula. I get so many comments from doctors like "gluten can't pass through breast milk" to "kids can't get Celiac symptoms until they're much older" which is all clearly untrue. Just wondered if I'm alone over here!