Does anyone know someone who has this rare neurological disorder? I have a brother who has leigh's syndrome and am trying to see if there could be a possible link to celiac or gluten intolerance. I recently discovered that I have a strong intolerance, haven't been tested yet, but my health has tremendously improved since removing gluten. My family history is full of symptoms like type 1 diabetes, infertility, arthritis, dental issues, obesity/overweight, acne, poor vision, and more. No one has ever thought of getting checked and most don't even know what gluten is. I'm the first to go gluten free and research the subject.
My brother got the chickenpox virus when he was a year old and that is what set off his Leigh's Syndrome. For years they weren't sure exactly what was wrong with him. The doctors thought he would only live to 10. He is 30 now, but extremely dibelitated in a wheel chair. I've read a lot on how a Gluten Intolerance can cause neurological disorders and am wondering if that could be related to something like Leigh's? It's one of those rare diseases that is linked to genes and mitochondrial disease, which in turn has been linked to food intolerance.
Any help would be appreciated.