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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About ruthie_ray

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  1. Hi All, I was diagnosed with Celiac disease in early March and have been gluten-free since that time. I was already a fairly healthy eater before going gluten-free. I don't buy any of the gluten-free snacks/prepackaged goods. I mostly eat only foods that are naturally gluten-free, with the exception of Chex and a few peices of chocolate here and there. Most of my diet consists of Grilled/baked fishes and chicken, potatos, gluten-free rice, some red meat or ground turkey, 2 egg and spinach, pepper, mushroom, omeletts, salads, tacos with grilled meat on steamed corn tortillas, beans, nuts, fruits, smoothies that I I know are low-cal, since I make them myself with fruit and a little bit of yogurt, yogurt, string cheeses. I have my occasional chocolate (which is gluten-free) and my big VICE is coke-a-cola, since I allow myself 2 each day. I am 100% sure that my calorie intake and food (in amount) has decreased since turning Celiac. I work out 3-5 days a week, walking approximately 6-8 miles/week along with mild strength training. It is so frustrating that I have gained such a large amount of weight, in such a short amount of time, when I am consuming LESS calories. I count them in everything I eat and prepare. I've gone from about 280 calories in drinks (2 cokes) + 1500 in food to 280 calories in drinks to 1100 in food calories and my workout is the same. I've gained 16 lbs in 4 months. Nothing in my closet fits. I'm going to cut out the 280 beverage calories and switch to coffee with only 30 calories of creamer and see if that helps, but as I said, I've already reduced my calories and I'm packing on the pounds. I'm wondering if going gluten-free is affecting my metabolism in other ways or if I was so malnurished (I was likely Celiac for about 10 years) that my body feels obligated to pack on the pounds from the nutrients I am now getting. If anyone has experienced this and has a herb or something you can take to balance everything out, please let me know. Thanks, Ruth
  2. Dear KHickson, I was diagnosed celiac in March 2013. I have suffered with constipation for 1/2 my life and usually am more backed up than "lose". Sorry for the details, but the question required this sort of answer. My answer is yes. I am slightly less constipated now that I am on a gluten-free diet. Constipation can be a symptom of celiac, but most celiacs have the opposite problem. They thought I had other tummy troubles, but never could pinpoint them. I sought my celiac diagnosis after unexplained excema, arthritis and headaches. All 3 other issues went away since gluten-free after my March 2013 Celiac diagnosis. Constipation is better, but not 100% cured. Water seems to help with that. Water...Water....Water. Good like in finding out what is going on.
  3. Hi. I suggest that instead of going 98-99 % gluten free that you go 100% gluten free. I am only 3 + months into this, but have noticed many symptoms go away and the "Mental Fog" go away. One thing to consider...do you also drink/eat aspartame products. Prior to my celiac diagosis, I went off of diet soda and that signficantly improved my mental clarity. I would suggest that if you consume aspartame products. It actually made a huge difference in my professional life, as while on diet soda, I was only working with 1/2 a brain. If you are not on aspartame, then try 100% gluten-free, and perhaps go on a raw diet for a few weeks and see if it helps you get out of the funk. Water, Water Water. Good luck.
  4. Hi, I was diagnosed with Celiac disease on March 10, 2013, so I'm a nubee. Since that time, I've adhered to a very strict gluten-free diet. I've had to recreate meal times, but my excema went away as did my arthritis and many of my tummy troubles. My anemia is slowly getting better. In the past week or two, I've started to experience moderate nerve pain in my feet (mostly), but also my lower back and legs, with some mild tingling and numbness associated with the pain. It was consistent with the type of pain I experienced before with the arthritis, only with more nerve pain. I do not think I ate any gluten, as I am very careful, and careful when cooking gluten for my family and careful with other products such as cosmetics, etc. Is it possible that celiac could cause the nerve pain and is there any reason this would "flare" up after I have been gluten-free, except for the accidental gluten I ate on May 2nd. :-) It's been 6+ weeks, so I don't think that would cause the nerve pain this far down the road. Anyone else experience this. Thanks. Ruthie
  5. Hi Tamber, I've only been diagnosed for about 5 weeks. I had mild digestive symptoms, almost not enough to consider the agony of removing gluten from my diet. I am a bread lover. I've been gluten free for about 5 weeks, accidentially ingesting gluten once about 2 weeks ago. Having been off of gluten when I ingested it, I noticed a difference within an hour of eating. My stomach was cramping and bloated, etc. Although my digestive symptoms were not major, I had a miriad of other minor health issues that improved, such as anemia, excema, migranes, etc. You may find that although you do not have any major symptoms, you still may not be aware of some minor issues that could be resolved and improve the quality of your life. It's not a matter of "if" you have major problems if left untreated, but "when". If you continue to eat gluten, even with only minor or no symptoms and you are a diagnosed Celiac patient, then you will continue to damage your intestines, have decreased nutrient absorbtion and lower your immune system. You will be at greater risk for cancer, and other autoimmune related complications. My suggestion would be to learn to live with it the best you can and learn how to eat out without cheating. My family and I eat out more than 1xweek. We go to places where I know I can eat something safe. I read their websites, I call the specific location, or I ask to speak to someone who is knowledgable about the menu. Once you have 4 or 5 places you are comfortable with, you won't feel so deprived. For quick places, Chic-fil-a as a dedicated french fryer for gluten free fries, grilled chicken and a salad (no croutons). Five Guys offers a gluten free burger that they wrap in lettuce and also has a decicated french fryer. I love 5 Guys because for no extra $, they will grill mushrooms, onions, etc. w/your burger and wrap it all in lettuce. My local Wendy's has some Gluten free options too. Check with each local spot you like for what they have. My local Mexican Food joint uses gluten free corn tortillas. I've confirmed with them that their carnitas and beans are also Gluten free. I get the carnitas meal twice a month on corn tortillas, with beans and cheese. (I skip the rice, since they said they cannot confirm it is gluten free and have them give me double beans or a side salad instead). I can go to a steak house and get filet, baked potato and salad (all gluten free), just watch for certain dressings, all croutons and some other extras that could blow it. If in doubt, I do not eat it. Think of the items you already eat, like potatoes and corn that are naturally gluten free and get creative with those, rather than just cutting out gluten. I have gotten crazy with corn tortillas and potatoes, making wraps, stuffed potatoes, etc. I try not to complicate dinner too. I made fried chicken with rice flour this week and it was wonderful. Easy swap and I did not feel deprived. Good Luck. You will have to take it seriously and take the plunge without cheating in order to avoid more serious complications in the future.
  6. I don't have a lot of info to provide, since I was only diagnosed on Monday, but I have two small children and feel for you. Hope you get it figured out soon and your daughter's pain goes away. Good luck.
  7. Hi Cara, Thanks for the info. I was only on a "gluten-light" diet for a week or so leading up to the testing since I was starting to assume that I could have Celiac disease. Now that I have a confirmed diagnosis, I plan to treat it like a life-long issue rather than a temporary test. I will find it hard with certain things, like holidays. We spend Thanksgiving and Christmas with my husbands family out of state and they are all overweight and on the SAD diet. I already had trouble and usually feel sick by the end of our 7-10 day visit, since all they eat are mostly starchy, unhealthy foods with an occiasional frozen veggie or canned veggie thrown in. They are from Cincinatti and a mealtime favorite in Ohio is Chili poured over Spaghetti noodles. I've never eaten it, but I always feel so rude, running to the store once we land on the plane and picking up some fresh veggies and healthy snacks for my kids while we are in town. At Thanksgiving, I eat the turkey and always make a side salad and everything else is white or yellow on the table, but my green beans and salad. My husband has become so much more healthy since we were married and now he is even a juicer, but still hard at the holidays. While at home, it should be easy. I work from home and have the freedom to make my own lunch each day. I've addressed all of the obvious items, like breads, rices with hidden gluten, corn products with hidden gluten, etc. The hard part will be odd things that I may have never thought contained gluten, like spice mixes or marinades that I use for my meat. I was able to locate some gluten free brown rice, made a stirfry with some gluten free mardinade I found at the store. I think I may be trying some new products just to get some variety. Thanks for the info and reminder that it isn't something to take likely. My next step this week is finding new make-ups. I haven't been wearing much this week, except minersals which say they are gluten free and burts bees lipgloss which said it was too. Unfortunately, I think I have to buy new eyeshaddow, foundations, liners, mascara, etc. since most did not appear to be gluten-free.
  8. Thanks for the info. I'm going to try the gluten-free diet. I'm pretty disciplined, so I think I can stick to it, but I feel like to need to educate myself, since I use a ton of lotions, make-up, lip products, hair care, etc. and I'm worried I'll accidentally ingest gluten unintentionally. Been looking for some good information to see which of my products might contain gluten or what some of the code words in products are to determine if they contain gluten. Thanks again.
  9. They did check my iron. I've been sort of chronically anemic for a few years and supplements haven't been working, so they said my iron was low. I am low in B12 and deficient in vitamin K. Over the years there has been many times when I've had low iron, low B12, and every time, I was told to take supplements. I eat lots of healthy foods, I'm already on (for more than a year) a almost 40-50% fruits/veggies diet and I juice 1 meal each day, eating all fiber, pulp with spinach, kahl, celery, cucumber, apples, ginger, strawberries, bluberries, lemon. Unfortunately, on the side of my large juice, was a little cheese and whole wheat crackers, chock full of gluten. At breakfast, I usually have fruit and a Whole grain english muffin. At dinner, a salad or a few veggies servings, protein and something whole grain. I buy hormone free dairy and meat. Thought I was healthy eater, but oddly didn't feel great and had all of these weird issues and skin probs. I'm just glad to know that if I cut out gluten it might make a difference. Thanks for the info. I'm trying the gluten free diet. Need to head over to "Sprouts" tonight. Thanks
  10. Blood Test Results

    It may not be extremely serious, and since they said non-urgent, it's likely not life-threatening. I've had to make some non-urgent appointments to be told, I was hypoglycemic, had a bad pap smear that required follow up, had eleveated, ANA's, all required a non-urgent appoint to give me the results. Don't sweat it until you know what it is. Good luck.
  11. Hi All, I just joined this forum today. I was just given the news by my doctor yesterday that I tested positive for Celiac. He said that my Endomysial Antibody IgA, t-Transglutamines (tTG) was >100 positive along with Immunoglobulin A, Qn, Serum 436. I was already on a low-gluten diet for a week or two leading up to the testing, since I had a hunch that is what is was and so did the immunologist. In the past year, I've been to a rhuematologist, dermatologist, family physician, etc. all treating my symptoms, so I figured that something was causing it all. I've always had some constipation and bowel issues, skin issues, blood sugar problems, chronic anemia, but in the past 12 months, I started to develop joint pain and inflammation, had elevated ANA levels, confused RA docs, along with exzema. The immunologist does not feel that a biopsy is necessary, since he feels the test results were obvious enough to him to just start a gluten free diet. Did anyone else have a physican give a Celiac diagnosis w/out a biopsy? Thanks, Ruth