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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Nikki2777

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Nikki2777 last won the day on June 3 2016

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  1. Reporting back that i have had them several times now, with no problem. I dust off the bag with a napkin before i open it, just in case they used tongs to take it out of the oven, but in general it seems very safe. Seriously - this is a huge win for me, and likely for others. Thank you, Starbucks!
  2. I know they're brand new, but has anyone with Celiac tried the gluten-free Breakfast Sandwiches with Canadian Bacon that Starbucks just introduced? I asked at my local Sbux this morning and while they are packaged on arrival, they seem to be heated up on a new sheet of paper but in a shared oven (microwave?) The barista suggested maybe taking it up to my office and microwaving it there, but couldn't confirm that their 'oven' is a microwave vs. something else. The Starbucks press release says there's no risk of cross-contamination but I know better than to risk it without checking in with you smart folks. A good, readily accessible breakfast sandwich would be life-changing for me ;-)
  3. There's a gluten free drug list you can google; I've used it many times. I take Mylan brand generic Levothyroxine, which was on that list -- that said, I periodically re-check that it's still on there (haven't lately) And while I can't swear I haven't seen any reaction (based on my normal symptoms), my blood tests come back fine.
  4. I've done a search but can't find much recent -- the older posts that I've found here on Carmex and Burts Bees seem to say that these are safe, but when I go to Carmex's website, there's nothing (I've e-mailed them, but don't have a response yet) and Burts Bees says shared lines, etc. Does anyone have recommendations for something I can use that is currently known to be gluten fee (drugstore brand, please)? My lips are sooo dry!
  5. I go to my inlaws every year for the holiday. They love to cook and they're very conscientious at this point about my issues, but I generally bring up my own breakfast cereal and gluten free bread (and some wine!). When I'm up there, I head to the grocery store and get some packaged cold cuts so I can make myself a sandwich when I need to, some yogurt and gluten free pretzels to munch on when everyone else is snacking. When they make eggs, I wash out the skillet beforehand and ask that they use a fresh bar of butter to grease the pan. I agree on the foil or parchment. But basically, I don't try to replicate their meals - it's too much work and makes them self-conscious. I just opt out of what they're having and fix myself a sandwich. It's 5 days of inconvenience, but it's ok.
  6. I've started using one called Epicured (getepicured.com). it was designed to be a low FODMAPS food service, but it's also 100% gluten-free. The food is generally very good, though it can be pricey. I don't know if they're nationwide yet (they're only launched in July, I think). Those are prepared meals. For meal prep delivery, Green Chef has a gluten-free plan, though it's a shared facility. Food is good. We also use Blue Apron - while there are some things i can't eat, I can often make substitutions, and they're very specific in their ingredient labeling (I've called them to discuss). Customer service is excellent and most meals are delicious.
  7. Breakfast on the go is always trickiest for me - I go with a whole fruit - banana, apple - or a yogurt, or a small bag of nuts. Occasionally, I have a couple of hardboiled eggs at my local pret a manger. Much prefer breakfast at home, where I can make myself an egg and cheese sandwich with avocado on gluten free toast. Or cereal ;-)
  8. I know what you're going through - it's that grieving process and it's tough. I was diagnosed in 2013, and aside from an occasional pity party, I don't look back. I have my restaurants where I feel safe, I have the food I know I can eat, and I get on with my life. I'm lucky that I live in a big city with lots of options, but you can make this work, and you will feel better and once you do, you'll stop grieving. The people on this site helped enormously. It is tough in the beginning to know if you've been 'glutened' vs. just going through withdrawal. For that reason alone, it's best to avoid restaurants for a little while and be careful at home - just to be sure what's happening. Eventually you'll be able to get back to your version of 'normal'. Oh, I also have hypothyroid/hashimoto's. No big deal, I take synthroid. Quinoa, eggs, nuts and beans for protein. You don't have to go crazy on the cooking. Just eat a lot of whole foods. There are a lot of complicated recipes out there, but now may not be the time. Rice noodles in veggie bouillon - easy and cheap. gluten-free pasta with olive oil, parmesan and garlic - easy. I eat a lot of rice and have never had a problem - you're not getting it out of one of those bulk bins, are you? That could be contaminated. Go with packaged. Do you have access to the Macro Vegetarian brand of prepared rice dishes (in the refrigerated section). They have several that are gluten free, they're delicious heated and with a little gluten-free soy sauce. They're my go to on days I don't want to cook. Good luck!
  9. In our house, I have a separate cutting board, toaster oven and grill/panini maker. I also rinse out pots and pans before using them because my teenager isn't the best at handwashing things out after he makes ramen. We have stainless pots though - I might be more concerned if we had non-stick as they can get scratched up and gluten can hide in the scratches. I have separate jam jars and butter, and squeeze mayo, but we share other things and everyone knows to scoop things (like hummus) into a bowl before dipping into them. More and more of our snacks are gluten free, because the kids actually prefer gluten-free pretzels to regular ones. Oh, and I no longer allow regular, delivery pizza into the house because no one is careful about the crumbs. We don't drink beer, either, but if we did I'd probably require separate glasses for that. You get used to it.
  10. I have gotten glutened from kissing - my husband after he had eaten pizza and I'm sure some crust dust was still on his lips. That said, I doubt if he's just had tea that you would have a risk. Maybe see if you can get him to drink some water, too, just because he's likely to drink a higher volume of that. You could 'accidentally' spill a glass of water at his face to rinse the lips off ;-)
  11. Recent reports that many probiotics labeled gluten free may not actually be. I don't recall names but you can probably google it - it was in the news over the last month. Really frightening how many people were likely harmed by this. And as for the brats on the rollers, you can't know what else has been there, how they clean - even if there's no beer brats on there now, how do you know they weren't recently? The only place I can imagine buying dogs off the rollers is a place I know that only uses gluten-free hot dogs.
  12. Most likely it was the flour, as everyone has said -- as for me, there is no more regular flour in my house. I bake often with gluten-free 1-1 flours, and the kids love what I make, but I don't try and make buns or anything like that, mostly cookies and brownies. I stopped using regular flour when I watched it float up out of the mixing bowl and land all over the counter when blending. However, I just want to add that I find pumpkin seeds difficult to digest. This started before I had active Celiac, as far as I can tell. That may have added to the difficulty.
  13. I heard a rumor (?) once that you had to be careful ordering baked potato in a restaurant because some restaurants coat the skins in something to make them cook faster, and this coating has gluten in it. I do eat the skins, so I've been asking when I eat out and order one, but the waiters generally look at me like I'm crazy. Does anyone know if this is a real thing?
  14. Following up on the garbanzo bean thing - one of my favorite 'recipes' is a salad with a can of chickpeas (drained), some feta cheese, red onion, drizzle with olive oil and add in some sort of greek or italian seasonings/herbs. If I'm feeling the need for more protein, I might add in a hard boiled egg or some tuna - making it a bit like a nicoise. No weird ingredients, but so easy and tasty. My whole (non-celiac) family loves it.
  15. Love your attitude - it will really help you going forward (I was you three years ago...) Don't be surprised as time goes on if you have a lull in your fortitude. Every once in a while I see (or smell!) a food I really miss, or have an accidental glutening that sets me back, or someone that doesn't understand my issues and thinks I'm a faddist. I've learned to let myself have a sulk and a pity party and then move on. Good luck!