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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About jacksonsmummy

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  1. I never said that the breads and cereals were naturally nutritious ...... That is why they are fortified! Most gluten-free replacements are not so her point was that with out proper supervision and education people who eliminate the gluten and simply replace them with gluten-free food replacements run the risk of not getting what they need. Dr Fasano was in agreement. It wasn't a judgment on how anyone is feeding thier children.
  2. I am not arguing with anyone, just adding some info from our Dr. I am new here and new to this issue think I shall just lurk
  3. This was the article I read and brought to my pedi when I was looking for a substitute for the cows milk, there is a lot of good information out there and fortunately tons of milks! I bake with rice, coconut, almond, sunflower... each one has something a bit differently nutrition wise but my son doesn't like the taste of any but the goats. I bake with the others trying to get more nutritional variety in to him! Benefits of Goat Milk vs. Cow Milk by DR. THOMAS COOKE on AUGUST 20, 2010 Happy free range goats. “Milk, it does a body good.” This was the marketing mantra employed by the cow industry in the 1980’s to boost interest in cow’s milk. The campaign was wildly successful and as a result, The Dairy Farmers of America have reported sales topping 11 billion dollars in 2007. But does the overwhelming popularity of cow’s milk in the United States signify that it really is the best? Should we assume that quantity equates quality when referring to a substance that is such an integral part of our food supply? Interestingly enough, when worldwide consumption of milk is taken into account, it is not cow’s milk that is most popular but goat’s milk. In fact 65% of the milk consumption worldwide is from goat’s milk, and this popularity hasn’t come about due to high profile marketing campaigns or big-budget advertisements. The reasons for the worldwide popularity of goat’s milk are multifaceted. First, we need to remind ourselves that “All milk is not created equal.” The differences between cow’s milk and goat’s milk may not seem apparent upon first examination. A closer look, however, reveals several key factors that play an integral part in how milk (from either cows or goats) matches up with the human body in its various stages. All humans have been created to be sustained entirely upon mothers’ milk for at least the first six months of life. There is no other food in the world better than mothers’ milk, and it truly shows both in the laboratory and the real world. But what about after these first few months are over, and one is faced with the rest of life? Why would someone choose goat’s milk products over the far more popular and accessible cow’s milk? Here are 5 reasons goat milk is better than cow milk. 1. Goat’s milk is less allergenic. 2. Goat’s milk is naturally homogenized. 3. Goat’s milk is easier to digest. 4. Goat’s milk rarely causes lactose intolerance. 5. Goat’s milk matches up to the human body better than cow’s milk. 1. Goat milk is less allergenic.In the United State the most common food allergy for children under three is cow’s milk. Mild side effects include vomiting, diarrhea, and skin rashes and severe effects can be as serious as anaphylactic shock! Needless to say it is a serious condition. The allergic reaction can be blamed on a protein allergen known as Alpha s1 Casein found in high levels in cow’s milk. The levels of Alpha s1 Casein in goat’s milk are about 89% less than cow’s milk providing a far less allergenic food. In fact a recent study of infants allergic to cow’s milk found that nearly 93% could drink goat’s milk with virtually no side effects!1 2. Goat’s milk is naturally homogenized. If you were to place both a glass of fresh cow’s milk as well as fresh goat’s milk in the refrigerator overnight, the next morning you would find that while the goat’s milk looks exactly the same, the cow’s milk has separated into two distinct ‘phases’ of cream on the top and skim milk on the bottom. This is a natural separation process that is caused by a compound called agglutinin and it will always cause the cow’s milk to separate. As Americans, we like everything neat and tidy and so to get the milk to the consumer in a uniform manner, the dairy industry utilizes a process called homogenization. This method works by forcing the fluid milk through a tiny hole under tremendous pressure which destroys the fat globule cell wall and allows the milk and cream to stay homogeneous or suspended and well mixed. The problem with such homogenization is that once the cell wall of the fat globule has been broken, it releases a superoxide (free radical) known as Xanthine Oxidase. (see picture) Now free radicals cause a host of problems in the body not the least of which is DNA mutations which often lead to cancer! Thus, the benefit of natural homogenization comes into clear view. Goat’s milk has smaller fat globules and does not contain agglutinin which allows it to stay naturally homogenized thus eliminating the dangers associated with homogenization. 3. Goat’s milk is easier to digest. Goat’s milk has smaller fat globules as well as higher levels of medium chain fatty acids. This means that during digestion, each fat globule and individual fatty acid will have a larger surface-to-volume ratio resulting in a quicker and easier digestion process. Also, when the proteins found in milk denature (clump up) in the stomach, they form a much softer bolus (curd) than cow’s milk. This allows the body to digest the protein more smoothly and completely than when digesting cow’s milk. 4. Goat’s milk rarely causes lactose intolerance. All milk contains certain levels of lactose which is also known as ‘milk sugar.’ A relatively large portion of the population suffers from a deficiency (not an absence) of an enzyme known as lactase which is used to, you guessed it, digest lactose. This deficiency results in a condition known as lactose intolerance which is a fairly common ailment. (Lactose intolerance and cow’s milk allergy (cma) are two distinct conditions. CMA is due to a protein allergen, while lactose intolerance is due to a carbohydrate sensitivity.) Goat’s milk contains less lactose than cow’s milk and therefore is easier to digest for those suffering from lactose intolerance. Now the interesting aspect to consider is that goat’s milk isn’t much lower than cow’s milk (contains about 10% less than cow’s milk) and yet, countless lactose intolerant patients are able to thrive on goat’s milk. Although the answer for this is unclear, it has been hypothesized that since goat’s milk is digested and absorbed in a superior manner, there is no “leftover” lactose that remains undigested which causes the painful and uncomfortable effects of lactose intolerance. 5. Goat’s milk matches up to the human body better than cow’s milk. This matter is both an issue of biochemistry as well as thermodynamics. Regarding the biochemistry of the issue, we know that goat’s milk has a greater amount of essential fatty acids such as linoleic and arachidonic acid than cow’s milk as well as significantly greater amounts of vitamin B-6, vitamin A, and niacin. Goat’s milk is also a far superior source of the vitally important nutrient potassium which we discussed in a previous High Road to Health issue. This extensive amount of potassium causes goat’s milk to react in an alkaline way within the body whereas cow’s milk is lacking in potassium and ends up reacting in an acidic way. Thermodynamically speaking, goat’s milk is better for human consumption. A baby usually starts life at around 7-9 pounds, a baby goat (kid) usually starts life at around 7-9 pounds, and a baby cow (calf) usually starts life at around 100 pounds. Now speaking from a purely thermodynamic position, these two animals have very significant and different nutritional needs for both maintenance and growth requirements. Cow’s milk is designed to take a 100 pound calf and transform it into a 1200 pound cow. Goat’s milk and human milk were both designed and created for transforming a 7-9 pound baby/kid into an average adult/goat of anywhere between 100-200 pounds. This significant discrepancy, along with many others, is manifesting on a national level as obesity rates sky rocket in the U.S. To conclude, we have seen that goat’s milk has several attributes that cause it to be a far superior choice to cow’s milk. Goat’s milk is less allergenic, naturally homogenized, easier to digest, lactose intolerant friendly, and biochemically/thermodynamically superior to cow’s milk. As if these benefits were not enough, Mt. Capra’s goat’s milk products do not contain any growth hormones or antibiotics that massive cow dairies have come to rely upon to turn a profit! So to sum up and paraphrase the cow industry catchphrase: “Goat Milk: It Does a Body Good. Thomas R. Cooke, Doctor of Osteopathy; Graduated in 1976 from Texas College of Osteopathic Medicine. For over thirty years Dr Cooke has been caring for patients in a culture of holistic treatment, practicing a preventative illness approach, while teaching and encouraging patients the importance of wellness care. Freund G. Use of goat milk for infant feeding: experimental work at Creteil (France). Proceeding of the meeting Interets nutritionnel et dietetique du lait de chevre. Niort, France: INRA, 1996:119–21
  4. My son is not allergic to milk but because his gut is a mess he can't tolerate it. Goats milk is the closest milk to human as far as digestability and he tolerates it beautifully! Of course one should never introduce a new food with out supervision.
  5. I make a great Mac and Cheese ! I use rice pasta spirals and then melt goat cheese with natures balance butter substitute and some sea salt. It tastes like the Annie's my son always loved! Goat cheese and milk is great, tastes almost exactly like cows milk but no allergy issues!
  6. Our Dr explained that keeping children on a gluten-free diet when they don't need one is not the best idea. Most of out " fortified" foods are the breads and cereals. Our trace vitamins and minerals are in those foods . Keeping kids G F but not deficient in those vitamins and minerals is a careful balancing act that should always be done under professional supervision. Another reason she said was it can give children a sense that they are unwell or some how in danger of illness and crest undue anxiety as they grow and socialize. I was concerned about putting my son back on gluten after his test came back positive because t makes him so sick! After listening to the Dr's knowing for sure really is best. If my son is Celiac he will need certain types of Cancer screening and they will be on the look out for related complications as he grows. I would for sure make certain that they need that diet. MIL was wrong to do what she did, they are your children!
  7. My son is 8 and we are I. The process of testing with Dr Fasano at MGH Boston. I had one an elimination diet on him several months ago due to tummy issues, rashes, low grade temps, terrible mood swings..... His IGG was positive after being Gluten free for a few months so he had us put the gluten back or 4 weeks to see if we can tease out the IGA as well. It is awful, the poor kids is miserable BUT it is really important for us to know exactly what we are dealing with. There could be ramifications later in life and the possibility that t could be something else that needs more or different treatment. Are you near to Boston? He us such a kind Dr
  8. Dr Fasano Mgh For Children

    We saw him today and he was wonderful! A very gentle and kind man. He spent a few minutes giggling with my son over his troll t shirt and just making him feel comfortable. He is not an alarmist or one to be passive. I feel so lucky he is in Boston.
  9. Dr Fasano is WONDERFUL! He was so kind and so weet with my son. He said it all looks to be celiac but because he was Gluten free for 6 weeks when they tested his blood he wants to retest in 3-4 weeks. He wants my son to have Gluten twice a day until the test and see if we can't tease out the IGA antibodies. He is already IGG positive but he said the fact that we gluten free when tested could have taken the IGA down. He said rarely there are patients not IGA deficient but that never show those antibodies so if he comes up IGG only again then the next step is a biopsy. I was afraid he would be upset with me for doing the elimination with out a Dr over seeing it but it was the opposite. He was glad I took action when the allergist wouldn't test food allergies on an 8 yr old. I am more than pleased with him and feel good that we have a plan. I am a little scared putting him back on though, he hates how it makes him feel!
  10. Really? This is new territory for us. I have always know " something" was wrong He has had Migraines, " abdominal Migraine" with projectile vomiting, pretty wild mood swings... rashes.... I started by eliminating chemicals in the house as much as we can. We use soap nuts for laundry, chem free cleaners and soaps..... the eliminated artificial flavors and colors as well as nitrates and as many preservatives as we can. Finally in desperation I did an elimination diet and found he reacted to Gluten and milk. From there the Dr did the testing. I so appreciate your input and kindness
  11. Thank you so much for the input! I called back because when I made the GI appointment they asked if I wanted the Celiac clinic or GI. I wasn't sure which they wanted me to go to so I said GI. When I double checked after reading this the Rheumatologist said he wanted my son seen in the Celiac clinic. I changed the appointment and we will be going Thursday afternoon. The woman on the phone couldn't tell me whether or not to put him back on Gluten. The poor kids is afraid to eat it knowing how yucky he feels. I know they are not doing a biospy Thurs so I will just tell them that if they are planning to do one I want him back on gluten for at least a month or so before the test so we know exactly what we are dealing with. I was thinking back and remembered that when he was like 2 he had an ultrasound of his belly because it was so round it was out of proportion to his size. After the scan they said " nope just a little Buddah belly" Well that Buddah belly looks like some one stuck a pin in it now! I was amazed how fast his tummy flattened out! WIth in 3 weeks of the diet. Wait.... both my kids have discolored teeth!! WHat does that mean??
  12. Thank you! I talked to the Dr, today and he said that he strongly suspects Celiac. He is sending us on Monday to Mass General for Children and we will see GI. If they do the Biopsy I want him on Gluten again before the test so we know for sure what we are dealing with. It is interesting what you said about Dairy. I have had him off Dairy as well because he is symptomatic on that too. I live in the Boston Area as well.
  13. But what I am saying is that he did has a positive test, it was the ttg Ab Igg which I am told can be positive off gluten because it is not an indicator of Glten being present but an antibody associated with the Leaky Gut component
  14. I ihave had my son on a low sugar, no gluten, Dairy,peanut, soy,..... elimination diet due to a constellation of odd symptoms. He had rashes, low grade temps, chronic head ache, tummy aches, mood swings, joint pain and low energy. We brought back corna nd he was fine, we brought back soy and he was fine but I tied wheat and he started with thee temp and rashes... same when I tried Dairy. So we went back to gluten and diary free. Last week he saw a Rheumatologist and he ran a TON of tests. He said the Celiac test may not work because he already had him Gluten free for over 6 weeks. Well it can back with a positive ttg Ab, Igg the rest were negative. Is this a significant result? I am waiting on a call to explain what I am looking at but I would love any input you expert parents might have!