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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About JChi

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  1. Thanks for sharing your experience Notme. My test is in 2 days and I am so ready to get back to gluten-free eating. My stomach cramps have been getting worse.
  2. Thank you for the advice Bubba's Mom. I did have the gene test and I am DQ 2 and 8. I am hoping to get some answers from the endoscopy but even if the result is negative, my doc still wants me to try 100% gluten, dairy and sugar free for at least 2 months to see if that makes a difference. And yes, I have been reading a lot about Paleo and it seems like a good way to eat, just worried that it would require making ALL my own food and how to find the time to do that with 2 kids.
  3. Thanks for your response kareng. I should have mentioned above that my Total Iga was normal.
  4. Hi, I had a full panel for celiac testing done last week which came back negative (although dgp igg/iga was not tested.) I have a colonoscopy and endoscopy scheduled for next week. Are there people who have had neg blood but positive endoscopy? It seems like I mostly see posts for the other way around. I have been eating "very low" gluten diet for about 2 years and back to full gluten for the past 6 weeks. I didn't feel too bad for the first 3 weeks or so but recently, I've had stomach cramps/pain everyday, frequent diarrhea, pain in hips, legs and low back (right side). I'm hoping 7 weeks eating gluten will be long enough for my doc to see if there is any damage. I've read I should ask him to take 6 - 8 samples, even in areas that might look ok. Is this accurate? Any other tips or advise from those who have been through this would be greatly appreciated. Thanks
  5. Thank you for your response and words of encouragement. Yes, you are right, I need to give the diet more time. I keep giving up when I start feeling bad, thinking that eating gluten free is not helping or that is something else is bothering me, when maybe it is just withdrawal. I guess I just need to get over the "hump" so to speak, and hopefully, I'll be on the road to improvement.
  6. I have been eating a “low” gluten diet off and on for a couple of years. I have noticed some improvement but not as much as I was hoping. For instance, I seem to be able to eat gluten once a week or so without much difference, but when I would eat it a few days in a row, I would notice more frequent stomach cramps. However, recently I have had more frequent bouts of diarrhea so I tried eliminating gluten, dairy, soy, corn, processed sugar, peanuts and a few other foods I believe cause me upset stomach. I did it for three weeks but then got frustrated because I still didn't notice a huge difference. I didn't have stomach cramps but was still having very soft stool (and urgency) almost every morning. I went back to eating gluten-free only, but was having diarrhea several times a day, so I decided to eat a sandwich with regular white bread...and to my surprise, my diarrhea stopped. Has anyone else experienced this? My doctor was confused by this response also but still thinks gluten is most likely to blame for my stomach troubles (also since I am HLA-DQ 2/8). She thinks I need to try eating a strict gluten-free diet for longer, at least 2 months (also eliminating dairy and sugar) to see if that helps. However, she is also sending me to a GI specialist, so need to wait until after to start the gluten-free diet. Since I have been back to eating gluten again, I haven't actually felt as bad as I was expecting (some bloating/fullness after eating, but more constipated instead of diarrhea, maybe more anxiety). Some background: I have had frequent diarrhea and stomach aches ever since I can remember, had problems with dairy as a baby, diagnosed with thyroid cancer in 2010, negative celiac blood panel, Vit D and B12 deficiency, anxiety Anyone else with similar experience but still think gluten is the problem?