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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.


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About brinleys

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  1. Thank you all so much!! She's been very very slowly starting to feel better - right now she's keeping liquids down and is busy being a grump - though I don't blame her. The meds seem to be easing her symptoms some ... that or the 3 days with no food has calmed her belly down .... I will update after her appt on Tuesday!
  2. I finally got copies of her lab reports - we have been referred to a ped GI and have an appointment at 10 next Tuesday. Our regular ped is now saying that she is "borderline positive" - her lab results are below: 1st set of labs: IgA 205 Range 33-200 Endomysial IgA <1:10 Range - Negative if <1:10 Gliad IgA 28 Range Neg. <20; weak positive 20-30, strong positive >30 Gliad IgG 2 Range Neg. <20; weak positive 20-30, strong positive >30 2nd set of labs (I don't have everything back yet just the IgA - the rest will be back by Friday) IgA 236 Range 33-200 We ended up in the ER with her last night due to her abdominal pain and vomiting. They were able to get her re hydrated and we came home after a few hours. The ER doc said to start a gluten free diet, but when I called the Ped GI after we got the referral this morning his office said not to change her diet until after we see the doc..... ugh - I'm hoping the next 5 days go quickly and that if she needs a scope they can do it rapidly because I feel awful for her.
  3. Our daughter has been struggling for 7 months with various stomach and digestive issues. Severe abdominal cramping and pain , nausea and occasional vomiting, diarrhea or constipation, an occasional odd rash and a rare fever, along with decreased appetite and weight loss. Our doctor initially attributed it to a fairly rough flu season coupled with the possibility of a stomach virus. At a follow up visit with symptoms persisting her ordered a blood draw to test for Celiac disease, which came back positive. The doctor is recommending a follow-up blood test to confirm. She had the blood work done today - It has been just over 2 weeks - because she is so miserable What is our best course of action now? She is so miserable, she is on Zofran (as needed for nausea), Levicin for abdominal cramping several times per day, and an antacid. She has very little appetite - preferring things like chicken broth, frozen yogurt and jello - and has lost 8 pounds - she is down to 34 pounds. Wouldn't it be better to just go with a diagnosis and begin diet change instead of letting her continue to suffer for another month? Also how many people had the biopsy to confirm diagnosis?? I am concerned about putting her through something like that if the blood test is fairly accurate (which my doctor said it's very accurate) Thoughts?? If this were your child how would you treat this situation.