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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.


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cyclinglady last won the day on June 15

cyclinglady had the most liked content!

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About cyclinglady

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    Advanced Community Member

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    CD diagnosis: 3/2013, DGP IgA positive only, Biopsy: Marsh Stage IIIB,
    Hashimoto's Thyroiditis, Diabetes, Osteoporosis, Thalassemia
  • Location
    Orange County, CA

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  1. My anemia resolved with a few months of a gluten-free diet and I had moderate to severe intestinal damage. My hemoglobin has never been in the normal range (I have a genetic anemia on top of the iron-deficient anemia). Your result seems fine. A low hemoglobin is below a 7 or so. That is when doctors start pushing for transfusions. You also have a hard time catching your breath at that point. My ferritin was a 2 and is now around a 55. Your body is miraculous and can spring back fine. Sure your hemoglobin dropped after surgery. It probably drops when you have a period too. I would look for another cause of your fatigue, etc.
  2. Only you can make a decision on whether to do a challenge or not. My hubby went Gluten Free 12 years before I was officially diagnosed. He refuses to do a challenge, because we need to pay our bills and we know that gluten makes him sick. Why would anyone remain gluten free for more than 16 years if they did not need to? He does tell me that I have received way more support from medical, family and friends. It also has helped other members in my family (easy to ask for a celiac screening for my kid). Good luck! Do what is best for you.
  3. A CBC would check for size of blood cells, number of blood cells and hemoglobin levels, etc. If you are within range, you probably would not be considered anemic. A ferritin test (iron stores) can be checked too. If very low, it starts to create symptoms. https://en.m.wikipedia.org/wiki/Anemia
  4. Welcome! Sorry to hear that you had been gluten free when you were tested for celiac disease. The only way to get an official diagnosis is to do a gluten challenge under a doctor's care: http://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/ As far as recovering from a glutening? Everyone is different. It can take a week or months to recover. There is no speedy way...rest, stay hydrated....
  5. 🤗. Okay.....but what is the cause for the low ferritin? A glutening? When was the last time you had a celiac antibodies test or do you use DH flare-ups as a gauge?
  6. I only test positive to the DGP IgA (even in follow-up testing) and my biopsies were a Marsh Stage IIIB. Thankfully, my GI ran the entire panel! Most doctors prefer the good, but cheaper TTG IgA test, but it does not catch all celiacs like me. In fact, it often does not catch young children and really old people based on a few pretty recent studies. I would also suggest requesting the rest of the celiac panel. Keep advocating! 😊
  7. Just search for GIs in your area. Usually doctors post biographies. Look for someone who mentions celiac disease in his/her bio. Then call the office to confirm. Sacramento is a pretty big city. If you are not successful, there is a celiac disease center at Stanford University.
  8. Go for it! If you are converting the recipe from a gluten-containing recipe, hold back a few tablespoons of flour until you are confident that the dough is the right consistency. Reduce the sugar a few tablespoons too as this particular bread flour already has some added sugar. Chill the dough well before baking. Use a silicone mat or parchment paper. gluten-free cookies can stick, plus less mess!
  9. Hi! i want you to know that I ONLY tested positive on the DGP IgA (even in follow-up testing and different labs). My GI was celiac-savvy and ordered a endoscopy/biopsies to confirm my celiac diagnosis. You only need one positive on the celiac panel. My only symptom at the time was anemia. My ferritin was very low and I had already gone through menopause, so doctors could no longer blame it on menstruation. Please consider finding another GI and get a second opinion. Even a large and reputable celiac center states that you just need one positive on the panel to move forward to an endoscopy. There are over 300 symptoms attributed to celiac disease. Some people have none!!!!! http://www.cureceliacdisease.org/screening/
  10. Here is the most current gluten free drug list for 2017. It is a work in progress, though. There are fewer drugs on this current list than on his previous list, but I expect the pharmacist is still working in it. Check this list, if your medication is not on it, ask your own pharmacist to research for you. Once he/she has come up with a few acceptable medications, call the manufacturers yourself. As long as there are no gluten ingredients, you should be fine. Then ask your doctor to prescribe them. http://www.glutenfreedrugs.com/newlist.htm
  11. Oh, one more thought. I could have sworn that my niece had celiac disease. She tested negative. Her 4th GI, finally ordered a pill camera. They found Crohn's (she did not present with typical Crohn's symptoms) located at the very end of her small intestine beyond the reach of an endoscopy or colonoscopy. Not suggesting Crohn's, but not everything fits a textbook description. Keep advocating!
  12. I think that most members on this forum are either seeking a diagnosis or they are learning about how to adhere to the Gluten free diet and cope with a new lifestyle. No offense meant, but why are you here? Either trial the gluten-free diet (100%) or find another diet to help you lose weight or whatever.
  13. Holy Cow! This is RARE! Let's not jump to cancer and scare the ?!&! out of her! Nice to be helpful though! 😊
  14. Welcome! Glad you found us. It is nice to have access to people who are in the same boat. Ennis has provided you with some good links. Questions? Just ask! Healing? Takes time. Everyone is different.