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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.


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cyclinglady last won the day on July 24

cyclinglady had the most liked content!

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About cyclinglady

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    Advanced Community Member

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    CD diagnosis: 3/2013, DGP IgA positive only, Biopsy: Marsh Stage IIIB,
    Hashimoto's Thyroiditis, Diabetes, Osteoporosis, Thalassemia
  • Location
    Orange County, CA

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  1. My GI told me that everything looked great visually (endoscopy), but my biopsies revealed moderate to severe intestinal damage. ☹️ You just have to wait for the pathologist's report.
  2. It is hard to wait and be patient! Hang in there!
  3. You had a positive on the celiac blood test, right? So, based on the algorithm, you should proceed to biopsy. http://www.mayomedicallaboratories.com/it-mmfiles/Celiac_Disease_Diagnostic_Testing_Algorithm.pdf Now, keep in mind that the small intestine is vast (size of tennis court). So, even if negative, your GI may recommend trialing the gluten-free diet. (You could just be in the early stages of development). The goal though is to get well. Keep that in mind.
  4. I am not sure this was handled properly by ALL the adults in charge! Most restaurants discourage bringing in food because of local health regulations -- not because they are trying to make you buy their food. Some restaurants will overlook this. I suspect this was handled poorly by the child's parent. He should have called in advance and talked directly to a manager and not wait staff. The parent could have prevented this humiliating experience. Life is hard. Kids adjust. We have eaten in that very tavern. Okay, my kid ate. Hubby and I consumed our gluten-free picnic meal in the common areas. We just ordered a drink and enjoyed the ambiance. My 7 year old daughter was dressed in a period costume I sewed. We had a fabulous experience in Williamsburg.
  5. Just keep eating gluten! I took the time between blood tests and endoscopy to bid gluten goodbye. I ate all my favorite things! It made me sicker, but it also made it easier for me to give up gluten for life. You will just have to address other issues if discovered by your doctor, when you cross that bridge.
  6. I am so sorry that you are sick. Many some fruit might be okay? Bananas? You could live off those for a week. Add in some fresh raw veggies? Any local stores that carry American products? I found one importer of American food, but they are on vacation (family run). ☹️ Amazon might work. Maybe the pre-cooked eggs are fine. Read this: http://www.legalnomads.com/gluten-free/japan/ We travel always with enough food to live when overseas (like a cereal bar a day). We might lose a lot of weight, but we will live. That is not going to help you now, but maybe it will help someone else.
  7. Migraines can be associated with celiac disease, but the only way to know is to get tested as there are as many as 300 possible symptoms. Learn more: http://www.cureceliacdisease.org/screening/ I wish you well!
  8. Welcome. I think that the IgA and IgG tests are ordered as control tests for celiac disease testing. If in range (or close to it), the TTG IgA and the TTG IgG tests are considered to be valid (results accurate). Those tests also let a doctor know if there is an immune system issue. You are talking about immunoglobulin tests, right? The EMA and DGP celiac tests are missing. What made the doctor move forward with biopsies if the TTG screening test was negative? A negative biopsy is possible as the small intestine is vast (size if a tennis court). Patches of damage can be missed. What did the doctor say? Was anything found (e.g. SIBO, H. Pylori, etc)?
  9. I am sorry that you are sick! Ennis has offered some great advice. With small children, they can be glutening you. I recall member Jebby getting glutened by her kids. She worked full time as a neonatologist (premie doctor) and her kids would give her slobbery, adorable kisses, etc. Jebby had the household go gluten free. That might be something to consider.
  10. Celiac disease is not diagnosed by symptoms alone. Why? There are over 300 of them and many, if not all, overlap with other autoimmune issues or other illnesses. Learn more about proper testing: http://www.cureceliacdisease.org/screening/ I am formally diagnosed. My hubby is not. His mis-informed doctors told him 16 years ago to give up gluten. It worked, but now we do not really know if he has celiac disease or not. He will be the first to say that I get WAY more support from family, friends and medical. I am sorry at your doctor gave you the wrong advice. Now, you must decide if testing is worth pursuing. I wish you well.
  11. While you could very well be vitamin/mineral deficient, you could also have issues with your thyroid. Autoimmune thyroid is common with .......autoimmune celiac disease. Your doctor should order a full thyroid panel, including thyroid antibodies. Your blood sugar should also be checked (autoimmune diabetes). I am not saying you have these issues, but these AI issues are common with celiac disease. In fact, you can develop or have more than one AI issue. If I feel a very strong need to nap, I know my thyroid is off and my doctor should be notified. A simple blood test usually verifies that an adjustment to my thyroid replacement is needed. That said, you are in the healing stages of celiac disease. Eat healthy and include plenty of fats to keep you satiated. Try to avoid processed foods. Make sure that gluten-free diet is varied and full of veggies. Get plenty of rest. Just listen to your body. Soon you will feel much better.
  12. Why not give up supplements for a while? Not everyone is deficient in vitamins and minerals -- or at least dangerously so. Ask your doctor to check. I take no supplements. My doctor runs a vitamin panel at my yearly check-up. I do make sure my diet is healthy and varied -- like eating veggies even at breakfast! People who are gluten free and eat junk food will probably need supplements. Look to your diet, lotions, shampoo....anything you can swallow to see if you are getting gluten into your diet. That is most likely the cause of your recent symptoms. At least rule out that you are having a celiac flare-up.
  13. Most of the articles you presented were blogs. They focused in one article pushed by the American Chemical Society. The research looked at ground coffee in Brazil ONLY. https://www.acs.org/content/acs/en/pressroom/newsreleases/2014/august/keeping-filler-ingredients-out-of-your-cup-of-coffee.html We know that Brazil is a very poor country. Just look at what happened during the last Olympics. For piece of mind, do not drink ground coffee brands from Brazil. Instead, grind your own beans or purchase grounds from a reputable company.
  14. Okay, a positive on thyroid antibodies, but what about the rest of the thyroid panel? That tells more of the story. Is rest of the thyroid panel all in the normal ranges? Is that why you were recommended to take a supplement instead of actual thyroid hormone replacement? Many doctors try a tiny dose of thyroid hormone replacement. Was this considered? Symptoms besides gray hair? You can either embrace the gray hair or color it. My research and personal experience has never come across a method of reversing grey hair. My SIL grayed at 18. She has been coloring her hair black for decades and her thyroid is normal.
  15. You are normal! All the things you are going through are normal for someone with celiac disease....probably with any life changing illness. What you need is patience. Most here take a year to heal or longer due to setbacks on the diet or healing from systemic damage. The nervous system seems to take the longest. Ask your doctor to check you for any deficiencies. No sense guessing what you might need. It is a common and recommended practice to check for vitamin and mineral deficiencies. http://www.cureceliacdisease.org/faq/what-common-nutrient-deficiencies-might-an-adult-experience-prior-to-diagnosis/ Once healed, you might not need any supplements, if you eat a wide and varied healthy diet.