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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

cyclinglady

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About cyclinglady

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    Female
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    CD diagnosis: 3/2013, DGP IgA positive only, Biopsy: Marsh Stage IIIB,
    Hashimoto's Thyroiditis, Diabetes, Osteoporosis, Thalassemia
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    Orange County, CA

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  1. This is beyond my capabilities as I do not wear a white coat. Best to talk to the GI.
  2. I don't get it. Isn't all powdered milk "instant" vs. fresh or canned?
  3. Many of us are lactose intolerant at the beginning (damaged villi tips can not release the enzymes to digest lactose), so experient. Choose lactose low foods like hard cheeses and yogurts. If she has no issues, add in milk and ice cream. Leafy greens are great sources of calcium too. Make sure she is exercising (weight-bearing) too. My kid is 16 (non-celiac) and she drinks water and milk. That is it. She needs to focus on building bone at her age and soda defeats that purpose.
  4. Your doctor is wrong, you should be getting an annual test to see if you are doing well. This is standard care for celiacs. Learn more: http://www.cureceliacdisease.org/faq/how-often-should-follow-up-testing-occur/ By checking your celiac antibodies, you can determine if celiac disease is causing your current problems. You might be getting gluten into your diet. If negative, your doctor can look to other causes.
  5. You can always just sub regular milk for the powdered and liquid. Powdered milk is nice if you are using a bread maker and setting up the night before or storing a dry mix to save time. It is nice to have powdered milk on hand for earthquakes. I had to drink it as a kid. It was cheap and when money was tight or we were snowed in, my Mom had it in her pantry. I recall her crawling, yes crawling, to the corner store for fresh milk after an ice storm in Chicago while my brother and I were made to stand in the parlor window so that she could see us. After that, she always kept powdered milk in the house. 😊
  6. I know I needed the confirmation. My hubby went gluten free per the very poor advice from my allergist and his GP. It worked, but we really do not know if he has celiac disease. He refuses to do a gluten challenge and I do not blame him. We do know that gluten makes him sick. He has been gluten free for 16 years. So, when my GI suspected celiac disease, I could not believe it. I had no tummy issues at the time, but was anemic. Had been my whole life and it was blamed on a genetic anemia and menstruation. I knew what being gluten free meant and I did not want to have celiac disease. But, I got positives on the DGP and my biopsy. Nothing like seeing something in writing. I showed that to my extended family who was in denial as well. I had a shared household with hubby all those years. But after my diagnosis and the fact my kid started making things in the kitchen, we all went Gluten Free. Great kid, but I could not trust her with my health! If you DD has small siblings, consider all going gluten free. They can eat gluten outside of the house. That is what my kid does.
  7. Any medical doctor can help rule out celiac disease. It is a simple blood test. You do need to be consuming gluten for the testing to work. Learn more: http://www.cureceliacdisease.org/screening/
  8. I agree that you should consider getting tested for celiac disease before you try the gluten free diet. It is a simple blood test. Learn more about the exact tests here: http://www.cureceliacdisease.org/screening/ I hope you feel better soon.
  9. There is nothing you can really do about the high antibodies. If it is any consolation, mine have been as high. Your TSH is too high. The acceptable range now is around 1 to 3. You might benefit by increasing your thyroid replacement (or starting) if you are not taking it now. I feel best when my TSH is closer to a 1.
  10. Welcome! At age 13, she should recover easily from Osteopenia on a gluten free diet. It will take time to heal and master the diet, so patience is needed. The great news is that kids tend to heal much faster! Try reading our Newbie 101 thread pinned at the top of the "Coping" section of the forum. There are lots of tips throughout the forum too. Post any questions you many have, we are happy to help!
  11. My GI told me that everything looked great visually (endoscopy), but my biopsies revealed moderate to severe intestinal damage. ☹️ You just have to wait for the pathologist's report.
  12. It is hard to wait and be patient! Hang in there!
  13. You had a positive on the celiac blood test, right? So, based on the algorithm, you should proceed to biopsy. http://www.mayomedicallaboratories.com/it-mmfiles/Celiac_Disease_Diagnostic_Testing_Algorithm.pdf Now, keep in mind that the small intestine is vast (size of tennis court). So, even if negative, your GI may recommend trialing the gluten-free diet. (You could just be in the early stages of development). The goal though is to get well. Keep that in mind.
  14. I am not sure this was handled properly by ALL the adults in charge! Most restaurants discourage bringing in food because of local health regulations -- not because they are trying to make you buy their food. Some restaurants will overlook this. I suspect this was handled poorly by the child's parent. He should have called in advance and talked directly to a manager and not wait staff. The parent could have prevented this humiliating experience. Life is hard. Kids adjust. We have eaten in that very tavern. Okay, my kid ate. Hubby and I consumed our gluten-free picnic meal in the common areas. We just ordered a drink and enjoyed the ambiance. My 7 year old daughter was dressed in a period costume I sewed. We had a fabulous experience in Williamsburg.
  15. Just keep eating gluten! I took the time between blood tests and endoscopy to bid gluten goodbye. I ate all my favorite things! It made me sicker, but it also made it easier for me to give up gluten for life. You will just have to address other issues if discovered by your doctor, when you cross that bridge.