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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

cyclinglady

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About cyclinglady

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    Female
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    CD diagnosis: 3/2013, DGP IgA positive only, Biopsy: Marsh Stage IIIB,
    Hashimoto's Thyroiditis, Diabetes, Osteoporosis, Thalassemia
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    Orange County, CA

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  1. Most of the articles you presented were blogs. They focused in one article pushed by the American Chemical Society. The research looked at ground coffee in Brazil ONLY. https://www.acs.org/content/acs/en/pressroom/newsreleases/2014/august/keeping-filler-ingredients-out-of-your-cup-of-coffee.html We know that Brazil is a very poor country. Just look at what happened during the last Olympics. For piece of mind, do not drink ground coffee brands from Brazil. Instead, grind your own beans or purchase grounds from a reputable company.
  2. Okay, a positive on thyroid antibodies, but what about the rest of the thyroid panel? That tells more of the story. Is rest of the thyroid panel all in the normal ranges? Is that why you were recommended to take a supplement instead of actual thyroid hormone replacement? Many doctors try a tiny dose of thyroid hormone replacement. Was this considered? Symptoms besides gray hair? You can either embrace the gray hair or color it. My research and personal experience has never come across a method of reversing grey hair. My SIL grayed at 18. She has been coloring her hair black for decades and her thyroid is normal.
  3. You are normal! All the things you are going through are normal for someone with celiac disease....probably with any life changing illness. What you need is patience. Most here take a year to heal or longer due to setbacks on the diet or healing from systemic damage. The nervous system seems to take the longest. Ask your doctor to check you for any deficiencies. No sense guessing what you might need. It is a common and recommended practice to check for vitamin and mineral deficiencies. http://www.cureceliacdisease.org/faq/what-common-nutrient-deficiencies-might-an-adult-experience-prior-to-diagnosis/ Once healed, you might not need any supplements, if you eat a wide and varied healthy diet.
  4. Yes! Ask for the IgA deficiency test! Why? Well, your doctor did not even follow protocol. In order to validate the IgA celiac tests, he should have determined if you are IgA deficient or not. http://www.mayomedicallaboratories.com/it-mmfiles/Celiac_Disease_Diagnostic_Testing_Algorithm.pdf I have never tested positive on the IgG tests and only had one positive on the IgA DGP test, but I was not IgA deficient, so my GI knew that my test was valid and I needed an endoscopy to confirm my diagnosis. You do not know if any of your tests are valid. You need the IgA test. It is a control test only in the case of diagnosing celiac disease. But....some celiacs are low in IgA and that seems to happen more often in celiacs than the general population. https://www.theatlantic.com/entertainment/archive/2017/07/dunkirk-is-a-stunningly-spare-survival-film/534252/
  5. Almost EVERY single celiac expert in the world and/or groups like the U.K./U.S. Gastroenterologist Associations recommend obtaining biopsies for diagnosing celiac disease. There are some exceptions. If you are too ill to even risk an endoscopy, your celiac panel is extremely high on several of the celiac tests (this is still debatable), you have long wait times in getting the endoscopy (government health wait times) or you can not afford to get one are all acceptable. You know your situation and will have to determine what is best based on your doctor's input. The blood tests are not 100% accurate. Heck, I tested positive only to a really odd one (the DGP IGA). I had no noticeable symptoms. I chose the endoscopy. I never wanted to doubt my diagnosis as my hubby went Gluten Free some 16 years ago based on the poor advice of two medical doctors. He got well, but does he really have celiac disease? He would be the first to say that I have had way more support from family, friends and medical, yes, medical. I hope this helps. Best to research like you are doing so that you feel comfortable and committed.
  6. Yes, I would ask for the rest of the celiac panel (including the IgA deficiency test). Discuss this with your child's GI. He/She may be able to order for you. Share the CBC results too with him/her. I would want to know for sure before giving up gluten to support my child, but you need to determine what is best for you!
  7. I am sorry too. I did not mean to imply that you have a sugar issue (though it may contribute to our obesity problem, but that is another debate). I do not think that is the cause of your symptoms. I brought it up because the American Academy of Pediatrics just issued this on juice for infants, toddlers and adolescents: http://pediatrics.aappublications.org/content/early/2017/05/18/peds.2017-0967 We all have unique intolerances. My kid can not drink orange juice beyond a 1/2 cup. That is about the equivalent of two oranges. Too much juice and she gets an allergic reaction -- itchy hives all over her body. Yet, she can eat two oranges in her lunch everyday -- just not a full cup of orange juice, processed or fresh. Me? I tolerate it just fine, if only I could tolerate garlic!!!!!! i hope you feel better soon.
  8. Welcome! It looks like you are on the right path. Now, you just need to be patient (believe me, it is hard to be patient). I choose not to supplement. Instead, I insure that my diet is varied and full of good nutritients. I am not deficient in anything per my doctor. Everyone has to determine their needs because we each come with a list of collateral damage that can extend beyond the gut. Hang in there! 😊
  9. What you can do is get follow-up testing. This might help in determining if you are gluten-free diet compliant. http://www.cureceliacdisease.org/faq/how-often-should-follow-up-testing-occur/
  10. Think about this. I have only had my daughter tested for celiac disease. She tested negative. She will need to be retested sometime in the future or when symptoms develop. But genetic testing? This might impact her insurability in terms of health and life. I do not have the answers, but I would research this before having everyone tested. Some 40% of the population carries the genes to develop celiac disease. Only a very few actually develop it. Insurance companies will deny you for all kinds of lame reasons. Just be careful.
  11. We rarely drink orange juice. Why? Because it is full of fructose which is not bad, but you would probably never sit down and eat more than 2 oranges in one sitting. Makes you wonder why diabetes is so prevalent. The other reason is laziness. I have citrus trees and juicing them takes time and work. I reserve that for special occasions. Citrus is acidic. It can be harsh on a damaged gut. My non-celiac kid actually gets hives from eating too many oranges. Moderation can be a good thing. Consider getting your vitamin C by eating fruit and not juice.
  12. Anything is possible. I suppose a truck full of wheat flour could drive into a pool and you could swallow gluten. You might even get stuck, like a paper mache figure. Seriously, I am in a public pool three times a week. I am sure my risk for gluten is pretty much non-exisitant. I have a greater chance of picking up a nasty bacteria. But our pool requires folks to shower prior to entering and you can not drink (water excepted) or eat on deck. A community pool full of birthday-cake, pizza-eating kids? Who knows? Hopefully, their parents insure that they eat and swallow prior to jumping into the pool. Any residual gluten in their mouths would probably not affect even a celiac. Kids do need to be taught not to swallow water. Dry drowing is a real risk. http://www.webmd.com/children/features/secondary-drowning-dry-drowning#2 Feel free to do a search within the forum on this very subject to get additional input. I hope this puts your mind at ease. Now go swim 200 meters of freestyle!
  13. Four days of being gluten free should be fine. 😊 If it makes you feel better, have something gluteny -- like a cupcake!
  14. I think that is just a clinical observation on his part. I had a Cardiologist once ask me during an examination (executive wellness check), if I ever had a heart murmur. I said no and asked why. He said that he noticed that people with really straight backs tend to have heart murmurs. My back was very straight. I told him both my brothers have heart murmurs. He asked if they needed a cardiologist. He had three kids at Unversity at the same time! 😆 I have the smallest adult pinky anyone has seen. (Measured during big family parties with a bunch of little kids and you do all kinds of silly things to entertain each other......) My hands are stubby and the rest of me is little too. Stunting? Who knows? But I am happy to blame celiac disease! Encourage all first degree relatives to get tested even if symptom free. Google it. Glad that you know how to treat your son. Hope he recovers fast!