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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About gfgtj

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  1. Thanks for the advice and the sympathy ( I guess it was a little bit of a rant) Forgot to mention that I have two copies of HLA-DQ8, so she has a least one of the celiac genes. She goes to her Dad's some weekends and longer periods over the summer. The cooler might help on the weekends and she is old enough to read label at least. She seems willing to try anything including going gluten free to get some relief so that's where I'm leaning. Just hope I can get the doctor to agree or reccomend at least a trial to help to get her Dad on board.
  2. Looking for some insight and opinions. 10 yr old daughter has been having stomach problems since Jan of 2013 on almost a daily basis. I have biopsy confirmed celiac.Her celiac panel included EMA- negative, Total Iga- adequate and TTG IGa and TTG IGg. Only her TTG IGG came back positive. We deceided to biopsy to try and get more information. Unfortunately the chief pediatric gastro only took two biopsies from the duodenum. Pathologist report says "no significant histopathology". They did find her to be low in lactase(lactose intolerance) and glucoamylase(enzyme that breaks down starches). My understanding is that these enzymes are produced from the villi in the small intestine. Daughter is still in pain despite a month on amitriptyline and and anti spasmadic. Now we are starting Ultram which is just a pain pill. My preference is not to drug her into oblivion. Follow up appointment is next week with GI. Should I request more testing? Push for a Dr sanctioned gluten free trail? Dr. 's recommendation may be the only thing that gets her Dad to comply. Thanks in advance for any suggestions.
  3. I agree I can usually tell if I get accidentally glutened within 20 minutes. It also takes several days to get back to normal. Before I was diagnosed and was strictly gluten free, the symptoms came at random, but were usually present. Hope this helps!
  4. I bet you are so relieved to finally have definitive answers. I would recommend getting his vitamin levels checked to make sure they are okay. If he has severe celiac damage he may be low in D, iron, ect. Just my two cents
  5. Thanks to both of you for your advice. Basically her "tummy" has been bothersome 5 to 6 days out of 7 the last four months. She has started waking up at night in pain and is missing school here and there as well. Her pain doesn't seem to be school related either she is just as likely to be sickly on the weekends. Recently she has added fatigue and muscle aches to her complaints. We go back to the GI next Friday. Hopefully they will have some ideas or accept mine.
  6. Daughter has been having tummy pain past since Jan along with no appetite and bowel issues. Bloodwork came back and need some insight on how to proceed. I was diagnosed via biopsy 3yrs ago after a lifetime of issues Marsh IIIc. Trying to make sure she doesn't suffer as I did. I realize her results don't necessarily point directly at Celiac. Should I accept functional abdominal pain and move on or investiagte further? Her results Total IGA 216 (45-234) End IGA AB Negative TTG IGA 1.2 (<4) TTG IGG 7 (<6) MCV Low 79.4 (81.0-99.0) Thanks in advance for any advice!