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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About Alphy

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  1. I just wanted to give some more feedback on some info I found. Late last week the doctors office called to tell me my intestinal biopsies showed I have Lymphocytic Colitis, which is intestinal inflammation that is only visible by biopsy. I had never heard of this condition, even after months of searching the internet about clues as to what was causing my diarrhea. Interestingly enough, LC is very much connected to gluten sensitivity (among other food sensitivities). I am finding out (from a microscopic colitis forum) that people with LC do not normally test positive for celiac with blood tests as all of our antibodies are in our intestinal track rather than our blood. In case anyone reads this post due to the subject line (mucus), I thought this may be of help to them. I don't hear much about copius amounts of mucus with celiac, or gluten sensitivity. But now reading about LC,it all makes sense. Since I have seen such great results keeping gluten out of my diet, I will stay off gluten 100%. I have energy! And today I had one of my first solid bowel movements. Hopefully this will be a help to someone out there who was having the same symptoms as me. Thanks for the input everyone.
  2. No he did not do an endoscopy. The only biopsies from my understanding were from the large intestine. He really seemd to think since my blood test was negative, that it was not celiac sprue. It is so hard to tell by my symptoms! They are varying too much day to day. A couple of weeks ago they were almost formed! Could not believe my eyes. Now they are back to loose and I have that "feeling", sort of unstable if you know what I mean? So I don't know. I guess I will just keep plugging along with the gluten free and see what happens. The day before colonoscopy I only sipped Swanson's chicken broth. But I would think after my prep, that the chicken broth would be waay out of my system for now.
  3. Thanks for all of the helpful information everyone. I had my colonoscopy today and had a chance to ask the doctor my question about mucus/tissue = intestinal damage. My colonoscopy went fine and he saw no evidence of any damage. He was even able to get a peek at my ileum/small intestine, although he wasn't able to go very far up. He did say that what I was seeing in my stool was not necessarily causing damage. In other words, even if I see it and it is scary as he$$, that is ok, and my body is okay! I told him about laying off the gluten (minus some inadvertent slip ups). He said it is very possible a sensitivity to gluten. So I will meet back with him in 4 weeks and in the meantime try to be very careful about gluten. Hopefully by then I was have a really good idea if gluten is indeed the problem. Hope this helps anyone in my same boat!
  4. Thanks Karen. Do you know if the fact that I have only been off gluten for 1 1/2 weeks would negate any damage so he couldn't make a proper diagnosis? At this point, I have not talked to him, so I don't know if he will do an endoscopy. I just thought I would mention it beforehand. Sorry for the dumb questions. This is all new to me:( And maybe I just need to wait until Thursday to get my info. Just have had these burning questions, and this is such a helpful website.
  5. Hi All, For the past three months, I have had diarrhea every morning (sometimes overnight, early morning, then stops around 10AM). This got progressively worse with some cramping, and more and more mucus (sorry for TMI ) and tissue in my stool, along with some other symptoms (hip pain, fatigue). I met with a GI in mid April, and was tested for celiac, which was negative (5 blood samples were taken). I am scheduled for a colonoscopy this week, as I have a family history of polyps. Long story short, after meeting with GI a few weeks ago, my diarrhea and mucus etc. got progressively worse. I also started having some minor pain below my right rib and on the left side of my abdomen. This was very disturbing to me, and I decided if I was going to get any sleep before this colonoscopy that was 2 weeks away, I would feel so much better if I tried to tie my problems to my diet. After reading about celiac, I was stunned at a few things, and felt that in fact Gluten may be the cause of my problems. So I stopped gluten last Monday. I am amazed at how different I feel. My stools have firmed up quite a bit, the minor pains have gone (but I am also stopping dairy). I do believe I am on to something, and am hoping that this is just a sensitivity since my blood tests showed negative. There are a few things that I do wonder, and cannot find the answer anywhere. Would all of the mucus and tissue in my stool be indicative of small intestine damage? Or could this only be irritation? Secondly, is it possible to just have a sensitivity to gluten, meaning I avoid it at all costs, but no damage has been done? I have been trying to find out these answers and cannot find anything. Obviously, I will know if there is a different cause of my problems once I have my colonoscopy this week, and I will have an opportunity to report to my GI about the gluten (or lack thereof!). Just wondered if anyone can give me any info on the disturbing things I was seeing in my stool before stopping gluten. It is really traumatic (but luckily no blood!). Thank you for any help you can give. I will report back after talking to my doctor. One of my pet peeves is trying to research my symptoms online, to see someone with similar symptoms, and then they don't report back!!