• Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

kamarie

Members
  • Content count

    4
  • Joined

  • Last visited

Community Reputation

0 Neutral

About kamarie

  • Rank
    New Community Member
  1. Thanks for the links, Deanimated Marcus, that's the first I've heard of a rectal biopsy, which sounds really scary but I'm glad to have another option to research.
  2. Cavernio, this page explains why I'm thinking about diagnoses: http://celiaccentral.wordpress.com/2012/10/03/going-gluten-free-before-the-diagnosis-do-or-dont/ AFAIK, if you have Celiac disease, doctors are more aggressive about checking for nutritional deficiencies and conditions related to having a severely damaged intestinal tract. One person told me that they will also monitor your IgE (something like that, I don't know all the terms very well yet) to make sure you aren't eating gluten you don't know about. But I haven't talked to an actual MD about this, so I could be wrong. For me personally, it would help me determine how strict I need to be. Although a gluten-free diet helps a lot, it hasn't made me 100% better. Is it because I'm not really 100% gluten-free and I only think I am, and I'm still sick because of cross-contamination? Or is something else causing my remaining health issues? If a doctor could test me and say, "Well, there's no evidence you've consumed any gluten at all for the past 6 months," then I'd know there are other issues to investigate. All of this could be done without a diagnosis of Celiac, and I am definitely trying my best to coordinate it all myself and do my own experimenting, but it would be a lot easier if I had a diagnosis and a cooperative, knowledgeable doctor (I'm resisting going into a tirade about my awful experiences with gastroenterologists, lol)
  3. That's what I figured. I was just hoping for some miraculous new science I hadn't yet heard about. Ah well.
  4. My apologies if this is a repeat topic--seems like it would have been asked before but I'm not seeing it. About 12 years ago I saw a doctor who didn't really understand Celiac disease. She advised me to get a blood test for a wheat allergy and when it came back negative, she suggested an elimination diet. When I noticed how awful I felt when I added gluten back into my diet, she said, "Great! Now you know what's wrong--stop eating gluten." So I did. You all probably see the problem with this plan--when I later learned about Celiac disease and how important it is to be tested for it so you can monitor your progress, I discovered that I could not be tested because I haven't been eating gluten for so many years. I'm told that if I want to be tested, I'll need to eat gluten for three months. !@#$ no! No way will I purposefully invite that kind of misery into my life for the sake of a diagnosis. So I've been going along eating gluten-free, never knowing if I have Celiac or not. But still, I would like to know for sure for various reasons. My family wants to know as well. So my question: does anyone know of a way around this situation so I could get a real diagnosis? I fear there isn't, at least not with current medical technology.