• Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


Advanced Members
  • Content count

  • Joined

  • Last visited

Community Reputation

0 Neutral

About carisima

  • Rank
    New Community Member
  1. I think in my case, it was because I reacted so violently to my first endoscopy/ colonscopy (ended up throwing up after the anasthesia, and almost always do). I made them aware that I was allergic to Demoral (?) and ended up getting a lower dosage (even though I still vomited after my endoscopy). I wasn't tested for celiac disease either time, and didn't know what it was, so I might be going another one real soon . But, when I had surgery for my breast cysts I told them that I was awake during a prior procedure, and they adjusted the levels to make sure I was asleep. I will be doing that in the future (if I'm able to), to make them aware of my prior experience being awake, and to ensure I'm totally out while undergoing the procedure. I'm glad they're also taking proactive steps to make sure that this doesn't happen again to another patient.
  2. yes, stress can definitely affect your digestive tract. I'm really sorry about the loss of your father *hugs*
  3. I have had a bad experience with an endoscopy too, Miss Marie. I was barely sedated, and aware of everything, when they pushed an the endoscope down my throat and into my stomach. It really hurt, and was scary. Luckily, though, I went out within thirty seconds, it was not nearly as terrifying as yours was, but still memorable for me. I'm really sorry you had to go through that *hugs*
  4. Question, I've been gluten-free for more than 8 months. I recently started my gluten challenge to be tested for celiac disease, and other than some mild fatigue (at the start of the challenge) becoming slightly off balance, and a small rash, I've only had mild digestive issues (not the severe ones I usually am plagued with). I expected to get the diarrhea within a day of eating wheat. But, so far, nothing major has happened. I've eaten, what I consider, a large amount. Does this mean that wheat isn't the culprit?
  5. There has been a recent petition to ask Disney to take down an episode, where a kid who has to maintain a gluten-free diet is mocked and made fun of. There's been a petition started to take it down. https://www.change.org/petitions/disney-channel-stop-bullying-gluten-intolerant-characters-2
  6. Marco, in another forum, I learned that this is usually the die-off of "bad bacteria" in the gut that feeds off the undigested carbs from gluten.
  7. Hey Marcus, I definitely don't fit the profile of a celiac, and have been told that I had IBS for years, and I was just crazy LOL. The doctor I went to yesterday seemed like a long line of professionals who just don't really care about their patients. I really get tired of going to see these "medical professionals", and I used that term loosely, only to be treated like I'm an insurance cash cow for their practice, instead of a patient in need of a real diagnosis and a treatment. It's their job help find out what's wrong, not asking me to "prove" that I'm sick and not to believe everything on the internet. They are not Gods; they don't know it all. Anyway, yesterday, I decided to start my official gluten challenge and ate breaded sandwich. I was waiting for the "bomb" to drop. It didnt, so I thought, maybe old doc was right. I fell asleep for the entire afternoon, (I had part of the day off). I didn't have any noticeable tummy symptoms, but then I woke up this morning and the rash on my back returned. I don't know if it's true dermatitis herpetiformis, because its flesh colored, small with only a few "acne-like" bumps, rather than than true blisters and not "itchy" except on one side of my back. It's only on one half of my back, and not the full back rash -- yet, as in the past. It's only day one LOL. I'm pretty sure the anxiety and panic attacks will return in force, along with the diarrhea and bloating, I just haven't eaten enough bread to do the trick. Im not sure if I'm going to last through this entire challenge LOL.
  8. That's what I'm afraid of, that he doesn't know what he's doing.
  9. I really need some advice regarding testing. I got up the courage to be tested for Celiac Disease. I'm not sure that I have it, to be honest. Up until I year ago, I never suspected that I could have an intolerance to wheat. Doctors had always diagnosed me as having IBS, and tried to convince me that my severe digestive symptooms (the extreme gas, bloating, diarrhea, etc;) were the result of my anxiety disorder. For years, I believed them, and thought I was crazy, and blamed myself. I spent years in psychotherapy and two years on psychotropic drugs they ordered for me to alleviate my "panic attacks". Nothing worked. My really bad stomach symptoms began in college, but they've only gotten worse. I cut out dairy, saw no change. And it seemed like every meal I ate made me sick. I was going to the bathroom 12 plus times a day (sorry if TMI), and sneaking naps at work during lunch time to function through the rest of the day.b Doctors gave me so many pills to alleviate the gas and diarrhea, but nothing seemed to help the symptoms. I was desperate, so a year ago, I went on the Specific Carbohydrate Diet to heal my digestive complaints. For the first time, all the bad symptoms began to dissipate, and I felt better. It's a diet where you have to read labels, and I make almost every meal from scratch. After months of being strictly grain free, I decided to use a topical lotion -- Aveeno -- with oats in it, not thinking anything of it. Then, my skin broke out...and I got sick. It was then that I thought, maybe I could be gluten intolerant. It was only until I decided to research celiac disease (which I always thought was a gluten allergy) that I could have it. This week, I got up the courage to finally speak to a GI doctor to be tested for celiac disease. Right now, I'm not sure what to do. He didn't seem to take me seriously. He spent less than five minutes talking to me, then asked me why did I believe I had celiac disease. When I attempted to tell him he kind of brushed me off. He told me that it could be small bacterial overgrowth, or a really challenging case of IBS. He then said that I should be tested right away for celiac disease. I said that wouldn't that give a false negative, since I have been strictly grain free for eight months (I had to talk to his nurse to relay this information to him). He basically said, eat wheat lightly for a week, and then get tested. When I asked -- didn't I have to eat gluten for a month to build IGA antibodies (not sure if this is right), he told me not to believe everything I read on the Internet. I really want the truth, and don't want to cut corners. I've started eating wheat again (so far, so good) but, a little gassy . But, I'm discouraged, really. I've gone throught this so many times with doctors who don't take my issues seriously. I would change doctors, but I seriously don't want to wait, and get testing process over with, since I already had to wait a month to see this specialist. Should I do a gluten challenge for only a week, then be tested, or wait the full month (of eating wheat) then be tested for an accurate result, since I had been wheat free for a year.