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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Xiao Bai

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Xiao Bai last won the day on July 27 2016

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About Xiao Bai

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  1. Hospitals are notorious for glutening their patients. It has happened to me several times. The most recent was two years ago. I went to a very high-end hospital for an appendectomy. They sent a nutritionist to talk with me for an hour, put a special bracelet on me so all the staff knew I had celiac. But the food was full of gluten. Soup with flour as a thickener, etc. The problem is that there is a serious disconnect between the nutrition specialists and the actual kitchen staff, who in the part of the world where I live, nobody has heard of gluten or celiac. If it is too inconvenient t take your own food, I advise eating ony plain foods - hard-boiled eggs, raw vegetables and fruit with no sauce,a plain baked potato if you can get it, or otherwise plain white rice, though even that can be iffy. Any future hospital visits for me will be viewed as opportunities to lose weight fast.
  2. There is a procedure called fecal transplant, that is considered highly effective for most of your conditions. Unfortunatly, it is not approved for use in the US for any problem except for C. Difficile. There are places is Argentina and Brazil that do it, and they are very modern and oriented to foreigners like us.
  3. Well, you can probably get an apple or something. You might be able to get someone to boil you some eggs. But be careful of things like nuts that should be naturally gluten free. They have almost always been soaked in a flavor solution that usually containes caramel coloring, "soy" (wheat) sauce and other aditives. If I am really hungry and must eat in a Chinese restaurant, I order plain white rice and steamed vegetables. But even so, you must monitor it carefully. The rice sometimes has other substances added to give it a better texture, and very often the vegetables have in fact had "just a little bit" of soy sauce added. To be fair, celiac disease is hardly ever found in East Asians, so understandably people are not tuned it to it. Also, culturally, with the exception of fruits, it is generally thought that the flavor of foods needs to be enhanced, so it is had to find anything natural even in the "western" gorceries. Even in the western restaurants, be careful. Fish and meat and often vegetables are usually pre-marinated. I will not even attempt to address the issue of cross-comtamination, since that is a whole higher order of things. I do know what I am talking about; I have celiac and have worked here for nearly 7 years.
  4. Are you kidding? Celiac disease (and gluten) are not very well known here in Beijing.
  5. I am 69 and was diagnosed 5 years ago, after an acute onset of extreme gastro issues about a year earlier. I've been gluten-free since then, but still have persistent gastro issues, though not as bad as before. However, I am able to work, and actually have a pretty difficult job in another country. I still have B-12 deficiency and anemia, which makes me more tired. But I can work. I will say, however, that fortunately I did not have your other health issues (breat cancer and Graves). But as for celiac, yes, it is definitely possible to recover enough to work, even at a rather advanced age. Best of luck to you in finding a good job that is manageable despite the fact that you may never feel as good as you did at one time. Many of us in our sixties and later do not want to stop working, or need to work for financial reasons.
  6. I was referred to a nutritionist right after I was diagnosed four years ago. She went through a half hour of "Nutrition 101", covering essentially the recommendations of the Standard American Diet. We we got to "grains", she recommended that I eat whole wheat rather than white bread, and to make sure it was actually whole wheat rather than just caramel colored! I reminded her that I was there for celiac disease, and she said, "Oh, right......" So, well, let's just say I did not find it very useful.
  7. You might want to try taking digestive enzymes. I was diagnosed two and a half years ago with celiac disease, and I was still having major intestinal symptoms until about a month ago when a doctor suggested I take digestive enzymes. It has made an unbelievable difference.