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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About whitney728

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  1. You can definitely manage cooking even though you live with roommates who don't eat gluten-free - I've done it for the past two years, and at one point I lived with 7 other girls! You just have to talk to them about your situation, and make them understand how serious it is, and stress that they need to clean up after themselves/put aluminum foil in the toaster/etc. You can also get your own pots and pans if that makes you feel better or if you don't trust your roommate to keep his dishes clean. I've managed fine, and I've never gotten sick, but I'm really careful even when I'm cooking in my own apartment. My roommate understands, but I've never really trusted any of my suitemates to keep things as clean as they should be. Do you have to be on a meal plan? I know that at my school if you live in an apartment style dorm you're not required to be on one, so maybe you can get off of it and just cook for yourself? It might be easier that way. And as for what you're saying about feeling sensitive to bread and all that, I've definitely noticed that my reactions get worse the longer I've been gluten-free. The more you heal, the more you notice when things go wrong. Good luck with everything!
  2. It is depressing at first, but you do adjust to it, I promise, and not feeling sick all the time makes up for it. As for cereal, Rice Chex are gluten-free, but this is a new thing, so you have to make sure it says gluten free on the front of the box, as some of the older ones still don't have it. There's a lot of foods you CAN have, but eating in a dining hall can be frustrating (see my other post). I've managed this for 3 years in college, feel free to ask me if you have any questions at all.
  3. Gluten Free Eating In New York

    Babycakes! - Gluten-free bakery on the Lower East Side. www.babycakesnyc.com. It's a cute little place with a lot of great options, and it's sugar-free and vegan as well (I promise, they still taste great). I think you take the F train to Delancey Street and walk down to Broome Street, but I would look up their address and look up the subway directions on Hopstop (see below) to be safe. Risotteria is my favorite restaurant, and you can also check out www.glutenfreerestaurants.org for a list of GFRAP-associated restaurants in New York City. There's also Mozzarelli's on 23rd street between Park & Madison for amazing gluten free pizza by the slice, but they're only open weekdays, and S'Mac in the east village (east 12th street between 1st and 2nd avenues) for great gluten-free mac and cheese.
  4. I'm heading into my senior year as well, and I was diagnosed at the end of my senior year of high school. I definitely agree with you about most people not understanding what you're going through - I've gotten the whole "if I couldn't have beer I would die" comment more times than I'd really care to count. The adjustment was pretty rough - I feel like a lot of my friends from home still think I can eat wheat, and I can't even tell you how many times I've been introduced to people as "this is Whitney, she can't eat bread." It does get easier though, especially once you adjust to the diet. Not having t o be on a meal plan and being able to cook for myself really helps - I was stuck with the cafeteria freshman year, because I was diagnosed the week I had to send in my housing forms and didn't think about getting an apartment-style dorm then, and it was pretty miserable. I was sick constantly, but as soon as I had more control over what I ate, it got a lot better. It gets easier though, and eating out isn't as hard as it probably seems right now. To answer the questions in the posts above me - Redbridge is a gluten-free beer that's manufactured by one of the mainstream companies (I'm blanking on which one at the moment) and supposedly it isn't so bad. I hadn't actually tried regular beer before I got diagnosed, so I wouldn't know the difference, but it's doable, or at least I think it is. I usually don't have a problem with vodka. And yes, I did lose weight when I was first diagnosed - I lost a lot quickly right before I was diagnosed, and then I kept losing as I was adjusting to the diet. I gained almost all of it back once I adjusted though, which was good. Let me know if you have any more questions!
  5. For Those Who Have Been To Disney World....

    I went to Disney for New Year's in December 2005-January 2006. We stayed at the Grand Floridian and I don't think I've been so well-taken care of anywhere else. They even made me gluten-free mickey waffles. It was amazing.
  6. Gluten Free Restaurants On Long Island

    Mama's is fantastic. I live about half an hour away when I'm not at school and it's worth the trip every time. Get the fried calamari! (My mom tried to send it back to the kitchen because she was convinced it wasn't gluten-free. That's how good it was!)
  7. Nyc - Upper West Side

    Sambuca on West 72nd street between Central Park West and Columbus Ave has a gluten-free menu, and I thought it was pretty good. You can also hop on the 1 train, get off at Christopher Street, and walk down to Risotteria (Bleecker and Morton streets) which is my favorite gluten-free restaurant in the city.
  8. I'm a junior at NYU, and I was in a traditional (no kitchen) dorm freshman year, so I was forced to be on a meal plan. While dining services said they would help me, they weren't always willing to accommodate me, so I wound up eating a lot of soup and frozen chicken nuggets from whole foods in my dorm room. I also got sick a lot when I attempted to venture to the dining hall, so I wasn't a big fan of doing that. Sophomore year, I moved to an apartment style dorm with a kitchen, went off the meal plan and began to cook for myself, so things got much better. Let me know if you have any further questions, as this is a subject I'm all too familiar with.
  9. I made the Pamela's mix a few months ago, and all of my gluten-eating roommates loved it, and said you couldn't tell it was gluten-free.
  10. Gluten Free In Prague

    I was the one who originally started this topic... Being gluten free in Prague can be a bit challenging, but if you're going for study abroad you'll be fine if you have a kitchen. A lot of drugstores (the DM chain in particular) sell Schar products. This is a great gluten-free brand, and I actually wound up bringing a lot of their pasta home in my suitcase. If you look on the Schar website, they'll tell you which stores in Prague sell the brand. I had very little luck with restaurants, so I didn't eat out a whole lot, but there's an Indian place called Bea's behind the Tyn Church in Old Town that has gluten-free dosas! I spent quite a bit of time there. I'm sure I'll think of more tips as time goes on, but my biggest suggestion would be that if you're going to prague, try to find some sort of living situation where you can have access to a kitchen. You'll be much better off that way.
  11. Long Island Restaurants

    There's PF Changs, as well as Cafe Baldo in I believe Seaford or Massapequa and Mamma's in Oakdale. I think there are reviews of both on this board if you search through old posts.
  12. Celiac Here From Long Island, Ny..

    yay long island...suffolk (but school in nyc) here
  13. Nyc Help!

    I'll just post most of an old reply I made on the travel thread... 1. RISOTTERIA - this is an absolute must. It's by far my favorite gluten-free restaurant in the city. It's on the corner of Bleecker Street and Morton Street in the West Village (near the 1 train (Christopher Street stop) or the A,C,E,B,D,F, and V trains (W4th street stop)). It's a great little Italian place with a good selection of pizza, focaccia sandwiches, and risottos. They also have great gluten-free breadsticks (they come automatically, you don't even need to ask) and desserts. The menu automatically lists all of the gluten-free options, and they pretty much make everything in a "regular" and gluten-free version. It's my own personal version of heaven, and it's about 3 blocks from where I live in New York, so I'm here quite a bit. 2. Babycakes! - Gluten-free bakery on the Lower East Side. www.babycakesnyc.com. It's a cute little place with a lot of great options, and it's sugar-free and vegan as well (I promise that they still taste great). I think you take the F train to Delancey Street and walk down to Broome Street, but I would look up their address and look up the subway directions on Hopstop (see below) to be safe. 3. Mozarelli's - I just tried this the other day (23rd Street b/t Park and Madison) - it's only open on weekdays, but you can get pizza by the slice, and it's REALLY really good! Someone took care of all the GFRAP restaurants, but I've heard a lot of those are great as well.
  14. I don't have any experience with eating outside of the park, but Disney is more than accommodating when it comes to celiac disease. (There are a lot of past threads on this board attesting to that.) A nice treat for your daughter, if she's having issues with her diagnosis, might be to have breakfast on the property somewhere...I went to a character breakfast where they made me gluten-free Mickey waffles. I think you have to call ahead, but they were incredibly helpful. I was 18 and this still made my day, so I'm sure something like this would be fun for your daughter.
  15. I was DXed at the end of my senior year of high school, and I honestly feel like it would have been easier if everyone had known all along. I have one friend with a peanut allergy, and everyone is used to dealing with that because he's had it as long as we've all known him, but I still find myself attempting to explain celiac disease to my high school friends! ("but why don't you want to go out for pizza?" is a typical conversation starter when we're planning our nights.) So yeah, I think that once you explain it to his peers, it'll be a little easier than if he was diagnosed when he was older.