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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About kpw31

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  1. I feel like I've asked this a million times but is there any other condition or issue, other than a gluten issue, that would cause a "positive" TTG IGG? (an infection, crohn's disease, etc). I just feel like I can never get a clear cut answer and am so frustrated.
  2. it wasn't DGP though, it was TTG which I can never find as much information on. They're sending me copies of the endoscopy report too, I don't know if I should get a second opinion. I feel pretty confident in my dr we're going to one of the top children's hospitals in the US for this. At the same time I know this is all fairly new so I have to think about it.
  3. My daughter's biopsies all came back normal so the GI said they've ruled out celiac, the only blood test that was elevated was TTG-IGG, everything else in the full celiac panel was normal. Why the high IGG then? I know this does not rule out gluten intolerance, should I still try her with a gluten free diet? I hate to make a complete dietary change for a 5 year old if it's not necessary but I guess we won't know about an intolerance until we try. They also said they'd like to do a gastric emptying study next so we're scheduled for that next week. Any thoughts or advice would be very much appreciated. Thanks!
  4. I'm awaiting endo results for my 5 year old, she went in on Wednesday. Mommy2krj, her symptoms and issues sound similar to your son's so I'm curious to see what we both find. Justa-just to clarify, the dr said there was inflammation? I hope this isn't a stupid question because I am new to all this as well but could the inflammation be due to something else? I know my gi said they'd take biopsies to check for celiac but also for other types of allergies that can lead to inflammation in the digestive tract. I keep seeing things online about EGID could it be due to something like that? because from what you said it sounds like the dr is unclear as to whether this is celiac or not. Maybe he said to not go overboard because he would need to have gluten in his system for further testing?
  5. I posted in another thread that my daughter's TGG-IGG was the only elevated test that came back, here's her complete report, we're doing an endoscopy on Wednesday because of the one abnormal result. I still don't know what to think: Deamidated Gliadin ABS, IGA 2 (range 0-19) Deamidated Gliadin ABS, IGG 2 (range 0-19) TTG-IGA <2 (range 0-3) TGG-IGG 25 (range 0-5) Endomysial Antibody IGA Negative (range Negative) Immunoglobulin A Quant, Serum 70 (range 44-189) Immunoglobuin A 69 (range 48-336) They ran the TGG-IGG again about 2 months after the first blood test and it was at 22. She also had a CBC panel run and everything was normal. Any thoughts on this would really help thanks!
  6. Good questions, we have our endoscopy on Wednesday and I'm wondering the same things!
  7. Has anyone had only a positive TGG IGG in their celiac panel? If the TGG IGG is elevated does this mean there is already damage?
  8. thanks again. they did the DGP and EMA in the panel and they were in the normal range the IGG was the only one that was flagged.
  9. I didn't realize there were so many symptoms, I'm glad you were able to find answers for your children and help them feel better. One other thing my daughter complains about besides stomach aches is feeling nauseous, I don't know if that's a symptom but I guess we'll find out when she has the endoscopy. I just hate not knowing what the cause of all this is.
  10. I got copies of my daughter's blood work this weekend so it looks like the range for TGG IGG was 0-5 and she was 25 the first time she was tested and 23 the second time, anything over 9 says "positive." I'm still confused ,with a normal IGA can this be celiac? I'm still waiting to hear back from the hospital to schedule the endoscopy so hopefully that will happen soon. There's more things on this report that I'm trying to decipher.
  11. My 5 year old is in the process of being tested for celiac disease. We are scheduling an endoscopy, hopefully for the end of June. The only issue she has is chronic abdominal pain, she has been complaining about it for about 5 months on a regular basis. It's hard to figure out what it feels like (nausea, cramps, gas etc) being only 5, she still has a hard time explaining what kind of pain it is. She is a skinny kid too but has never been off the charts (about 25th% since she was born) and hasn't lost weight recently. I just don't know what to make of all of this, I always read that constipation and diarrhea are symptoms but she always has had regular bowel movements. Could this really be celiac? (also all of he blood work has been normal except for an elevated IGG-TGG level). Just wondering what everyone else's experience was.
  12. it is confusing and every time I think I get it I come up with more questions! what else could cause intestinal damage?
  13. thanks again for the information. I actually just called to get a copy of the labs and I'm waiting to hear from the hospital this week to schedule the endo. I'm hoping to do it before the end of the month. I guess they just don't know until they look, I've been looking online about just the IGG being elevated and keep seeing conflicting information, some says it is a sign of celiac, other things say it usually means gluten intolerance or sensitivity hopefully we'll have more answers soon.
  14. Thanks for the replies! Caroline- it helps to hear that you had the same issue (just stomach aches, because I feel like everything I read about this has a huge list of symptoms and my daughter just seems to have the abdominal pain), do you think you actually had the milk and egg allergy or do you think it was celiac disease all along? nvs-I don't have a copy of the labs but I am going to request them this week, when I talked to the dr on the phone she just said the TTG-IGG was a 25 and a normal level would be 5 but that in people with full blown celiac disease it can be over 100 (I don't really know what the numbers mean, or what context they're in). I'm not sure if the other ones you mentioned were tested in the panel so I guess I'll see when I get copies of the lab results. We are going to go ahead with the endoscopy so I guess we'll see what that shows, I don't want something to be wrong with my child but at least if they find that it is celiac we can get her the help she needs, it is so disconcerting to have her complaining about her stomach hurting all the time and not know what the cause is.
  15. My daughter has been complaining of abdominal pain, just about every day, for 5 months. We have been seeing a GI and all of her blood work has come back normal except for her TTG-IGG which was at 25. The dr said celiac disease is suspected if it's over 100 but 25 is still elevated. She is also not IGA deficient. Other than that all other tests have been fine. They want to do an endoscopy now since we're still not getting any definitive answers but I don't want to do it unless we've exhausted all other options, just because it seems so invasive, especially for a child.. I guess what I want to know is: -Can she still have Celiac with just that one antibody being elevated? -Can she still have visible damage that they would see with an endoscopy with her blood results being what they are? I'd appreciate any advice thanks! (her main complaint is the abdominal pain, and she doesn't eat as much at some meals because she says her tummy hurts, other than that, activity levels, growth, stool etc. seems to be normal)