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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

xOuchie911x

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  1. My Symptoms Rant.

    Thank you for such detailed answers Green and 0range. I will look into foods with magnesium and also ask my dr about a possible thyroid issue. Another question I had was, do any of you have an issue with bladder infections? I get many of them for some reason. Also, I have had on and off kidney pain (not now thank goodness) but have had a history of calcium buildup on my kidney which was painful. The CT scan didn't show stones...just a buildup of calcium. Is that normal?
  2. My Symptoms Rant.

    Thanks Green. I actually didn't know that. Are there any food that can help increase my magnesium levels? And also wanted to ask, I once had a thyroid test done but it was in the ER years ago and I am sure that they did it the quickest way possible. I wanted to know what tests I should be asking my dr for in order to get an accurate result whether negative or positive?
  3. I have not been tested for Celiac disease yet. But I decided to start a new topic about some of the symptoms I have so that I can learn. Not sure if this is a symptom of Celiac or not but it's something that is an annoyance to me. Tinging. I get tingling in my left upper thigh mostly. It happened while I was sitting down eating my pasta and it happens a lot when I lay down. I also get tingling in my hands, but not as frequent as the thigh tingling has been.
  4. I haven't seen the Purpura but I do still have the tiny red flat spots (petechiae?) I noticed some more on my shoulder today. I hope I am eating enough for the tests. There are days when I can hardly eat because of slight nausea or a general ill feeling. I also had another question, and I am sorry if I ask a lot. But I noticed several months ago that my cheek has become a bit sunken in, Now I am 98 pounds but if it was due to weight loss wouldn't it be both sides? And can celiac disease make your skin that way?
  5. Hi June. Thank you. I will certainly look into that if this dr visit I have coming up doesn't go well. Another question I had for everyone is, I used to get the rash on my skin where it looked like the blood was coming to the surface of my skin - kind of like Purpura. I haven't seen that type of rash in a while on me. I read that it has something to do with blood platelets. Since I haven't seen this rash does that mean my platelets have fixed themselves? Will my blood tests not be able to detect there was, or could still be, a problem?
  6. I have had this rectal pain for years and years. Drs look at me like I am nuts but was told by one to have a colonoscopy. I didn't then because of the mistreatment I got from drs. I gave up and hid. But it's something I wish to have done. If I can just find a dr who believes that I really don't feel well.
  7. Thanks Ski and green. I try to consume as much gluten as possible everyday just to make sure the tests come out accurate. But now at least I know one to two slices of bread a day will be good enough. Another question I had was : What is the difference between Celiac Disease and Celiac sensitivity? I have been looking on the internet and found a few things but I guess I am not completely understanding all of the dr terms they use. Other things I failed to mention in my very first post were, I get these red spots on my skin. They are flat round red spots. I have a few on my hands, one on my nose and some on my chest. Can either celiac disease or sensitivity do this to me? Also I get terrible rectal pain that can last anywhere from a minute to about 2 hours. I have not had it last as long as 2 hours though. Thank goodness. The pain seems worse around the time of my period. But I do get it throughout the whole month. I just don't know what triggers this.
  8. Thank you all for your responses and welcoming me here Yes I am still eating gluten until I get tested. I am just not sure how much gluten a day to eat. I read a post here once that said about 4 slices of bread a day, something like that? I had a sandwich and potato salad today, but I don't now if I can handle anymore bread....I am not so hungry and am usually not so hungry. I eat smaller amounts of food through out the day because my tummy feels upset and bloated a lot. I don't know how to get enough gluten for a test to be accurate.
  9. Hello everyone. Not sure if this is the right place to introduce myself. I am a 31 year old woman from New Hampshire and am here to learn more about Celiac Disease. I have had several symptoms for years now and have had no answers from drs. I lost faith in them a long time ago. I have tried finding the cause of my issues in the past, but I get close to test date and then the dr says something that makes me ashamed of my symptoms. The last incidence was her saying "They won't find anything. I know you, you are just nervous. There's nothing wrong". I have been mistreated emotionally by drs, so I have shied away. I know that was a bad thing to do but that's what my reasoning was. Meanwhile I am 98 lbs, have issues with my periods being too short or missing them or having too many. I have gotten rashes on my skin that look like purpula, except mine are confined to one patch on my legs or arms. I may have gotten this rash in other places and have not noticed. I also get these tiny red dots on my chest area mostly. Neither of these things itch or cause pain. I have had heart palpitations before and have had a stress test and all seems ok with my heart. I am a smoker and I know that is bad, but I get some strange things happen to me where as other smokers I know in my immediate life do not. Also, I get bloated after I eat. I know some bloating is normal but mine tummy just pops out too much at times. I had a sandwich and canned soup today and that's when I noticed it. I also have itchy dry skin that is very annoying to me. I have had a couple drs suggest endometriosis to me as a reason for my cysts and funny periods. It is written in my medical chart that I am anorexic and have anxiety. I do not get any more anxious than anyone else. I am just frustrated. Although I have had some unexplained anxiety attacks, some big some small...I have not had a huge one in a long time though. My living situation is better now. But I do fee anxious for no apparent reason at times. As far as the anorexia goes, I am not anorexic. I will eat when I have the money to buy food. But eating can be difficult at times. Right now I feel full and heavy even though I haven't eaten much today. I had a BM today but it was small and difficult to go. Sometimes I feel like I really need to go and nothing ever happens. That's all I will say for now because this is getting long. I am seeing a general dr on the 13th and I am nervous that this will be one more dr who doesn't listen to me. I want the appropriate blood tests to check for Celiac to start, then an endoscopy if need be. What blood tests are needed to check for this? I want to be very very clear with this dr. It is the clinic and they are not always good about things but it's all I have for now. So I want to be ready and prepared with a list of my symptoms and the things I would like to see happen. I am just afraid of being pushed to the side, of being told I am jut an anxious anorexic. I am not anorexic. I am anxious because I get treated poorly by lots of drs. If you have read all of this then I thank you. And it's nice to meet you all.