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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Nwalter

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About Nwalter

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  1. Hi, sounds like you have been going through some very frustrating diagnoses. I have been having many of the symptoms you described and about a year and a half ago I was diagnosed with Fibromyalgia and Chronic Fatigue Syndrome; that after years of complaining to my doctor off and on of symptoms. I was not happy with my diagnosis (I too have an extremely hard time absorbing Vit D except through UV exposure and a multitude of vitamin deficiencies which were never addressed). After having years of chronic constipation, even when trying everything natural and unnatural to be regular, I heard about being gluten intolerant and decided to pay attention to my reaction to gluten. I didn't really take it seriously until the Mayo Clinic listed "Decreased Dental Health" as one of the symptoms (I had been having pain, tooth loss and infections for over a year which I had never had before and I attributed it to my low Vit D). As soon as I read that symptom I stopped eating anything with gluten in it and low and behold 3 days later the pain and infection disappeared (however it comes back when I have a cross contamination issue). For me being gluten free is less frustrating that it can be for most people because my system reacts very violently and immediately to exposure. I bloat and become nauseated within minutes and spend 1-3 days with "Fibromyalgia" symptoms along with constipation/diarrhea , pain and fatigue. As hard as it is to not eat my favorite crackers the reaction to it keeps me from doing it. I do have infertility (did have) but it is from a congenital adrenal disorder so I know it is not related. I worked with an endo/fertility doctor and have a teen daughter. The Vit D like you is very frustrating even when taking high doses; when the Mayo Clinic told me I had Fibromyalgia and very low Vit D (7) I was told to take 3500 a day and I shot back that I was already taking 5000 a day. I'm also anemic and was told my RLS is from low iron ----but honestly most of my symptoms from all of what I have been diagnosed with dissipate when remaining gluten free (even a little cross contamination makes me violently ill). Today is a day that is not good all because I had a bite of rotisserie chicken and potato salad (modified food starch!). I won't be doing that again. Good luck to you and I am glad that I found this website so I have others who understand and can relate to. It is good to hear that I am not making this all up in my head and these weird things aren't just happening to me!