• Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

jlenmd

Members
  • Content count

    1
  • Joined

  • Last visited

Community Reputation

0 Neutral

About jlenmd

  • Rank
    New Community Member

Profile Information

  • Gender
    Male
  1. My 9 year old daughter has celiac disease and recurrent pancreatitis , first diagnosed 3 years ago. She has been on a gluten free diet and her episodes of pancreatitis are somewhat less frequent . Her GI specialist has been recommending ERCP with pancreatic duct sphincterotomy and stent placement. Mt wife and I fear going down this surgical road. We are looking for similar cases to see what are the best treatments, to find the right "template" . I am a physician and it is very frustrating due to the lack of literature and case reports for patients with both celiac disease and pancreatitis. If anyone has a child with these 2 problems or is a young adult with these 2 problems PLEASE contact me at Jlenmd@comcast.net. to share any info you may have to help us find the correct path to take for treatment for our daughter. THANK YOU