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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.


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About mynxr

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  1. Hi, I know this thread is old but I'm in Swansboro. My husband and I moved here almost 6 years ago and I was diagnosed with Celiac 3 years ago. I can't find a support group, meetup group or anyone else that has Celiac even close to me. I would happily drive to Jacksonville or host a group if people are willing to come to Swansboro. I've learned a lot during the past three years but still have trouble with groups, dining, out etc.
  2. I understand that the contents of Lipton tea are gluten free. However, my concern is do they use a wheat glue as an adhesive for their tea bags. Yes, I'm that sensitive to gluten. I'm out of loose tea and so I was wondering if it's possible to safely buy Lipton tea bags or if I need to continue using loose leaf tea.
  3. I know this is probably going to sound crazy but here goes. If you enjoy tea and are very sensitive to gluten, you might want to switch to loose tea instead of tea bags. I learned last week that companies use wheat glue to glue the tea bags together on the assembly lines. I was getting sick even after drinking "gluten free" teas. When I looked into it further, I discovered that even those which state they are gluten free, use wheat glue. Their teas are still under the FDA definition of gluten free but there is a risk of cross contamination. I was so surprised when I found this out that I thought I should pass it along. I know I wish someone had told me so that I wouldn't have gotten sick from my tea drinking.
  4. I live in a small town in coastal NC. They are finally starting to stock some gluten free items. Udi's bread is just too expensive so I make my own. My husband and I through trial and error have found a great bread recipe that tastes just like regular bread. The texture is a little firmer but other than that, it's wonderful. Depending on the things you like to eat, there are gluten free cookbooks out there for just about everything. One thing a lot of people don't mention is that if you have been diagnosed with Celiac then the difference in price between gluten free items and their "normal" equivalent is a medical tax deduction. It doesn't help in the short term but at tax time, it can be a definite blessing. Just make sure to keep your receipts. I don't know what state you live in but another thing that's tax deductible is sales tax. We didn't really worry about it in Ohio because most things weren't taxed. However, here in NC, it was literally sticker shock because they tax EVERYTHING! Plus they have more than one tax rate so figuring it out in your head as you grocery shop is impossible. So, we keep all our receipts and I have a spreadsheet for sales tax, medical items, etc. Hang in there. It does get easier. Every once in a while, I do get blindsided by something but for the most part it's not bad.
  5. Are you taking any medications? Doing any cooking with natural flavors ie vanilla, eating pickles on a regular basis, etc.? I can only speak from my experience but I discovered that my meds contained gluten, natural flavors can contain gluten. If natural vanilla flavoring is made from vodka distilled from wheat, it will make me react. Dextrin makes me react. You may want to look a little closer at the ingredients and check www.glutenfreemeds.com to make sure that your medications, Rx or OTC are gluten free as well. It was a real eye opener to me.
  6. I would be careful with the Omeprazole and use Prilosec instead. There is a great website, www.glutenfreedrugs.com If the drug is listed, it's gluten free. Omeprazole, is not listed but Prilosec is. I used to take Omeprazole and would get ill not long after taking any of my drugs that contained gluten. When I switched from the generic ones that contained gluten to the brand which didn't, I could tell a huge difference. I'm one of those Celiac patients that vinegar makes ill when it's distilled from wheat. Another thing is natural vanilla flavoring. It is made with vodka. I have to make my own vanilla flavoring so that I don't get sick. So, what I'm trying to say, is yes, I'm hyper sensitive but I got that way from three years of hidden gluten exposure after being diagnosed.
  7. There is a great website, www.glutenfreemeds.com It won't tell you about soy, dairy, nuts, etc. but it does give you a pretty complete list of drugs both RX and OTC that contain gluten. They also keep it up to date.
  8. Last night my husband and I had potato skins made by Heinz. I did my research, searched numerous websites including Heinz's website. Everywhere I looked said they were gluten free so I ate them. This morning I am ill from gluten ingestion. I read the label and noticed that there is dextrin listed in the ingredient label. How do I know if dextrin is safe or not or is it never safe? Is there a way to tell if dextrin has a wheat component or like natural flavors, soy sauce, vinegar, etc. should it just be if present do not eat? I am so very sensitive that even vinegar will make me ill if they are distilled from wheat. Yes, I know that everyone says the protein doesn't pass through the process. However, I have gotten very ill from eating nothing but dill pickles. The only dill pickles that don't make me ill are Mount Olive brand which doesn't distill their vinegar from wheat. Thanks, Kathleen
  9. I'm still waiting to find out which girl scouts troops in our area are selling the gluten free cookies.
  10. We don't have Kroger's here either. Unfortunately, there is now no French Onion soup that I can use. I've started making it from scratch which is not a lot of fun but it's better than having nothing.
  11. I know the view on vinegar/alcohol is that the distilling process makes it "gluten free". However, I react to it if it's not distilled from corn, rice or potatoes. I know I'm in the minority but there those of us out there that the distillation process doesn't make it safe.
  12. Hi Jamie, I use www.glutenfreedrugs.com for my meds. If it isn't listed there, I don't take it. I stopped taking Tramadol and went to Ultram because Tramadol isn't on the list. I am so sensitive that on some of the drugs, it has to be a specific manufacture or I will get sick. If the manufacture states that the only gluten in the product is from corn then it should be safe. The only way to really find out is to take a dose on a day when getting sick won't interfere with things you have planned. I'm so very sensitive that I play it safe and use the web site. My pharmacy will order in special for me. If you explain to the pharmacist that you have Celiacs disease and Ultram is gluten free but Tramadol may or may not be and you really don't want to get sick to find out, they might stock it for you. Otherwise, if it were me, I would go to a different pharmacy. I have one drug that I have to get filled at Walgreens because my local pharmacy can't get it anymore. I would rather do it that way and not get sick than take something and be very ill for 24-48 hours afterwards. Kathleen
  13. The reason the Kraft cheese shreds don't stick together is because of the potato starch. The shreds are covered with the potato starch so they don't stick together. You can use that same thing to keep raisins suspended in breads, etc. Just coat them with potato or corn starch before putting them in the batter. Then they grab onto the dough instead of being so heavy that they drop to the bottom. I don't know if you can make this work with cheese that you shred yourself or not. I'll have to do some experimenting. I usually just dice the cheese up very fine and that works pretty well.
  14. Part of the reason that some of the processed gluten-free treats ie cookies, brownies, etc. taste so good is because of the sugar and fat that are added. I gained back a fair amount of weight because when I was diagnosed with Celiac disease, it was easier to just buy processed foods online and have them shipped than it was to bake/cook everything from scratch. Now, I rarely order anything online. When I get tired of making my own flours, I will order from Bob's Red Mill because I know that there is no gluten in the plant and there's no added sugars or fats. So, it's "safe" for me to use. Other than that, I make my own flours and we cook everything from scratch.
  15. I have gotten sick from eating some of Kraft's products too. The most recent being sugar free jello. I know everyone says it's gluten free and it doesn't make them sick but it does make some of us sick.