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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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caniac4 last won the day on August 22 2014

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  1. I realize this topic is over a month old but felt the need to speak up. I am a pharmacist. I have celiac disease so I understand the need for vigilance regarding things we eat/take/contact. I also understand the plight of the medical community and will speak to that. First of all, in pharmacy school, NOT ONCE, EVER, EVER, was did the term celiac disease show up in any classes. EVER. I left pharmacy school unaware that this disease even exists. (I also have Addison's disease, which I had never heard of until I was diagnosed years after graduating pharmacy school. So it happens) ) So I am not surprised that the medical community as a whole is not on top of this. We do learn of new conditions as time passes, along with details of all the new drugs that the FDA releases each year. That does not mean that we can learn all of the ins and outs of every condition, though I believe that we, in general, try to stay on top of things as best we can. Now, onto the drugs we need. Sometimes, there is only a single provider for different drugs. You take it or leave it--there are no options. If there is a generic option for your drug, there are often several suppliers. Guess what? We, as pharmacists, nurses, doctors, do not get a manual that tells us which drugs by which manufacturers are gluten-free. If given the time (meaning without the patient standing in front of us drumming their fingers on the counter, which happens a lot!) your pharmacist can call the supplier or manufacturer and ask about the gluten content. Having done that before, I can ell you that you will not always get a definitive answer. I will say that I have never been glutened by taking any drug. YMMV, of course. Also, some pharmacists' hands are tied when it comes to which drugs by which manufacturers are ordered. Chain drug stores have contracts with certain suppliers and those suppliers may only carry a certain number of manufacturers' products when it comes to generics. There is nothing that pharmacist can do if their employer has total control of that. Now, onto no one placing the "celiac" note in the patient chart of the original poster. There's no excuse for that. There was nothing that practitioner could do regarding your celiac disease, but to ignore it was wrong. As for the pharmacist not helping, no excuse. As long as you give him/her time to find out your answers--which may take a while--then it should happen that way. I'm sorry you ran into an issue. There are duds in every profession and maybe you found one in that pharmacy. As it always has been, celiacs really need to do pretty much all of their research, whether it be for food or drugs or what have you. It's no different now. I don't know if that is right, but that's the way it is. As prevalent as diabetes is, I have been involved with doctors and nurses who really don't get it. They don't understand the insulin pump I have, they don't understand insulin dosing. It falls to me on those times I end up in the ER or admitted to the hospital to take care of my own diabetes. It's going to be the same regarding celiac disease for the most part for all of us.
  2. I don't know enough about a bonafide link between diabetes and celiac disease but I have both. I've been a type 1 diabetic for 11 years and now have a diagnosis of celiac disease. I'm on an autoimmune roll as I also have Addison's Disease and autoimmune thyroid disease and Sjogren's Syndrome. So I was blessed with 5 AI disorders. So far !
  3. Hi Gemini, I have been using Biotene for some time (toothpaste and mouthwash) Couldn't get by without them! Restasis I can take or leave. I'm not certain it does much for me though I stick with it. I also use moisturizing eyedrops all day long and often through the night. Thanks for the words of advice! I'll take all advice!
  4. ACK! My kinda long post just disappeared-got a message I had timed out. Anyway..I'll try again. Thanks everyone! You have told me things that no dietitian or physician ever did. No one gave me any reason to change the way I eat except to stop the GI symptoms, which I didn't have. Even my GI doc said I could do what I wanted when I asked why I should follow the gluten free diet. No facts, nothing. Colleen~ it is so rare I come across anyone with Addison's disease! I used to frequent a message board for Addison's but it has vanished. Perhaps you or your husband know of a good one? I miss having people to relate to with that awful disease. Gemini~ Sjogren's is the disease I deal with pretty much 24/7. My eyes are so dry I think they will spontaneously combust! Could be worse for me, though. Thanks again, all. Now I have much to learn about eating in a new way.
  5. Hello all, I have been diagnosed thru biopsy as celiac. I have symptoms that I can attribute to being celiac. The only reason I was sent to a GI doc was fatigue and what a surprise it was to both me and the GI doc that I AM celiac! Unfortunately, I also have other chronic diseases that are notorious for causing fatigue (Addison's, Sjogren's). I've had those 2 diseases for 10 years and have suffered major fatigue for 10 years so who's to know that celiac is causing it? So, I'm wondering if anyone else here seems to have no symptoms. Since I experience nothing different between eating gluten or not, I find it difficult to motivate myself to eat gluten-free. I've not had a satisfactory answer from any doc upon asking what do I gain by dealing with this difficult way of eating. What will happen if I don't go gluten-free? Can anyone here offer some insights? Thanks, Suzanne