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cristiana last won the day on March 14
cristiana had the most liked content!
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cristiana reacted to a post in a topic: Recently had my esophagus dilated
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cristiana reacted to a post in a topic: Recently had my esophagus dilated
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Recently had my esophagus dilated
cristiana replied to BunnyBrown's topic in Related Issues & Disorders
Hello @BunnyBrown and welcome to the forum. I cannot say that I have had the procedure you describe, but recently I did have general surgery and was routinely intubated. That pain was what troubled me most after the operation, far more than the operation site. It took a few days to really settle down, I was quite badly bruised. It was taking so... -
cristiana reacted to a post in a topic: How Long Do Celiac Patients Live?
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cristiana reacted to a post in a topic: How Long Do Celiac Patients Live?
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This wonderful, Anne. I think you have a point about why people disappear off forums. I found the first few years post diagnosis a real struggle and frankly wondered if I would ever feel better (not to dishearten people, but just to say it can take a while longer for some folk to heal). However, once my antibodies were back within normal range...
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cristiana reacted to a post in a topic: How Long Do Celiac Patients Live?
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Russ H reacted to a post in a topic: Newly diagnosed
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Newly diagnosed
cristiana replied to Patsul's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi @Patsul I had the very same issue with gas, it affected me at first in my mid abdomen, then moved to the lower left quadrant, so I sympathise! My gastroenterologist recommended that I went dairy free for a little while. He suggested giving it 2-3 weeks. It worked a treat. Coeliacs are often temporarily lactose intolerant at diagnosis, because... -
Scott Adams reacted to a post in a topic: Hello. Need advice for advocating for myself. (UK)
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Hi @beeboschmeebo82 It is always good to meet another British person on this forum - there are quite a few of us! Certainly, a small percentage of coeliacs have negative blood tests, your GP may or may not be aware. So, to properly diagnose coeliac disease, or to rule it out, people often have to take on the role of self-advocate in these circumstances...
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Hello @Lrgthrcl I am a Mod but haven't been on the forum for a while as I have a lot on at work, but saw you post. I think it is excellent that your daughter has been referred to paediatrics. However, if you do have private insurance, I'd definitely use it in your position as I suspect you will be seen much sooner. I agree that addressing...
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Thanks for posting this, Scott. Very useful to have this resource on the forum.
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cristiana reacted to a post in a topic: must eat low sugar and low salt diet. What can I eat besides fruit for a dessert? Any info appreciated.
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cristiana reacted to a post in a topic: Dirty plate from dishwasher. Help
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cristiana reacted to a post in a topic: Dirty plate from dishwasher. Help
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Constant low back, abdominal and pelvic pain!
cristiana replied to Aussienae's topic in Coping with Celiac Disease
This isn't uncommon in coeliacs - see this link, for example: https://www.cghjournal.org/article/S1542-3565(03)00313-6/fulltext In my own case my ALT was normal but I had a really weird reading in that my immunoglobulin levels were 41 instead of 35 max. This really worried my GP but when I saw my consultant he said, "Oh yes, it's unusual, but...- 58 replies
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Constant low back, abdominal and pelvic pain!
cristiana replied to Aussienae's topic in Coping with Celiac Disease
My consultant has prescribed Fultium Vitamin D, but I also take Vitamin B and magnesium from time to time. I also take Boots jelly sweets for Skin and Hair, can't remember the name. Going back to pelvic pain, I did notice that coming off lactose for a while reduced lower quadrant bloating and that helped reduce the pelvic pain. I do consume dairy...- 58 replies
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Constant low back, abdominal and pelvic pain!
cristiana replied to Aussienae's topic in Coping with Celiac Disease
You must have your own toaster (or own toaster bags); for "may contain" read as "does contain", and try to avoid eating out for a while. If small amounts of gluten are sneaking in, this will have knock-on effects and could be causing your constipation. If you take constipation of out of the picture, you may find that your other symptoms settle down.- 58 replies
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Constant low back, abdominal and pelvic pain!
cristiana replied to Aussienae's topic in Coping with Celiac Disease
PS If you are perimenopausal and getting vulvodynia type pain, repeated bouts of cystitis or anything along those lines in that area, you may find using Ovestin cream worth trying first before attempting to take systemic HRT. I have a family history of breast cancer so am avoiding systemic HRT, but the small amount of Ovestin cream I've had to use has...- 58 replies
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Constant low back, abdominal and pelvic pain!
cristiana replied to Aussienae's topic in Coping with Celiac Disease
Hello @EmilyKate and a big welcome to the forum! I didn't want to read and run but I do have to run soon - taking an elderly relative to a hearing test! But yes, it sounds like you are in the same boat. I'm so glad you've had the extensive testing to rule out gynae problems but I am not surprised that nothing was found. I've recently had...- 58 replies
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@Ruby89 Hello Ruby It is good to hear from you again. Thank you so much for the update. For many it takes a while to unpick what is a coeliac symptom, what might be another condition, or what might be a 'hangover' from damage (some of which will be reversible) caused by deficiencies. So what I'm saying here is that if you do have lupus (and...
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cristiana reacted to a post in a topic: DH and ongoing high antibodies despite strict gluten-free diet.. feeling hopeless