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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About not4sakn

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  1. What are your reactions like? I'm not 100% sure I'm gluten sensitive. I've had a celiac biopsy which was negative but my symptoms resemble those of gluten intolerance. All mine are neurological though. Headaches, neck pain, brain fog, palpitations in my head. I've had countless tests and doctors tell me I'm healthy and normal. While that's great news, something isnt right.
  2. Just wondering if anyone has had a reaction to this or not? I know peanut butter should naturally be gluten free but a lot of their stuff says it may be produced on same equipment thats processed wheat etc...The peanut butter doesn't specifically say this but many of their products do and I'm curious because something has made me feel bad, either their Almond butter or peanut butter.
  3. On their website it says its manufactured on the same equipment containing gluten foods. That's what caught my attention. My cutting boards are the thick plastic ones. Most of my spatulas, spoons, etc.. are also plastic. I do have a few bamboo ones that are hardly used. I haven't cut dairy out completely but I don't eat it often anyways. Every now and then I'll have cheese on a sandwich or a taco but that's it. The thing is, I don't know if gluten is causing all this or not. I was tested for celiac via biopsy and it was negative which doens't mean anything really just that I don't have celiacs disease. I don't know what to cutout to see what makes a difference. At this point I'm willing to try anything.
  4. So after more research I discovered that while the foods I'm eating are gluten free there could be cross contamination issues. I make home-made pico de gallo and guacamole which I love! I eat Tostitos multi-grain scoops which on Frito's website it's listed as a gluten free food. However, it goes on to mention that while it doesn't contain gluten it could be manufactured on the same equipment that has gluten in them. This is very disheartening. It seems all my good efforts could possibly be in vain. I'm trying so hard to see if this diet helps and all the while I'm still possibly eating food with the very thing in it thats making me feel bad. I read every label carefully and it seems this is all we have to go off of and yet that isn't enough. If I have been cross contaminated does this mean everything starts over since I truly havent been gluten free? Could it still take 2-4 months to see real huge differences if gluten is the culprit for me?
  5. Would someone who's only gluten intolerant take as long to get well compared to a celiac with intestinal damage? When I had an intestinal biopsy the tests was negative for celiac. If there's no damage why would someone that's only gluten intolerant take as long to show signs of improvement if gluten is the culprit? I'm talking 6-8 weeks or more to see change?
  6. Thanks for replying. I'm not ruling out Celiac. I'm saying I had a biopsy done which was negative. Doesn't mean I'm not highly intolerant. I've also noticed a skin rash in my groin area. This comes and goes intermittently. My dermatologist gave me a steroid cream which helps but it always comes back. He says it's from sweat. I'm extremely clean, shower at least once a day and do not sweat much at all. This with all my other symptoms leads me to think it's gluten related.
  7. Thanks for the reply! I was tested via biopsy which was negative for intestinal damage. Like you said, that doesn't mean I'm not gluten intolerant which from my understanding there is no test for. The only way to actually confirm this is to eliminate all gluten from your diet for atleast 2 months. I've read testimonies were some noticed positive changes within days. While others went through a detox period where symptoms worsened for weeks before they ever got better. "The storm before the calm" as some put it. This period took some close to 2 months to start noticing relief but everyday showed new signs of hope.
  8. I'm new to the forum and had a few questions regarding your own personal experience with gluten sensitivity/celiac and the symptoms surrounding it. Is it possible to have gluten sensitivity without the typical stomach symptoms such as bloating, pain, gas, vomiting, diarrhea etc...? I've read numerous articles on gluten and the whole host of symptoms surrounding it. I'm just curious how many actually suffered from neurological issues with very minimal to no stomach issues what so ever. Over the past 5 years I've been suffering with symptoms that no doctor can seem to put their finger on. I've had countless tests and even a celiac biopsy which came back negative. My symptoms began with brain fog, pressure like head feeling, and visual floaters. Over the years its progress to constant neck pain, random facial tingling, mild dizziness, difficulty concentrating, memory issues, insomnia, anxiety, pounding heartbeat in my head and with all the many tests I've had done, the doctors say I'm healthy! lol While that's great news my symptoms aren't normal and I recall a period in my life that I enjoyed life, things were great and my outlook positive. That's been quite a while since I can honestly say that but I haven't given up hope. Many doctors brush off the likelyhood of celiac/gluten intolerance because I have no stomach issues. Sure I have mild reflux from time to time but nothing major. Could all these neurological symptoms be a direct result of gluten while my stomach remains "unharmed/untouched" by it? Thanks for your replies!