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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes


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About Blu-1

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  1. Hello, I need to see a doctor who specializes in Celiac post-diagnosis care. Someone who knows what to test for in terms of deficiencies and other food allergies. Gastroenterologists tend to be more focused on diagnosing Celiac and then prescribing a gluten free diet as the after diagnosis treatment, which isn't enough in my case. My doctor isn't comfortable following up on my chipped teeth and broken bone, muscles strains, etc., as signs of deficiencies. It would be nice if I could see an MD who specializes in Celiac. Does anyone in Colorado, particularly in the Boulder-Denver area, know of a doctor who is familiar with the complexities that can arise post diagnosis on a gluten free diet? Thank you everyone.
  2. I received clarification from Giliah Nagar, General Manager of Celiact, as to what "undetectable" amounts of milk in the CeliAct supplement means: Hi Blu, Sorry for the late response. It means that machines responsible for detecting a certain allergen only search for it to a certain level. This is how allergen testing works in food and supplements. There are cutoff amounts where tools will not attempt to detect below (for dairy, for example, it is below 5 PPM and for gluten, it is below 3 PPM). If the tools cannot detect for those amounts, then the results for allergen testing come back as “undetectable” to those amounts. Does that make a little more sense now? Thanks, -- Giliah Nagar | General Manager | CeliAct
  3. Thanks kareng. I emailed the company and got the following response: Hi Blu, CeliAct is dairy-free / casein-free. We test all inventory in a third party lab before it can be sold. There is an undetectable amount of both dairy and casein in CeliAct. Let me know if I can help with anything else. Best, -- Giliah Nagar | General Manager | CeliAct I emailed Giliah Nagar back asking her to clarify what "undetectable" means but haven't gotten a response so far. I am wondering if "undetectable" means that they meet the legal requirement for the amount of milk in the supplement to be considered to be technically "milk free". Or perhaps milk is involved in the process of manufacturing some of the ingredients but the end product has little to no milk in it. I do hope for transparency-sake that the celiAct manufacturers get back to me. Otherwise there is too much room for conjecture on the part of their customers and they might lose business unnecessarily. The product has been amazing for me and my cousin. We both have Celiac. Some of my symptoms disappeared soon after taking it and return if I don't take it. I am casein intolerant but can handle small amounts. However, I don't want to recommend celiAct to people who cannot afford to have even the smallest trace of milk in their diet.
  4. Hello, I have found ways to improve most of my symptoms but am at a loss on how to improve my memory. If I was to summarize my memory deficit it is an inability to retrieve words on cue. I also don't have much confidence in my ability to memorize new things either. My attention span is rather like a little kid running all over the place. I suspect I might be deficient in something. For example, if I don't take vitamin D I get peripheral neuropathy within a few days. Has anyone found anything that helps their memory apart from the obvious - don't eat gluten?
  5. Thanks. I am having trouble finding contact info for the manufacturer. I'll keep looking and I will definitely post what I find out.
  6. I wondering if anyone knows if the supplement "Celiact" - celiac with a t on the end - contains trace amounts of milk (casein and/or lactose) in it? I am having trouble finding the answer by going to stores that sell the product. Some reviews by customers reference that it does have trace amounts of milk in it. The supplement works miracles for me but I am casein intolerant. I can handle trace amounts of casein in butter. However, my mother may not, and I don't want her taking this supplement if it has milk bi-products in it.
  7. I am celiac with MS-like neurological symptoms in response to gluten and rheumatoid arthritic symptoms in response to milk. My mother is gluten intolerant, but not tested for celiac, and had lymphoma (associated with gluten) earlier in her life. My brother has severe anxiety, OCD, and recently schizophrenia. He also had polyps and intestinal bleeding as a teenager. Based on my diagnosis, my mother's gluten intolerance, and current research on the connection between gluten and milk and schzophrenia, my brother has been on a gluten and milk free diet. We had noticed general improvements in my brother's engagement with people and life, weight, and happiness since he had been on the diet. We weren't sure if the diet might be linked to his mental health until recently. We have found that milk appears to trigger psychosis. I found a number of research articles on the connection between schizophrenia and gluten and milk if anyone is interested. One article, for example is, Gastrointestinal inflammation and associated immune activation in schizophrenia. Some researchers now suspect a connection between an autoimmune response to food and schizophrenia. An interesting finding in this article is that levels of gut inflammation were less with patients taking antipsychotics and we do know that antipsychotics, although not a miracle cure, can reduce psychotic symptoms in a horrible round-a-bout way. Some people, by far the minority, now suspect that antipsychotics might be helping symptoms by reducing gut inflammation and possibly the immune response to foods, not dopamine receptors in the brain as traditional theory hypothesizes. Has anyone else found milk causes symptoms of paranoia and/or voices?